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. 2021 Nov 10;50(5):1416-1417h.
doi: 10.1093/ije/dyab033.

Data Resource Profile: Better Outcomes Registry & Network (BORN) Ontario

Malia S Q Murphy  1 , Deshayne B Fell  2   3 , Ann E Sprague  4   5 , Daniel J Corsi  1   2   3   4 , Shelley Dougan  4 , Sandra I Dunn  1   3   4   5 , Vivian Holmberg  4 , Tianhua Huang  4   6   7 , Moya Johnson  4 , Michael Kotuba  4 , Lise Bisnaire  4 , Pranesh Chakraborty  8   9 , Susan Richardson  4 , Mari Teitelbaum  10 , Mark C Walker  1   2   4   11   12
Affiliations

Data Resource Profile: Better Outcomes Registry & Network (BORN) Ontario

Malia S Q Murphy et al. Int J Epidemiol. .
No abstract available

Keywords: BORN Ontario; birth registry; database; health systems; obstetrics; perinatal.

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Figures

Figure 1
Figure 1
Better Outcomes Registry & Network (BORN) Ontario data sources and architecture. BORN Ontario data are submitted on a voluntary basis by health-information custodians from across Ontario servicing the maternal–child population. Data are classified by the nature of the healthcare encounter and are linked to create aggregate records for each woman and child. CARTR, Canadian Assisted Reproductive Technologies Registry; MFM, maternal fetal medicine; NICU, neonatal intensive care unit; NIPT, non-invasive prenatal testing; SCN, special care nursery; HBHC, Healthy Babies Healthy Children.
Figure 2
Figure 2
Better Outcomes Registry & Network (BORN) Ontario data-quality framework. The data-quality framework is based on five dimensions to ensure that user decision-making is based on current, valid, reliable and relevant data.
Figure 3
Figure 3
Accessing Better Outcomes Registry & Network (BORN) Ontario data. External parties may submit requests for aggregate or record-level data. Requests can be initiated through submission of an online form. Turnaround times and data access fees may vary, depending on the nature and complexity of the request. Requests to access record-level data from BORN Ontario data holdings may be subject to additional approvals.
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References

    1. Dunn S, Bottomley J, Ali A, Walker M. 2008 Niday perinatal database quality audit: report of a quality assurance project. Chronic Dis Inj Can 2011;32:21–32. - PubMed
    1. Public Health Agency of Canada. The Ontario Perinatal Surveillance System Report. Ottawa; 2008. https://www.canada.ca/en/public-health/services/reports-publications/can... (23 March 2020, date last accessed).
    1. Bacal V, Fell DB, Shapiro H et al. The Canadian Assisted Reproductive Technologies Register (CARTR) Plus database: a validation study. Hum Reprod Open 2020;2020:hoaa005. - PMC - PubMed
    1. Lanes A, Fell DB, Teitelbaum M et al. CARTR Plus: the creation of an assisted reproductive technologies registry in Canada. Hum Reprod Open 2020;2020:hoaa22. - PMC - PubMed
    1. Huang T, Dougan S, Walker M, Armour CM, Okun N. Trends in the use of prenatal testing services for fetal aneuploidy in Ontario: a descriptive study. Cmajo 2018;6:E436–44. - PMC - PubMed

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