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. 2021 Jul;10(13):4564-4574.
doi: 10.1002/cam4.3974. Epub 2021 Jun 8.

Characterizing online crowdfunding campaigns for patients with kidney cancer

Hannah S Thomas  1   2 , Austin W Lee  2 , Behnam Nabavizadeh  2 , Nikan K Namiri  2 , Nizar Hakam  2 , Patrick Martin-Tuite  2 , Natalie Rios  2 , Anthony Enriquez  2 , Nnenaya A Mmonu  2 , Andrew J Cohen  3 , Benjamin N Breyer  2   4
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Characterizing online crowdfunding campaigns for patients with kidney cancer

Hannah S Thomas et al. Cancer Med. 2021 Jul.

Abstract

Background: Cancer patients incur high care costs; however, there is a paucity of literature characterizing unmet financial obligations for patients with urologic cancers. Kidney cancer patients are particularly burdened by costs associated with novel systemic treatments. This study aimed to ascertain the characteristics of GoFundMe® crowdfunding campaigns for patients with kidney cancer, in order to better understand the financial needs of this population.

Methods: We performed a cross-sectional, quantitative, and qualitative analysis of all kidney cancer GoFundMe® campaigns since 2010. Fundraising metrics such as goal funds and amount raised, were extracted. Eight independent investigators collected patient, disease and campaign-level variables from campaign stories (κ = 0.72). In addition, we performed a content analysis of campaign narratives spotlighting the primary appeal of the patient's life story.

Results: A total of 486 GoFundMe® kidney cancer campaigns were reviewed. The median goal funds were 10,000USD [IQR = 5000, 20,000] and the median amount raised was 1450USD [IQR = 578, 4050]. Most campaigns were for adult males (53%) and 62% of adults had children. A minority were for pediatric patients (17%). Thirty-seven percent of adult patients were primary wage earners and 43% reported losing their job or substantially reducing hours due to illness. Twenty-nine percent reported no insurance or insufficient coverage. Campaigns most frequently sought funds for medical bills (60%), nonmedical bills (27%), and medical travel (23%). Qualitative campaign narratives mostly emphasized patients' hardship (46.3%) or high moral character (35.2%). Only 8% of campaigns achieved their target funds.

Conclusions: Despite fundraising efforts, patients with kidney cancer face persistent financial barriers, incurring both medical and nonmedical cost burdens. This may be compounded by limited or no insurance. Cancer care providers should be aware of financial constraints placed on kidney cancer patients, and consider how these may impact treatment regimens.

Keywords: GoFundMe; crowdfunding; fundraising; insurance; kidney neoplasm.

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Conflict of interest statement

The authors declares no conflict of interest.

Figures

FIGURE 1
FIGURE 1
Flowchart of data collection, inclusion and exclusion criteria. *Source: National Cancer Institute
FIGURE 2
FIGURE 2
Stated purpose for requested funds among GoFundMe® campaigns for patients with kidney cancer
See this image and copyright information in PMC

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