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Multicenter Study
. 2021 Aug 1;73(2):251-258.
doi: 10.1097/MPG.0000000000003148.

Transition Services for Paediatric Inflammatory Bowel Disease: A Multicentre Study of Practice in the United Kingdom

James J Ashton  1   2 , Priya Narula  3 , Fevronia Kiparissi  4 , Christine Spray  5 , David C Wilson  6 , Rachel Tayler  7 , Lucy Howarth  8 , Franco Torrente  9 , Protima Deb  10 , Fiona L Cameron  11 , Rafeeq Muhammed  12 , Thankam Paul  13 , Jenny Epstein  14 , Maureen Lawson  15 , Janis Maginnis  16 , Veena Zamvar  17 , Andrew Fagbemi  18 , David Devadason  19 , Hemant S Bhavsar  20 , Jochen Kammermeier  21 , Robert M Beattie  1
Affiliations
Multicenter Study

Transition Services for Paediatric Inflammatory Bowel Disease: A Multicentre Study of Practice in the United Kingdom

James J Ashton et al. J Pediatr Gastroenterol Nutr. .

Abstract

Objectives: Patients with paediatric inflammatory bowel disease (IBD) constitute one of the largest cohorts requiring transition from paediatric to adult services. Standardised transition care improves short and long-term patient outcomes. This study aimed to detail the current state of transition services for IBD in the United Kingdom (UK).

Methods: We performed a nationwide study to ascertain current practice, facilities and resources for children and young people with IBD. Specialist paediatric IBD centres were invited to contribute data on: timing of transition/transfer of care; transition resources available including clinics, staff and patient information; planning for future improvement.

Results: Twenty of 21 (95%) of invited centres responded. Over 90% of centres began the transition process below 16 years of age and all had completed transfer to adult care at 18 years of age. The proportion of patients in the transition process at individual centres varied from 10% to 50%.Joint clinics were held in every centre, with a mean of 12.9 clinics per year. Adult and paediatric gastroenterologists attended at all sites. Availability of additional team members was patchy across the UK, with dietetic, psychological and surgical attendance available in <50% centres. A structured transition tool was used in 75% of centres. Sexual health, contraception and pregnancy were discussed by <60% of teams.

Conclusions: This study provides real-world clinical data on UK-wide transition services. These data can be used to develop a national strategy to complement current transition guidelines, focused on standardising services whilst allowing for local implementation.

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Conflict of interest statement

The authors declare no conflicts of interest.

Comment in

References

    1. Ashton JJ, Cullen M, Afzal NA, et al. Is the incidence of paediatric inflammatory bowel disease still increasing? Arch Dis Child 2018; 103:1093–1094.
    1. Henderson P, Hansen H, Cameron FL, et al. Rising incidence of pediatric inflammatory bowel disease in Scotland. Inflamm Bowel Dis 2012; 18:999–1005.
    1. Kammermeier J, Morris MA, Garrick V, et al. Management of Crohn's disease. Arch Dis Child 2016; 101:475–480.
    1. Fell JM, Muhammed R, Spray C, et al. Management of ulcerative colitis. Arch Dis Child 2016; 101:469–474.
    1. Brooks AJ, Rowse G, Ryder A, et al. Systematic review: psychological morbidity in young people with inflammatory bowel disease – risk factors and impacts. Aliment Pharmacol Ther 2016; 44:3–15.

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