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. 2021 Sep 15;9(9):CD013373.
doi: 10.1002/14651858.CD013373.pub2.

Effects of consumers and health providers working in partnership on health services planning, delivery and evaluation

Dianne Lowe  1 , Rebecca Ryan  1 , Lina Schonfeld  1 , Bronwen Merner  1 , Louisa Walsh  1 , Lisa Graham-Wisener  2 , Sophie Hill  1
Affiliations

Effects of consumers and health providers working in partnership on health services planning, delivery and evaluation

Dianne Lowe et al. Cochrane Database Syst Rev. .

Abstract

Background: Health services have traditionally been developed to focus on specific diseases or medical specialties. Involving consumers as partners in planning, delivering and evaluating health services may lead to services that are person-centred and so better able to meet the needs of and provide care for individuals. Globally, governments recommend consumer involvement in healthcare decision-making at the systems level, as a strategy for promoting person-centred health services. However, the effects of this 'working in partnership' approach to healthcare decision-making are unclear. Working in partnership is defined here as collaborative relationships between at least one consumer and health provider, meeting jointly and regularly in formal group formats, to equally contribute to and collaborate on health service-related decision-making in real time. In this review, the terms 'consumer' and 'health provider' refer to partnership participants, and 'health service user' and 'health service provider' refer to trial participants. This review of effects of partnership interventions was undertaken concurrently with a Cochrane Qualitative Evidence Synthesis (QES) entitled Consumers and health providers working in partnership for the promotion of person-centred health services: a co-produced qualitative evidence synthesis.

Objectives: To assess the effects of consumers and health providers working in partnership, as an intervention to promote person-centred health services.

Search methods: We searched the CENTRAL, MEDLINE, Embase, PsycINFO and CINAHL databases from 2000 to April 2019; PROQUEST Dissertations and Theses Global from 2016 to April 2019; and grey literature and online trial registries from 2000 until September 2019.

Selection criteria: We included randomised controlled trials (RCTs), quasi-RCTs, and cluster-RCTs of 'working in partnership' interventions meeting these three criteria: both consumer and provider participants meet; they meet jointly and regularly in formal group formats; and they make actual decisions that relate to the person-centredness of health service(s).

Data collection and analysis: Two review authors independently screened most titles and abstracts. One review author screened a subset of titles and abstracts (i.e. those identified through clinical trials registries searches, those classified by the Cochrane RCT Classifier as unlikely to be an RCT, and those identified through other sources). Two review authors independently screened all full texts of potentially eligible articles for inclusion. In case of disagreement, they consulted a third review author to reach consensus. One review author extracted data and assessed risk of bias for all included studies and a second review author independently cross-checked all data and assessments. Any discrepancies were resolved by discussion, or by consulting a third review author to reach consensus. Meta-analysis was not possible due to the small number of included trials and their heterogeneity; we synthesised results descriptively by comparison and outcome. We reported the following outcomes in GRADE 'Summary of findings' tables: health service alterations; the degree to which changed service reflects health service user priorities; health service users' ratings of health service performance; health service users' health service utilisation patterns; resources associated with the decision-making process; resources associated with implementing decisions; and adverse events.

Main results: We included five trials (one RCT and four cluster-RCTs), with 16,257 health service users and more than 469 health service providers as trial participants. For two trials, the aims of the partnerships were to directly improve the person-centredness of health services (via health service planning, and discharge co-ordination). In the remaining trials, the aims were indirect (training first-year medical doctors on patient safety) or broader in focus (which could include person-centredness of health services that targeted the public/community, households or health service delivery to improve maternal and neonatal mortality). Three trials were conducted in high income-countries, one was in a middle-income country and one was in a low-income country. Two studies evaluated working in partnership interventions, compared to usual practice without partnership (Comparison 1); and three studies evaluated working in partnership as part of a multi-component intervention, compared to the same intervention without partnership (Comparison 2). No studies evaluated one form of working in partnership compared to another (Comparison 3). The effects of consumers and health providers working in partnership compared to usual practice without partnership are uncertain: only one of the two studies that assessed this comparison measured health service alteration outcomes, and data were not usable, as only intervention group data were reported. Additionally, none of the included studies evaluating this comparison measured the other primary or secondary outcomes we sought for the 'Summary of findings' table. We are also unsure about the effects of consumers and health providers working in partnership as part of a multi-component intervention compared to the same intervention without partnership. Very low-certainty evidence indicated there may be little or no difference on health service alterations or health service user health service performance ratings (two studies); or on health service user health service utilisation patterns and adverse events (one study each). No studies evaluating this comparison reported the degree to which health service alterations reflect health service user priorities, or resource use. Overall, our confidence in the findings about the effects of working in partnership interventions was very low due to indirectness, imprecision and publication bias, and serious concerns about risk of selection bias; performance bias, detection bias and reporting bias in most studies.

