Research Cooperative Groups in Pediatric Palliative Care Research
- PMID: 34223492
- PMCID: PMC8241338
- DOI: 10.1089/pmr.2020.0043
Research Cooperative Groups in Pediatric Palliative Care Research
Abstract
Research cooperative groups aim to facilitate collaborative and rigorous palliative care research. The purpose of this article is to (1) demonstrate how cooperative groups are taking formal and sustainable steps with commitment to pediatric palliative care research programs and (2) provide an example of how one cooperative group is implementing these innovative efforts to partner with programs to integrate pediatrics on an expanding scale. Details are described for how pediatric studies can benefit from cooperative group infrastructure and expertise. In turn, we describe how cooperative groups can benefit from collaborating on pediatric studies through broadening of data dictionaries, data repositories, and reach in palliative care research communities.
Keywords: hospice and palliative care nursing; interdisciplinary research; palliative care; palliative medicine; research.
© Terrah Foster Akard and Mary Jo Gilmer 2020; Published by Mary Ann Liebert, Inc.
Conflict of interest statement
No competing financial interests exist.
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References
-
- Pediatric Palliative Care Research Network: Dana-Farber Cancer Institute: https://www.dana-farber.org/research/departments-centers-and-labs/depart... site (Last accessed September18, 2020)
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- About Us: Palliative Care Research Cooperative Group: https://palliativecareresearch.org/about-us (Last accessed September18, 2020)
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