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. 2021 Apr 3:22:100765.
doi: 10.1016/j.conctc.2021.100765. eCollection 2021 Jun.

Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol

Terrah Foster Akard  1 , Kelly Davis  1   2 , Tracy Hills  2 , Miriam Lense  1   3 , Dana Kim  2 , Rylie Webber  2 , Mary S Dietrich  1 , Mary Jo Gilmer  1   2
Affiliations

Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol

Terrah Foster Akard et al. Contemp Clin Trials Commun. .

Abstract

Investigations evaluating the effectiveness of music-based interventions as a complementary approach to symptom management and health promotion for cognitively-impaired children with life-limiting conditions and their families are needed to minimize the physical and psychological burdens on individuals and their caregivers. Songwriting is one music-based strategy for a remote family-centered complementary approach to improve outcomes for cognitively-impaired children with life-limiting conditions, their parents, and families. The overall purpose of this study is to test the feasibility and preliminary efficacy of a songwriting intervention for cognitively-impaired children (ages 5-17 years) who are receiving palliative or complex care and their parents. Specific aims are to: (1) determine the feasibility of songwriting for cognitively-impaired children with life-limiting conditions and their parents, and (2) examine preliminary efficacy of songwriting for child psychological distress and physical symptoms, parent psychological distress, and family environment. The protocol for this 1-group pre-and post-intervention clinical trial (N = 25) is described.

Keywords: Hospice and palliative care nursing; Music therapy; Palliative care; Palliative medicine; Pediatrics; Songwriting.

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Conflict of interest statement

We have no conflicts of interest to disclose.

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Fig. 1
Conceptual framework.
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References

    1. Himelstein B.P. Pediatric palliative care. N. Engl. J. Med. 2004;350(17):1752–1762. - PubMed
    1. Chan W. Executive functioning mediates the effect of behavioral problems on depression in mothers of children with developmental disabilities. Am. J. Intellect. Dev. Disabil. 2017;122(1):11–24. - PMC - PubMed
    1. Song J., Mailick M.R., Greenberg J.S. Health of parents of individuals with developmental disorders or mental health problems: impacts of stigma. Soc. Sci. Med. 2018;217:152–158. - PMC - PubMed
    1. Valicenti-Mcdermott M. Parental stress in families of children with autism and other developmental disabilities. J. Child Neurol. 2015;30(13):1728–1735. - PubMed
    1. Haase J.E. The resilience in illness model, part 1: exploratory evaluation in adolescents and young adults with cancer. Canc. Nurs. 2014;37(3):E1–E12. - PMC - PubMed

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