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. 2019 Aug;24(5):344-355.
doi: 10.1177/1744987119845029. Epub 2019 Aug 8.

The psychosocial needs and quality of life of family caregivers of patients with organ transplant

Zahra Divdar  1 , Golnaz Foroughameri  2 , Jamileh Farokhzadian  3
Affiliations

The psychosocial needs and quality of life of family caregivers of patients with organ transplant

Zahra Divdar et al. J Res Nurs. 2019 Aug.

Abstract

Background: Families of patients with organ transplants experience many problems, both with the onset of illness and during the hospitalisation of their relative for an organ transplant. The healthcare providers try their best to give high-quality care to patients. However, they neglect quality of life and psychosocial needs of family caregivers.

Aims: This study aimed to assess the psychosocial needs and quality of life of the family caregivers of post-transplant patients and the relationship between these two variables.

Methods: This descriptive correlational study was conducted on liver, kidney and bone marrow transplant wards in the largest transplant centre affiliated with a university of medical science in south-eastern Iran. The sample included 230 family caregivers of post-transplant patients, who were selected using quota sampling. Data were collected using the 45-item questionnaire of psychosocial needs (the Critical Care Family Needs Inventory) with five dimensions (assurance, comfort, information, proximity and support), and the Short Form-36 Quality of Life questionnaire with eight scales (physical functioning, physical problems, emotional problems, social functioning, pain, vitality, mental health and perception of health). In the Critical Care Family Needs Inventory, 1 indicates not important and 4 very important. In the Short Form-36 Quality of Life questionaire, 0 indicates the worst health and 100 the best health.

Results: The participants rated the mean of their psychosocial needs as important (3.18 ± 0.27). Also, the mean of quality of life of participants was at an undesirable level (45.17 ± 92.66). The psychosocial needs of the caregivers showed a poor, inverse significant relationship with their quality of life (r = -0.16, p = 0.01).

Conclusion: The results showed that with increasing psychosocial needs of family caregivers of post-transplant patients, their quality of life declines. Healthcare providers should implement developed plans and appropriate strategies to fulfil psychosocial needs and improve the quality of life of family caregivers of these patients.

Keywords: bone marrow transplant; family member; kidney transplant; liver transplant; psychosocial needs; quality of life; relatives.

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Conflict of interest statement

The author(s) declared no potential conflicts of interest with respect to the research, authorship and/or publication of this article.

References

    1. Aktug C, Cilingir D, Ergene O, et al. (2014) 167 Quality of life of family members caring for patients treated by chemotherapy. European Journal of Oncology Nursing 18: S52–S53.
    1. Al-Mutair AS, Plummer V, O’Brien A, et al. (2013) Family needs and involvement in the intensive care unit: A literature review. Journal of Clinical Nursing 22(13–14): 1805–1817. - PubMed
    1. Bandari R, Heravi KM, Rejeh N, et al. (2013) Translation and validation of the Critical Care Family Needs Inventory. Journal of Payesh 12(1): 89–97.
    1. Bandari R, Heravi-Karimooi M, Rejeh N, et al. (2015) Information and support needs of adult family members of patients in intensive care units: An Iranian perspective. Journal of Research in Nursing 20(5): 401–422.
    1. Bevans MSE. (2012) Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. JAMA 307(4): 398–403. - PMC - PubMed

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