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. 2021 Mar-Apr;118(2):124-129.

Family-Centered Pediatric Plastic Surgery Care

Kamlesh B Patel  1 , Kristin D Pfeifauf  1 , Alison Snyder-Warwick  1
Affiliations

Family-Centered Pediatric Plastic Surgery Care

Kamlesh B Patel et al. Mo Med. 2021 Mar-Apr.

Abstract

Our multidisciplinary cleft palate and craniofacial center was established in 1978 and manages more than 5,000 active patients from birth to skeletal maturity. Over the past four years we have implemented a complex family-centered reorganization, with the goal of improving care and patient retention. Through our implementation of a familycentered approach, we have also decreased treatment burden, need for secondary procedures and cost of care. 1-12.

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Figures

Figure 1
Figure 1
Multidisciplinary Cleft-Craniofacial team members at St. Louis Children’s Hospital.
Figure 2
Figure 2
Cleft Lip & Palate timeline for care.
Figure 3
Figure 3
Nonsyndromic craniosynostosis timeline for care from birth to skeletal maturity. New protocol minimizes clinic visits and need for additional imaging.
Figure 4
Figure 4
Left, child with right unilateral coronal craniosynostosis. Left, 1-year after completion of helmet molding therapy and endoscopic-assisted treatment.
Figure 5
Figure 5
Left, child with a bilateral cleft lip and palate. Right, 5-years after bilateral cleft lip and nose repair.
None
See this image and copyright information in PMC

References

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    1. Pfeifauf KD, Snyder-Warwick A, Skolnick GB, Naidoo SD, Nissen RJ, Patel KB. Primer on State Statutory Mandates of Third-Party Orthodontic Coverage for Cleft Palate and Craniofacial Care in the United States. Cleft Palate Craniofac J. 2018;55(3):466–9. - PMC - PubMed
    1. Cooper DC, Peterson EC, Grellner CG, et al. Cleft and Craniofacial Multidisciplinary Team Clinic: A Look at Attrition Rates for Patients With Complete Cleft Lip and Palate and Nonsyndromic Single-Suture Craniosynostosis. Cleft Palate Craniofac J. 2019;56(10):1287–94. - PMC - PubMed
    1. Pfeifauf KD, Patel KB, Snyder-Warwick A, Skolnick GB, Scheve S, Naidoo SD. Survey of North American Multidisciplinary Cleft Palate and Craniofacial Team. Clinic Administration Cleft Palate Craniofac J. 2019;56(4):508–13. - PMC - PubMed
    1. Padovano WM, Snyder-Warwick AK, Skolnick GB, et al. Evaluation of Multidisciplinary Team Clinic for Patients With Isolated Cleft Lip. Cleft Palate Craniofac J. 2020;57(7):900–8. - PubMed