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. 2022 Jul;26(5):1153-1164.
doi: 10.1177/13623613211042719. Epub 2021 Sep 11.

Positive and differential diagnosis of autism in verbal women of typical intelligence: A Delphi study

Julie Cumin  1   2 , Sandra Pelaez  1   3 , Laurent Mottron  1   2
Affiliations

Positive and differential diagnosis of autism in verbal women of typical intelligence: A Delphi study

Julie Cumin et al. Autism. 2022 Jul.

Abstract

The diagnostic criteria for autism are relatively vague and can lead to both under- and over-diagnosis if applied as a checklist. The highest level of agreement that a person is autistic occurs when experienced clinicians are able to make use of their clinical judgment. However, it is not always clear what this judgment consists of. Given that particular issues exist when assessing for autism in adult women, we wanted to explore how expert clinicians address difficult diagnostic situations in this population. We interviewed 20 experienced psychologists and psychiatrists from seven countries and discussed how they conducted autism assessments in adult women. We then came up with a list of 35 statements that described participant views. Our participants completed an online survey where they rated their agreement with these statements and provided feedback on how the statements were worded and organized. We obtained a final list of 37 suggested clinical guidelines. Participants agreed that diagnostic tools and questionnaires had to be coupled with judgment and expertise. Participants felt that trauma and Borderline Personality Disorder could be difficult to differentiate from autism, and agreed on some ways to address this issue. Participants agreed that self-identification to the autism spectrum was frequent, and that it was important to provide alternative support when they did not ultimately diagnose autism.

Keywords: adult; autism; camouflaging; differential diagnosis; women.

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Conflict of interest statement

Declaration of conflicting interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

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