Authors' conclusions: The effects of consumers and providers working in partnership as an intervention, or as part of a multi-component intervention, are uncertain, due to a lack of high-quality evidence and/or due to a lack of studies. Further well-designed RCTs with a clear focus on assessing outcomes directly related to partnerships for patient-centred health services are needed in this area, which may also benefit from mixed-methods and qualitative research to build the evidence base.

Trial registration: ClinicalTrials.gov NCT02222909.

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Conflict of interest statement

DL is the Technical Editor for the Cochrane Consumers and Communication Group. RR is the Joint Co‐ordinating Editor of the Cochrane Consumers and Communication Group. LS: none known. BM is the Joint Managing Editor of the Cochrane Consumers and Communication Group. LW is the Joint Managing Editor of the Cochrane Consumers and Communication Group, and is a facilitator for the Australian Collaborative Pairs program, funded by the Consumers Health Forum of Australia. The Collaborative Pairs program aims to bring health service providers together with consumers to develop and strengthen their capacity to work together to transform the health system; participated in a podcast interview about the importance of consumer advocacy and involving consumers in the planning of health services; worked as a physiotherapist at Monash University. LGW: none known. SH is the Joint Co‐ordinating Editor of the Cochrane Consumers and Communication Group.

The work of the Cochrane Group is situated within the Centre for Health Communication and Participation, La Trobe University, and is supported, in part, by grants from Safer Care Victoria and the National Health and Medical Research Council Australia. SH, BM, DL, and LW were not involved in the editorial processes for this review. RR was the contact editor for the protocol but was not involved in editorial processes after protocol publication.

Figures

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1
Modified infographic comparing the Intervention effects review process (on the left) and the Qualitative evidence synthesis review process (on the right (Kaufman 2011))
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Decision‐making at different levels of the health system influences the person‐centeredness of health services
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How working in partnership may influence person‐centred care outcomes at the health service level
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‘Working in partnership' interventions alone and as a component of multi‐component interventions
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PRISMA diagram
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Risk of bias summary: review authors' judgements about each risk of bias item for each included study
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Risk of bias graph: review authors' judgements about each risk of bias item presented as percentages across all included studies
See this image and copyright information in PMC

