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Review
. 2021 Aug;47(3):351-378.
doi: 10.1016/j.rdc.2021.04.004. Epub 2021 Jun 16.

Patient-Reported Outcomes in Lupus

Narender Annapureddy  1 , Meenakshi Jolly  2
Affiliations
Review

Patient-Reported Outcomes in Lupus

Narender Annapureddy et al. Rheum Dis Clin North Am. 2021 Aug.

Abstract

Patient-reported outcome (PRO) was identified as a core systemic lupus erythematosus (SLE) outcome in 1999. More than 20 years later, however, generic PRO measures evaluating impact in SLE are used mainly for research. Generic and disease-targeted PRO tools have unique advantages. Significant progress in identification of patient disease-relevant PRO concepts and development of new PRO tools for SLE has occurred over the past 20 years. Further research needs to focus on responsiveness and minimally important differences of existing, promising PRO tools to facilitate their use in SLE patient care and research.

Keywords: Patient-reported outcome (PRO); Quality of life (QOL); Systemic lupus erythematosus (SLE).

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Conflict of interest statement

Disclosure M. Jolly receives a portion of proceeds from intellectual property use of LupusPRO LIT per Rush University intellectual property revenue distribution regulations. Rush University and University of Illinois at Chicago hold copyrights to the following intellectual property: LupusPRO, LIT, SIMPLE, and BILS.

MeSH terms