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Review
. 2021 Jan 20;14(6):1504-1513.
doi: 10.1093/ckj/sfab008. eCollection 2021 Jun.

Outcomes after kidney transplantation, let's focus on the patients' perspectives

Yiman Wang  1 , Jaapjan D Snoep  2 , Marc H Hemmelder  3 , Koen E A van der Bogt  4   5 , Willem Jan W Bos  6   7 , Paul J M van der Boog  5   7 , Friedo W Dekker  1 , Aiko P J de Vries  5   7 , Yvette Meuleman  1
Affiliations
Review

Outcomes after kidney transplantation, let's focus on the patients' perspectives

Yiman Wang et al. Clin Kidney J. .

Abstract

Graft function and patient survival are traditionally the most used parameters to assess the objective benefits of kidney transplantation. Monitoring graft function, along with therapeutic drug concentrations and transplant complications, comprises the essence of outpatient management in kidney transplant recipients (KTRs). However, the patient's perspective is not always included in this process. Patients' perspectives on their health after kidney transplantation, albeit subjective, are increasingly acknowledged as valuable healthcare outcomes and should be considered in order to provide patient-centred healthcare. Such outcomes are known as patient-reported outcomes (PROs; e.g. health-related quality of life and symptom burden) and are captured using PRO measures (PROMs). So far, PROMs have not been routinely used in clinical care for KTRs. In this review we will introduce PROMs and their potential application and value in the field of kidney transplantation, describe commonly used PROMs in KTRs and discuss structural PROMs implementation into kidney transplantation care.

Keywords: health-related quality of life; kidney transplantation; medication side effects; patient-reported outcome measures (PROMs); symptom burden.

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Figures

FIGURE 1
FIGURE 1
Road map of the POSITIVE study.
See this image and copyright information in PMC

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