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. 2021 Jun 16;7(1):127.
doi: 10.1186/s40814-021-00868-2.

Development of a complex arts-based intervention for patients with end-stage kidney disease whilst receiving haemodialysis

Claire Elizabeth Carswell  1 , Joanne Reid  2 , Ian Walsh  3 , William Johnston  4 , Jenny B Lee  5 , Helen McAneney  6 , Robert Mullan  7 , Hugh Nelson  8 , Michael Matthews  2 , Elizabeth Weatherup  8 , Andrea Spencer  9 , Jean Michelo  10 , Anne Quail  9 , Grainne Kielty  9 , Alistair Mackenzie  11 , Jenny Elliott  9 , Helen Noble  2
Affiliations

Development of a complex arts-based intervention for patients with end-stage kidney disease whilst receiving haemodialysis

Claire Elizabeth Carswell et al. Pilot Feasibility Stud. .

Abstract

Background: Patients with end-stage kidney disease who receive haemodialysis experience a protracted treatment regimen that can result in an increased risk of depression and anxiety. Arts-based interventions could address this unique issue; however, no arts-based interventions have been developed for delivery within a haemodialysis unit and evaluation within a randomised controlled trials (RCTs).

Aim: To develop a complex arts-based intervention for patients with end-stage kidney disease whilst receiving haemodialysis.

Methods: The development process utilised the Arts in Health framework (Fancourt, 2017). The framework was addressed through the establishment of an interdisciplinary advisory group, collaboration and consultation with stakeholders, a scoping and realist review, shadowing of artists-in-residence, personal arts practice and logic modelling.

Results: The intervention involved six 1-h long, one-to-one facilitated sessions focused on creative writing and visual art. Patients could choose between art form and self-select a subject matter. The sessions had a primary focus on skill development and were delivered using principles derived from the psychological theory of flow.

Conclusion: The Arts in Health framework provided an appropriate and pragmatic approach to intervention development. Complex arts-based interventions can be developed for the purpose of evaluation within a trial framework. This intervention was designed to strike a balance between standardised components, and a person-centred approach necessary to address existential boredom.

Keywords: Arts in health; Arts-based intervention; Chronic disease; End-stage kidney disease; Haemodialysis; Intervention development.

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Conflict of interest statement

The authors declare that they have no competing interests.

Figures

Fig. 1
Fig. 1
First four steps of the Arts in Health framework for intervention development
Fig. 2
Fig. 2
Haemodialysis treatment process
Fig. 3
Fig. 3
Overview of choices included in each facilitated art session
Fig. 4
Fig. 4
Logic model of the arts-based intervention developed prior to the feasibility study
See this image and copyright information in PMC

References

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