Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2021;9(4):167-170.
doi: 10.1007/s40124-021-00246-9. Epub 2021 Sep 4.

Telehealth for the Care of Complex Chronic Pediatric Patients in Latin America and the Caribbean: Narrative Review

María Celeste Savignano  1 , Graciela Kondratiuk  2 , María de Las Mercedes Martínez  2 , Pablo Lechuga  3 , Florencia Ugo  4 , Mariel Della Corte  2 , Alejandro Mato  5 , Antonio Luna  6
Affiliations
Review

Telehealth for the Care of Complex Chronic Pediatric Patients in Latin America and the Caribbean: Narrative Review

María Celeste Savignano et al. Curr Pediatr Rep. 2021.

Abstract

Purpose of review: This article is a review of the most significant productions on the care of pediatric patients with complex and/or rare chronic diseases in the field of telehealth, produced in Latin America and the Caribbean. It inquires about accessibility to health, its efficiency for the care of chronic and rare diseases, its acceptability/resistance by users (health teams and patients), and the standardization-evaluation of telecare processes.

Recent findings: The formation of reference networks for patients with chronic and rare diseases.

Summary: The incorporation of ICTs in comprehensive patient care is carried out mainly through home telemonitoring and the use of virtual platforms to empower patients and families. This modality allows to improve the attention and to offer assistance of specialties when there are geographic gaps. Telemedicine improves health outcomes, although article samples are mostly limited. It is made visible that the greatest impact in the region will be linked to the development of telehealth protocols and standards and legal and ethical frameworks, in order to guarantee good telehealth practices.

Keywords: Complex chronic pathology; Information and communication technologies (ICT) in health; Pediatrics; Rare diseases; Telehealth; Telemedicine.

PubMed Disclaimer

Conflict of interest statement

Conflict of InterestThe authors declare no competing interests.

References

    1. Chen AY, Newacheck PW. Insurance coverage and financial burden for families of children with special health care needs. Ambulatory Pediatrics. 2006;6:204–209. doi: 10.1016/j.ambp.2006.04.009. - DOI - PMC - PubMed
    1. Kuhlthau K, Hill KS, Yucel R. y col. Carga financiera para familias de niños con necesidades especiales de atención médica. Salud infantil de Matern J. 2005;9:207–218. doi: 10.1007/s10995-005-4870-x. - DOI - PubMed
    1. Kuo DZ, Houtrow AJ, Arango P, Kuhlthau KA, Simmons JM, Neff JM. Atención centrada en la familia: aplicaciones actuales y direcciones futuras en la atención de la salud pediátrica. Revista de salud maternoinfantil. 2012;16:297–305. doi: 10.1007/s10995-011-0751-7. - DOI - PubMed
    1. Bengoa R, Martos F, Nuño R, Kreindler S, Novak T, Pinilla R. Management models. In: Jadad AR, Cabrera A, Martos F, Smith R, Lyons RF, editors. When people live with multiple chronic diseases: a collaborative approach to an emerging global challenge. Escuela Andaluza de Salud Pública: Granada; 2010.
    1. Orruño Aguado E, Lapuente Troncoso JL, Gutiérrez Iglesias A, Asua BJ. Análisis de la introducción de la Telemedicina en la gestión/coordinación de Atención Primaria/especializada. Evaluación de resultados y costes de experiencias preexistentes (teleoftalmología) Madrid: Plan Nacional para el SNS del MSC. Servicio de Evaluación de Tecnologías Sanitarias del País Vasco; 2006.

LinkOut - more resources