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Review
. 2022 Jan;78(1):26-47.
doi: 10.1111/jan.14955. Epub 2021 Jul 20.

Primary healthcare nurses' involvement in patient and community participation in the context of chronic diseases: An integrative review

Marcus Heumann  1 , Gundula Röhnsch  1 , Kerstin Hämel  1
Affiliations
Review

Primary healthcare nurses' involvement in patient and community participation in the context of chronic diseases: An integrative review

Marcus Heumann et al. J Adv Nurs. 2022 Jan.

Abstract

Background: Primary healthcare nurses' potential to enable patient and community participation has been increasingly acknowledged. A conceptual understanding of their contributions within a broad range of participation processes is still lacking.

Aims: The aims of this study were to develop a conceptual framework that provides information on the role of primary healthcare nurses in shaping participation processes with patients and communities in the context of chronic diseases and to identify conditions that enable or hinder the promotion of patient and community participation by nurses.

Design: An integrative review was conducted.

Data sources: Twenty-three articles published from 2000 to 2019 were included in the analysis: 19 retrieved from PubMed and CHINAL and 4 added through other sources.

Review methods: An inductive data analysis and quality appraisal of studies were conducted.

Results: The analysis reveals four areas where nurses are involved in facilitating patient and community participation: (1) sharing understanding of health problems and needs, (2) developing resources and facilitating patient education for self-management, (3) raising patients' voices as an advocate in service development and (4) supporting individual and community networks. The conditions affecting nurses' engagement in fostering participation processes are as follows: (1) care priorities and overall workload, (2) nurses' attitudes towards participation and (3) users' acceptance of nurses as partners.

Conclusions: Future research can use the framework as a basis for empirical studies investigating nurses' involvement in pursuing patient and community participation. Interventions should focus less on indirect forms of participation, like patient education or advocacy, but should also focus on active forms of participation. Research is needed on nurses' involvement in community participation processes.

Impact: This framework can be used and adapted in future research on patient and community participation in primary healthcare. It describes areas of participation and the facilitators and barriers within the broad range of activities of primary healthcare nurses.

Keywords: chronic diseases; community health nurses; community health services; empowerment; long-term care; outpatients; patient-centred care.

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References

REFERENCES

    1. Alvsvåg, H. (2014). Kari Martinsen: Philosophy of caring. In M. R. Aligood (Ed.), Nursing theorists and their work (pp. 167-190). Elsevier.
    1. Angel, S., & Frederiksen, K. N. (2015). Challenges in achieving patient participation: A review of how patient participation is addressed in empirical studies. International Journal of Nursing Studies, 52(9), 1525-1538. https://doi.org/10.1016/j.ijnurstu.2015.04.008
    1. Arman, M., Ranheim, A., Rydenlund, K., Rytterström, P., & Rehnsfeldt, A. (2015). The Nordic tradition of caring science: The works of three theorists. Nursing Science Quarterly, 28(4), 288-296. https://doi.org/10.1177/0894318415599220
    1. Arnstein, S. (1969). A ladder of citizen participation. Journal of the American Institute of Planners, 35(4), 216-224. https://doi.org/10.1080/01944366908977225
    1. Aston, M., Meagher-Stewart, D., Edwards, N., & Young, L. M. (2009). Public health nurses’ primary health care practice: Strategies for fostering citizen participation. Journal of Community Health Nursing, 26(1), 24-34. https://doi.org/10.1080/07370010802605762

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