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. 2021 Jul 19;7(1):e12195.
doi: 10.1002/trc2.12195. eCollection 2021.

Asian Americans and Pacific Islanders' perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research

Van Ta Park  1   2 , Joshua D Grill  3 , Jeanette Zhu  1 , Khue Nguyen  4 , Bora Nam  1 , Janice Tsoh  2   5 , Alka Kanaya  2   6 , Quyen Vuong  4 , Joon Bang  7 , Nhi Cristina Y Nguyen  8 , In Hyang Cho  9 , Dolores Gallagher-Thompson  10 , Ladson Hinton  11 , Oanh L Meyer  12
Affiliations

Asian Americans and Pacific Islanders' perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research

Van Ta Park et al. Alzheimers Dement (N Y). .

Abstract

Introduction: This study elicited Asian Americans and Pacific Islanders' (AAPI) perspectives about recruitment strategies/messaging for participation in an aging, Alzheimer's disease and related dementias (ADRD), and caregiving research recruitment registry.

Methods: Using a mixed methods design, CARE (Collaborative Approach for AAPI Research and Education) conducted 14 focus groups (N = 123) with AAPI cultural groups (Asian Indian, Chinese, Filipino, Japanese, Korean, Samoan, Vietnamese) in different languages. Descriptive statistics and thematic qualitative analyses were conducted.

Results: Mean age of participants was 54 years (median: 61; range 18-80), 66% were female, and 81% were foreign-born. Themes of consideration for recruitment emerged: (1) culturally/linguistically appropriate outreach in culturally specific spaces, (2) motivations for research participation, and (3) approaches to outreach and recruitment methods. Within each of these themes, there were ethnic differences in specific strategies/approaches reflected as subthemes.

Discussion: Recruitment and messaging strategies should be tailored uniquely for each targeted AAPI group, with a thorough understanding of the cultural/linguistic factors that facilitate research participation to increase AAPI participation in ADRD, aging, and caregiver-related research. .

Keywords: Alzheimer's disease and related dementias; Asian Americans and Pacific Islanders; aging; caregiving; research recruitment registry.

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Conflict of interest statement

The authors do not have any conflicts of interest to declare.

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