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. 2021 Aug;6(4):100174.
doi: 10.1016/j.esmoop.2021.100174. Epub 2021 Jun 15.

European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN

J-Y Blay  1 , P Casali  2 , C Bouvier  3 , C Dehais  4 , I Galloway  5 , J Gietema  6 , J Halámková  7 , N Hindi  8 , A Idbaih  4 , E Kinloch  9 , H-J Klümpen  10 , T Kolarova  11 , K Kopeckova  12 , J Lovey  13 , M Magalhaes  14 , K Oselin  15 , S Piperno-Neumann  16 , A Ravnsbaek  17 , M Rogasik  18 , A Safwat  17 , S Scheipl  19 , M Seckl  20 , J Taylor  21 , M Temnyk  22 , A Trama  2 , M Urbonas  23 , M Wartenberg  24 , A Weinman  25 ; EURACAN Network
Affiliations

European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN

J-Y Blay et al. ESMO Open. 2021 Aug.
No abstract available

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Conflict of interest statement

Disclosure The authors have declared no conflicts of interest. List of associated partners ePAGs: Associazione Italiana Laringectizziati (AILAR), Digestive Cancer Europe (DiCE), European Association of NeuroOncology (EANO), European Cancer Organisation, European Cancer Patient Coalition (ECPC), European Head and Neck Society (EHNS), European Network of Gynaecological Cancer Advocacy Groups (ENGAGe), European Neuroendocrine Tumour Society (ENETS), European Organisation for Research and Treatment of Cancer (EORTC), European Rare Disease Patient Organisation (EURORDIS), European School of Oncology (ESO), European Society of Gynaecological Oncology (ESGO), European Society for Medical Oncology (ESMO), European Society of Surgical Oncology (ESSO), European Society for Radiotherapy and Oncology (ESTRO), Melanoma Patient Network Europe (MPNE); French National Network for the Treatment of Rare Peritoneal Surface Malignancies (RENAPE), Info Sarcomes, International Brain tumour Alliance (IBTA), International Neuroendocrine Cancer Alliance (INCA), Melanoma Info Deutschland (MID), Neuroendocrine Cancer, UK, Salivary Gland Cancer UK (SGC), Sarcoma Patients Euronet (SPAEN), Thyroid Cancer Alliance (TCA), Joint Action on Rare Cancers (JARC), Lyon Ingenierie Projets (LIP), Organisation of European Cancer Institute (OECI), Réseau Tumeurs Thymiques et Cancer (Rythmic), French Sarcoma Group, French Tumour Study Group (GSF-GETO), the NETSARC+ network, LYRICAN, Université Claude Bernard Lyon 1 (UCBL), Universita degli studi di Milano (UNIMI).

Figures

Figure 1
Figure 1
Rare adult cancers. Thematic and sub-thematic area. EURACAN, the European Reference Network for rare adult solid cancers.
Figure 2
Figure 2
Schematic representation of national health care provider (HCP) and EURACAN interactions for optimal patient management through shared expertise regarding diagnosis and treatment. EURACAN, the European Reference Network for rare adult solid cancers.
Figure 3
Figure 3
EURACAN Governance. EU, European Union; EURACAN, the European Reference Network for rare adult solid cancers; GI, gastrointestinal; GU, genitourinary; GYN, gynaecological; H&N, head and neck; HCP, health care provider; NET, neuroendocrine tumour; PAG, patient advocacy group.
See this image and copyright information in PMC

References

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