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. 2021 May 1;33(2):159-174.
doi: 10.1177/1525822x20982089. Epub 2020 Dec 30.

Use of a Qualitative Story Deck to Create Scenarios and Uncover Factors Associated with African American Participation in Genomics Research

Susan R Passmore  1 , Amelia M Jamison  2 , Moaz Abdelwadoud  3 , Taylor B Rogers  4 , Morgan Wiggan  2 , Daniel C Mullins  3 , Stephen B Thomas  2
Affiliations

Use of a Qualitative Story Deck to Create Scenarios and Uncover Factors Associated with African American Participation in Genomics Research

Susan R Passmore et al. Field methods. .

Abstract

To gain a complex understanding of willingness to participate in genomics research among African Americans, we developed a technique specifically suited to studying decision making in a relaxed social setting. The "Qualitative Story Deck," (QSD) is a gamified, structured elicitation technique that allows for the spontaneous creation of scenarios with variable attributes. We used the QSD to create research scenarios that varied on four details (race/ethnicity of the researcher; research goal; biospecimen requested; and institutional affiliation). Participants created scenarios by randomly choosing cards from these categories and provided: (1) a judgement about their willingness to participate in the research project represented; and (2) their thought process in reaching a decision. The QSD has applicability to topics involving decision making or in cases where it would be beneficial to provide vignettes with alternate attributes. Additional benefits include: rapid establishment of rapport and engagement and the facilitation of discussion of little known or sensitive topics.

Keywords: African Americans; decision making; methodology; qualitative; research engagement; vignettes.

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Figures

FIGURE 1.
FIGURE 1.
Card Pile Categories and variants.
Figure 2:
Figure 2:
Research Scenario 1
Figure 3:
Figure 3:
“WILD CARD” Research Scenario Example
See this image and copyright information in PMC

References

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