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. 2021 Jul 8:15:689683.
doi: 10.3389/fnhum.2021.689683. eCollection 2021.

Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments

Trudy Goodenough  1 , Anna Pease  1 , Cathy Williams  1   2
Affiliations

Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments

Trudy Goodenough et al. Front Hum Neurosci. .

Abstract

Cerebral Visual Impairment (CVI) is an umbrella term which includes abnormalities in visual acuity, or contrast sensitivity or colour; ocular motility; visual field and the conscious and unconscious filtering or processing of visual input. Children with CVI have specific needs and problems relating to their development from infancy to adulthood which can impact on their wellbeing. Recent research indicates the complexities of living with CVI but there remains limited information of the full impact of CVI on families' everyday lives. The qualitative interviews reported here explored families' experiences to discover the impact of CVI on all aspects of everyday life. Parents and children (aged 6-18) were invited to participate in semi-structured interviews, either face to face, by phone or video call between January 2018 and February 2019. Topics covered everyday practicalities of living with CVI, focusing on challenges and what worked well at school and home. Interviews were audio-recorded and subject to thematic analysis to look for patterns across the data. Twenty families took part in interviews, with eight children/young people within those families contributing interviews of their own. Four themes were developed from the interviews: (1) Assessment and understanding implications of CVI, (2) Education, (3) Family life, (4) Psychological wellbeing and quality of life. The interviews provide valuable insights into the impact of living with CVI and highlight the need for more awareness of the condition among professionals in both health and education settings.

Keywords: cerebral visual impairment; children; qualitative; vision; visual impairment.

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Conflict of interest statement

The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

References

    1. Anderson R., Warren N., Misajon R. (2019). Exploring wellbeing in youth with vision impairment: insights for vision rehabilitation. Appl. Res. Qual. Life 50 1–20.
    1. Braun V., Clarke V. (2006). Using thematic analysis in psychology. Qual. Res. Psychol. 3 77–101. 10.1191/1478088706qp063oa - DOI - PubMed
    1. Davies S. C., Lemer C., Strelitz J., Weil L. (2013). Our children deserve better: prevention pays. Lancet 382 1383–1384. 10.1016/S0140-6736(13)62004-8 - DOI - PubMed
    1. Dutton G. N. (2003). Cognitive vision, its disorders and differential diagnosis in adults and children: knowing where and what things are. Eye 17 289–304. 10.1038/sj.eye.6700344 - DOI - PubMed
    1. Fazzi E., Signorini S. G., Bova S. M., La Piana R., Ondei P., Bertone C., et al. (2007). Spectrum of visual disorders in children with cerebral visual impairment. J. Child Neurol. 22 294–301. 10.1177/08830738070220030801 - DOI - PubMed