Update of

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    1. Bos AP, Zwieten MCB. Randomized, controlled trials in the emergency setting: a matter of physician-patient relationships, responsibility, and trust. Critical Care Medicine 2007;35(3):979-80. [DOI: 10.1097/01.CCM.0000257366.71279.E8] - DOI - PubMed
Bower 2015 {published data only}
    1. Bower P, Roberts C, O'Leary N, Callaghan P, Bee P, Fraser C, et al. A cluster randomised controlled trial and process evaluation of a training programme for mental health professionals to enhance user involvement in care planning in service users with severe mental health issues (EQUIP): study protocol for a randomised controlled trial. Trials 2015;16:348. [DOI: 10.1186/s13063-015-0896-6] - DOI - PMC - PubMed
Bramble 2011 {published data only}
    1. Bramble M, Moyle W, Shum D. A quasi-experimental design trial exploring the effect of a partnership intervention on family and staff well-being in long-term dementia care. Aging & Mental Health 2011;15(8):995-1007. [DOI: 10.1080/13607863.2011.583625] - DOI - PubMed
Brooker 2005 {published data only}
    1. Brooker CG, Curran JM, James A, Readhead E. Developing and piloting an audit tool for mental health education and training: the National Mental Health Education Continuous Quality Improvement Tool. Journal of Interprofessional Care 2005;19(3):280-93. [DOI: 10.1080/13561820500053439] - DOI - PubMed
Brundage 2010 {published data only}
    1. Brundage MD. Is seeing believing? Journal of Clinical Oncology 2010;28(5):711-3. [DOI: 10.1200/JCO.2009.25.0720] - DOI - PubMed
Burnell 2015 {published data only}
    1. Burnell KJ, Selwood A, Sullivan T, Charlesworth GM, Poland F, Orrell M. Involving service users in the development of the Support at Home: interventions to Enhance Life in Dementia Carer Supporter Programme for family carers of people with dementia. Health Expectations 2018;18(1):95-110. [DOI: 10.1111/hex.12012] - DOI - PMC - PubMed
Cabassa 2014 {published data only}
    1. Cabassa LJ, Gomes AP, Meyreles Q, Capitelli L, Younge R, Dragatsi D, et al. Using the collaborative intervention planning framework to adapt a health-care manager intervention to a new population and provider group to improve the health of people with serious mental illness. Implementation Science 2014;9:178. [DOI: 10.1186/s13012-014-0178-9] - DOI - PMC - PubMed
Campbell‐Scherer 2014 {published data only}
    1. Campbell-Scherer DL, Asselin J, Osunlana AM, Fielding S, Anderson R, Rueda-Clausen CF, et al. Implementation and evaluation of the 5As framework of obesity management in primary care: design of the 5As Team (5AsT) randomized control trial. Implementation Science 2014;9:78. [DOI: 10.1186/1748-5908-9-78] - DOI - PMC - PubMed
Capara 2015 {published data only}
    1. Caprara A, Lima JW, Peixoto AC, Motta CM, Nobre JM, Sommerfeld J, et al. Entomological impact and social participation in dengue control: a cluster randomized trial in Fortaleza, Brazil. Transactions of the Royal Society of Tropical Medicine and Hygiene 2015;109(2):99-105. [DOI: 10.1093/trstmh/tru187] - DOI - PMC - PubMed
Cardoso 2017 {published data only}
    1. Cardoso G, Papoila A, Tomé G, Killaspy H, King M, Caldas-de-Almeida JM. A cluster randomised controlled trial of a staff-training intervention in residential units for people with long-term mental illness in Portugal: the PromQual trial. Social Psychiatry and Psychiatric Epidemiology 2017;52(11):1435-45. [DOI: 10.1007/s00127-017-1416-7] - DOI - PubMed
Carmen 2015 {published data only}
    1. Carman KL, Mallery C, Maurer M, Wang G, Garfinkel S, Yang M, et al. Effectiveness of public deliberation methods for gathering input on issues in healthcare: results from a randomized trial. Social Science & Medicine 2015;133:11-20. [DOI: 10.1016/j.socscimed.2015.03.024] - DOI - PubMed
Castillo 2018 {published data only}
    1. Castillo EG, Shaner R, Tang L, Chung B, Jones F, Whittington Y, et al. Improving depression care for adults with serious mental illness in underresourced areas: Community Coalitions versus Technical Support. Psychiatric Services 2018;69(2):195-203. [DOI: 10.1176/appi.ps.201600514] - DOI - PMC - PubMed
Castro 2012 {published data only}
    1. Castro M, Sánchez L, Pérez D, Carbonell N, Lefèvre P, Vanlerberghe V, et al. A community empowerment strategy embedded in a routine dengue vector control programme: a cluster randomised controlled trial. Transactions of the Royal Society of Tropical Medicine and Hygiene. 2012;106(5):315-21. [DOI: 10.1016/j.trstmh.2012.01.013] - DOI - PubMed
Chaney 2011 {published data only}
    1. Chaney EF, Rubenstein LV, Liu CF, Yano EM, Bolkan C, Lee M, et al. Implementing collaborative care for depression treatment in primary care: a cluster randomized evaluation of a quality improvement practice redesign. Implementation Science 2011;6:121. [DOI: 10.1186/1748-5908-6-121] - DOI - PMC - PubMed
Chang 2015 {published data only}
    1. Chang ET, Wells KB, Gilmore J, Tang L, Morgan AU, Sanders S, et al. Comorbid depression and substance abuse among safety-net clients in Los Angeles: a community participatory study. Psychiatric Services 2015;66(3):285-94. [DOI: 10.1176/appi.ps.201300318] - DOI - PMC - PubMed
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Chiew 2008 {published data only}
