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. 2022 Jan;21(1):61-76.
doi: 10.1177/14713012211027016. Epub 2021 Jun 24.

Free to be: Experiences of arts-based relational caring in a community living and thriving with dementia

Christine Jonas-Simpson  1 , Gail Mitchell  1 , Sherry Dupuis  2 , Lesley Donovan  3 , Pia Kontos  4
Affiliations

Free to be: Experiences of arts-based relational caring in a community living and thriving with dementia

Christine Jonas-Simpson et al. Dementia (London). 2022 Jan.

Abstract

Aim: To present findings about experiences of relational caring at an arts-based academy for persons living with dementia.

Background: There is a compelling call and need for connection and relationships in communities living with dementia. This study shares what is possible when a creative arts-based academy for persons living with dementia grounded in relational inquiry and caring focuses on relationships through the medium of the arts.

Design: A qualitative phenomenological methodology (informed by van Manen) was used to answer the research question, "What is it like to experience relational caring at an arts-based academy for persons living with dementia?" We address two research objectives: (1) to explore how relationships are experienced when a relational caring philosophy underpins practice, including arts-based engagements; and (2) to understand the meaning of relationships that bring quality to day-to-day living.

Methods: Twenty-five participants were recruited from the Academy and interviewed in one-to-one in-depth interviews or small groups. Participants included five persons living with dementia, eight family members, four staff, five artists, one personal support worker, and two volunteers. Participants were asked to describe their experiences of relational caring or relationships in the Academy space.

Findings: Three thematic patterns emerged, which address the research objectives.Relational caring is experienced when:freedom and fluid engagement inspire a connected spontaneous liveliness;embracing difference invites discovery and generous inclusivity; andmutual affection brings forth trust and genuine expression.

Conclusions: Findings contribute to the growing body of knowledge about both relational caring and arts-based practices that call forth a different ethic of care-one that is relational, inclusive, and intentional. Findings also shed light on what is possible when a relational caring philosophy underpins arts-based practices-everyone thrives.

Keywords: arts-based curriculum; community care; compassionate care; creative expression; dementia care; long-term care; persons living with dementia; relational caring; thriving with dementia.

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Conflict of interest statement

Declaration of conflicting interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

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