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. 2023 Jul;13(6):1490-1501.
doi: 10.1177/21925682211037935. Epub 2021 Aug 17.

AO Spine Adult Spinal Deformity Patient Profile: A Paradigm Shift in Comprehensive Patient Evaluation in Order to Optimize Treatment and Improve Patient Care

J Naresh-Babu  1 , Kenny Yat Hong Kwan  2 , Yabin Wu  3 , Caglar Yilgor  4 , Ahmet Alanay  4 , Kenneth M C Cheung  2 , David W Polly Jr  5 , Jong-Beom Park  6 , Manabu Ito  7 , Lawrence G Lenke  8 , Miranda L van Hooff  9   10 , Marinus de Kleuver  9 ; AO Spine Knowledge Forum Deformity
Affiliations

AO Spine Adult Spinal Deformity Patient Profile: A Paradigm Shift in Comprehensive Patient Evaluation in Order to Optimize Treatment and Improve Patient Care

J Naresh-Babu et al. Global Spine J. 2023 Jul.

Abstract

Study design: Modified Delphi study.

Objective: Adult spinal deformity (ASD) is an increasingly recognized condition, comprising a spectrum of pathologies considerably impacting patients' health and functional status. Patients present with a combination of pain, disability, comorbidities and radiological deformity. The study aims to propose a systematic approach of gathering information on the factors that drive decision-making by developing a patient profile.

Methods: The present study comprises of 3 parts. Part 1: Development of prototype of patient profile: The data from the Core Outcome Study on SCOlisis (COSSCO) by Scoliosis Research Society (SRS) was categorized into a conceptual framework. Part 2: Modified Delphi study: Items reaching >70% agreement were included in a 4 round iterative process with 51 panellists across the globe. Part 3: Pilot testing-feasibility: Content validity and usability were evaluated quantitatively.

Results: The profile consisted of 4 domains. 1. General health with demographics and comorbidities, 2.Spine-specific health with spine related health and neurological status, 3. Imaging with radiographic and MRI parameters and 4. Deformity type. Each domain consisted of 1 or 2 components with various factors and their measuring instruments. Profile was found to have an excellent content validity (I-CVIr 0.78-1.00; Ave-CVI 0.92) appropriateness, relevance and usefulness.

Conclusions: The present study, is first to provide a universally applicable multimodal ASD patient profile to methodically describe patients. Physicians are encouraged to assess ASD patients holistically using this profile and not just based on radiographic findings.

Keywords: Delphi process; adult spinal deformity; classification; content validity; patient profile; usability.

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Conflict of interest statement

The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Figures

Figure 1.
Figure 1.
Illustrating the study design consisting of 3 parts.
Figure 2.
Figure 2.
The 4 round modified Delphi process outlining the details of questionnaire and feedback response.
Figure 3.
Figure 3.
The AO Spine adult spine deformity patient profile.
See this image and copyright information in PMC

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