Understanding the Journey of Patients With Vernal Keratoconjunctivitis: A Qualitative Study of the Impact on Children and Families

Abstract

Purpose: To understand the impact of vernal keratoconjunctivitis (VKC), a chronic allergic inflammation of the ocular surface that primarily affects children and young adults, on daily life.

Methods: This qualitative study used an interpretative phenomenological analysis approach. Paired interviews with patients and parents were conducted in the participants' homes. Interviews continued until thematic saturation (no new information arising) was obtained. Nine patients and their families were interviewed. The patients were between 5 and 13 years old with disease severity ranging from mild to severe.

Results: Several consistent themes emerged from the study, including the significant impact of VKC on schooling and family life. Families of children with VKC experience delays in receiving an accurate diagnosis and a lack of information and emotional support, which led the parents to report living in a constant state of tension about whether they were doing the right thing for their child. Although many children with VKC also have other atopic conditions, there is no cohesive approach to clinical care.

Conclusions: VKC poses a significant burden on the lives of patients and their families. Greater awareness among clinicians is essential for early diagnosis and treatment and to prevent potential sight-threatening complications. The chronic nature of VKC necessitates a holistic approach to patient care to address the multiple clinical and emotional needs of the children and their families.[J Pediatr Ophthalmol Strabismus. 2021;58(5):298-303.].