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. 2021 May 12;3(5):e0420.
doi: 10.1097/CCE.0000000000000420. eCollection 2021 May.

Optimizing Critical Illness Recovery: Perspectives and Solutions From the Caregivers of ICU Survivors

Carla M Sevin  1 , Leanne M Boehm  2 , Elizabeth Hibbert  3 , Anthony J Bastin  4 , James C Jackson  1 , Joel Meyer  5 , Tara Quasim  6 , Rita N Bakhru  7 , Ashley Montgomery-Yates  8 , Andrew Slack  5 , Mary Still  9 , Giora Netzer  10   11 , Mark E Mikkelsen  12 , Theodore J Iwashyna  13   14 , Kimberley J Haines  3   15   16 , Joanne McPeake  17   18
Affiliations

Optimizing Critical Illness Recovery: Perspectives and Solutions From the Caregivers of ICU Survivors

Carla M Sevin et al. Crit Care Explor. .

Abstract

Objectives: To understand the unmet needs of caregivers of ICU survivors, how they accessed support post ICU, and the key components of beneficial ICU recovery support systems as identified from a caregiver perspective.

Design: International, qualitative study.

Subjects: We conducted 20 semistructured interviews with a diverse group of caregivers in the United States, the United Kingdom, and Australia, 11 of whom had interacted with an ICU recovery program.

Setting: Seven hospitals in the United States, United Kingdom, and Australia.

Interventions: None.

Measurements and main results: Content analysis was used to explore prevalent themes related to unmet needs, as well as perceived strategies to improve ICU outcomes. Post-ICU care was perceived to be generally inadequate. Desired caregiver support fell into two main categories: practical support and emotional support. Successful care delivery initiatives included structured programs, such as post discharge telephone calls, home health programs, post-ICU clinics, and peer support groups, and standing information resources, such as written educational materials and online resources.

Conclusions: This qualitative, multicenter, international study of caregivers of critical illness survivors identified consistently unmet needs, means by which caregivers accessed support post ICU, and several care mechanisms identified by caregivers as supporting optimal ICU recovery.

Keywords: caregivers; critical illness; intensive care unit follow-up clinics; peer support; postintensive care syndrome.

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Conflict of interest statement

Drs. Sevin, Boehm, Quasim, Haines, and McPeake received funding from Society of Critical Care Medicineto undertake this work. Dr. Boehm is funded by the National Institutes of Health/National Heart, Lung, and Blood Institute (K12 HL137943) as is Dr. Iwashyna (K12 HL138039). Dr. McPeake is funded by a THIS Institute Post-Doctoral Fellowship (PD-2019-02-16). The remaining authors have disclosed that they do not have any potential conflicts of interest.

Figures

Figure 1.
Figure 1.
Conceptual model: integrating approaches to support unmet needs of caregivers of patients recovering from critical illness.
See this image and copyright information in PMC

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