Experiences of family caregivers of patients with COVID-19
- PMID: 34187368
- PMCID: PMC8241402
- DOI: 10.1186/s12875-021-01489-7
Experiences of family caregivers of patients with COVID-19
Abstract
Background: Family caregivers of patients with COVID-19 face many challenges that affect their physical and mental health.
Aim: The aim of the present study was to explore experiences of family caregivers of patients with COVID-19.
Methods: This phenomenological study was performed based on 13 family caregivers who had experience in home caring for patients with COVID-19. Data were collected through purposive sampling with in-depth semi-structured interviews. The Colaizzi's 7-step method was used to determine themes. The MAXQDA10 software was used to manage qualitative data analysis.
Results: Thirteen family caregivers participated. Five main themes describe family caregivers' experiences of caring for patients with COVID-19: nature of the disease; unmet needs; unpleasant physical, psychological, and social experiences; care facilitators and positive experiences.
Conclusion: Information and financial support for COVID-19 should be provided to family caregivers. Also, community members should embrace patients and family caregivers and reinforce the positive experiences of caregivers.
Keywords: COVID-19; Experiences; Family caregivers; Phenomenology.
Conflict of interest statement
The authors declare no potential competing interests.
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References
-
- World Health Organization. WHO Coronavirus Disease (COVID-19) Dashboard. Available from: https://covid19.who.int/. Accessed 19 May 2021.
-
- Clark A, Jit M, Warren-Gash C, Guthrie B, Wang HHX, Mercer SW, et al. Global, regional, and national estimates of the population at increased risk of severe COVID-19 due to underlying health conditions in 2020: a modelling study. Lancet Glob Health. 2020;8(8):e1003–e1017. doi: 10.1016/S2214-109X(20)30264-3. - DOI - PMC - PubMed
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