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Review
. 2021 Sep;30(10):1684-1695.
doi: 10.1177/09612033211030008. Epub 2021 Jul 13.

The landscape of systemic lupus erythematosus in Brazil: An expert panel review and recommendations

Evandro Mendes Klumb  1 , Morton Scheinberg  2 , Viviane Angelina de Souza  3 , Ricardo Machado Xavier  4 , Valderilio Feijo Azevedo  5 , Elizabeth McElwee  6 , Mariana Rico Restrepo  7 , Odirlei André Monticielo  4
Affiliations
Review

The landscape of systemic lupus erythematosus in Brazil: An expert panel review and recommendations

Evandro Mendes Klumb et al. Lupus. 2021 Sep.

Erratum in

Abstract

Purpose: The objective of this review is to address the barriers limiting access to diagnosis and treatment of systemic lupus erythematosus (SLE) and lupus nephritis (LN) in Brazil, specifically for patients in the public healthcare system, arguably those with the least access to innovation.

Design: A selected panel of Brazilian experts in SLE/LN were provided with a series of relevant questions to address in a multi-day conference. During the conference, responses were discussed and edited by the entire group through numerous drafts and rounds of discussion until a consensus was achieved.

Results: The authors propose specific and realistic recommendations for implementing access to innovative diagnostic tools and treatment alternatives for SLE/LN in Brazil. Moreover, in creating these recommendations, the authors strived to address barriers and impediments for technology adoption. The multidisciplinary care required for SLE/LN necessitates the collective participation of all involved stakeholders.

Conclusion: A great need exists to expand the adoption of innovative diagnostic tools and treatments for SLE/LN not only in Brazil but also in most countries, as access issues remain an urgent demand. The recommendations presented in this article can serve as a strategy for new technology adoption in other countries in a similar situation.

Keywords: Brazil; LN; SLE; Systemic lupus erythematosus; innovative treatments; lupus nephritis.

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Figures

Figure 1.
Figure 1.
Geographic distribution of Brazilian rheumatologists, nephrologists, and pathologists.
Figure 2.
Figure 2.
Recommendations for SLE/LN education programs in Brazil.
See this image and copyright information in PMC

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