Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2021 Sep 28;101(9):adv00559.
doi: 10.2340/00015555-3884.

Patient-Reported Outcome Measures in Dermatology: A Systematic Review

Rachael L Pattinson  1 , Nirohshah Trialonis-Suthakharan, Sunnia Gupta, Alasdair L Henry, Jacqueline F Lavallée, Marina Otten, Timothy Pickles, Nick Courtier, Jennifer Austin, Christine Janus, Matthias Augustin, Chris Bundy
Affiliations

Patient-Reported Outcome Measures in Dermatology: A Systematic Review

Rachael L Pattinson et al. Acta Derm Venereol. .

Abstract

By relying on data from existing patient-reported outcome measures of quality of life, the true impact of skin conditions on patients' lives may be underestimated. This study systematically reviewed all dermatology-specific (used across skin conditions) patient-reported outcome measures and makes evidence-based recommendations for their use. The study protocol is registered on PROSPERO (CRD42018108829). PubMed, PsycInfo and CINAHL were searched from inception to 25 June 2018. The Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria were used to assess the measurement properties and methodological quality of studies. A total of 12,925 abstracts were identified. Zero patient-reported outcome measures were assigned to category A (ready for use without further validation), 31 to category B (recommended for use, but only with further validation) and 5 to category C (not recommended for use). There is no gold-standard dermatology-specific patient-reported outcome measure that can be recommended or used without caution. A new measure that can comprehensively capture the impact of dermatological conditions on the patient's life is needed.

Keywords: burden; dermatology-specific; measurement properties; quality of life; patient-reported outcome measures.

PubMed Disclaimer

Conflict of interest statement

Conflicts of interest. CB, MA, RP and NTS received grants from IADPO during the conduct of this study. MA created 2 measures (Patient Benefit Index and Freiburg Life Quality Assessment) that are included in this review but was not involved in the COSMIN analysis of any measure. The remaining authors have no conflicts of interest to declare.

Figures

Fig. 1
Fig. 1
Flow diagram of the screening and selection process.
See this image and copyright information in PMC

References

    1. Koo J, Lebwohl A. Psycho dermatology: the mind and skin connection. Am Fam Physician 2001; 64: 1873–1878. - PubMed
    1. Ahmed A, Leon A, Butler DC, Reichenberg J. Quality-of-life effects of common dermatological diseases. Semin Cutan Med Surg 2013; 32: 101–109. - PubMed
    1. World Health Organization . Constitution of the World Health Organization. Geneva: World Health Organization; 1948.
    1. Kimball AB, Gieler U, Linder D, Sampogna F, Warren RB, Augustin M. Psoriasis: is the impairment to a patient’s life cumulative? J Eur Acad Dermatol Venereol 2010; 24: 989–1004. - PubMed
    1. Bhatti ZU, Salek MS, Finlay AY. Major life changing decisions and cumulative life course impairment. J Eur Acad Dermatol Venereol 2011; 25: 245–246; author reply 246. - PubMed

Publication types

LinkOut - more resources