    1. Chiew KS, Shepherd H, Vardy J, Tattersall MHN, Butow PN, Leighl NB. Development and evaluation of a decision aid for patients considering first-line chemotherapy for metastatic breast cancer. Health Expectations 2008;11(111):35-45. [DOI: 10.1111/j.1369-7625.2007.00470.x] - DOI - PMC - PubMed
Chin 2007 {published data only}
    1. Chin MH, Drum ML, Guillen M, Rimington A, Levie JR, Kirchhoff AC, et al. Improving and sustaining diabetes care in community health centers with the health disparities collaboratives. Medical Care 2007;45(12):1135-43. [DOI: 10.1097/MLR.0b013e31812da80e] - DOI - PubMed
Choi 2011 {published data only}
    1. Choi WS, Faseru B, Beebe LA, Greiner A, Yeh HW, Shireman T, et al. Culturally-tailored smoking cessation for American Indians: study protocol for a randomized controlled trial. Trials 2011;12:126. [DOI: 10.1186/1745-6215-12-126] - DOI - PMC - PubMed
Choi 2016 {published data only}
    1. Choi WS, Beebe LA, Nazir N, Kaur B, Hopkins M, Talawyma M, et al. All Nations Breath of Life: a randomized trial of smoking cessation for American Indians. American Journal of Preventive Medicine 2016;51(5):743-51. [DOI: 10.1016/j.amepre.2016.05.021] - DOI - PMC - PubMed
Choi 2019 {published data only}
    1. Choi KR, Sherbourne C, Tang L, Castillo E, Dixon E, Jones A, et al. A comparative effectiveness trial of depression collaborative care: subanalysis of comorbid anxiety. Western Journal of Nursing Research 2019;14(7):1009-31. [DOI: 10.1177/0193945918800333] - DOI - PMC - PubMed
Chomat 2019 {published data only}
    1. Chomat AM, Menchú AI, Andersson N, Ramirez-Zea M, Pedersen D, Bleile A, et al. Women's circles as a culturally safe psychosocial intervention in Guatemalan indigenous communities: a community-led pilot randomised trial. BMC Womens Health 2019;19(1):53. [DOI: 10.1186/s12905-019-0744-z.] - DOI - PMC - PubMed
Chumbley 2002 {published data only}
    1. Chumbley GM, Hall GM, Salmon P. Patient‐controlled analgesia: what information does the patient want? Issues and Innovations in Nursing Practice 2002;39(5):459-71. [DOI: 10.1046/j.1365-2648.2002.02311.x] - DOI - PubMed
Chung 2010 {published data only}
    1. Chung B, Jones L, Dixon EL, Miranda J, Wells K, Community Partners in Care Steering Council. Using a community partnered participatory research approach to implement a randomized controlled trial: planning community partners in care. Journal of Health Care for the Poor and Underserved 2010;21(3):780-95. [DOI: 10.1353/hpu.0.0345] - DOI - PMC - PubMed
Chung 2014 {published data only}
    1. Chung B, Ong M, Ettner SL, Jones F, Gilmore J, McCreary M. 12-month outcomes of community engagement versus technical assistance to implement depression collaborative care: a partnered, cluster, randomized, comparative effectiveness trial. Annals of Internal Medicine 2014;161(Supplement 10):s23-34. [DOI: 10.3122/jabfm.2016.03.150306] - DOI - PMC - PubMed
Chung 2015 {published data only}
    1. Chung B, Ngo VK, Ong MK, Pulido E, Jones F, Gilmore J, et al. Participation in training for depression care quality improvement: a randomized trial of community engagement or technical support. Psychiatric Services 2015;66(3):285-94. [DOI: 10.1176/appi.ps.201400099] - DOI - PMC - PubMed
Clarke 2014 {published data only}
    1. Clarke K, Azad K, Kuddus A, Shaha S, Nahar T, Aumon BH, et al. Impact of a participatory intervention with women's groups on psychological distress among mothers in rural Bangladesh: secondary analysis of a cluster-randomised controlled trial. PloS One 2014;9(10):e110697. [DOI: 10.1371/journal.pone.0110697] - DOI - PMC - PubMed
Clausen 2018 {published data only}
    1. Clausen J. Involvement of a patient organisation in health technology assessment. Annals of the Rheumatic Diseases; Conference: Annual European Congress of Rheumatology, EULAR 2018 2018;77(Supplement 2):28-9. [DOI: 10.1136/annrheumdis-2018-eular.7623] - DOI
Coker 2016 {published data only}
    1. Coker TR, Chacon S, Elliott MN, Bruno Y, Chavis T, Biely C, et al. A parent coach model for well-child care among low-income children: a randomized controlled trial. Pediatrics 2016;137(3):e20153013. [DOI: 10.1542/peds.2015-3013] - DOI - PMC - PubMed
Coker 2019 {published data only}
    1. Coker T, R, Porras-Javier L, Zhang L, Soares N, Park C, Patel A, et al. A telehealth-enhanced referral process in pediatric primary care: a cluster randomized trial. Pediatrics 2019;143(3):e20182738. [DOI: 10.1542/peds.2018-2738] - DOI - PubMed
Colbourn 2013 {published data only}
    1. Colbourn T, Nambiar B, Bondo A, Makwenda C, Tsetekani E, Makonda-Ridley A, et al. Effects of quality improvement in health facilities and community mobilization through women's groups on maternal, neonatal and perinatal mortality in three districts of Malawi: maiKhanda, a cluster randomized controlled effectiveness trial. International Health 2013;5(3):180-95. [DOI: 10.1093/inthealth/iht011] - DOI - PMC - PubMed
Cooper 2016 {published data only}
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Corrigan 2017 {published data only}
    1. Corrigan PW, Kraus DJ, Pickett SA, Schmidt A, Sellon E, Hantke E, et al. Using peer navigators to address the integrated health care needs of homeless African Americans with serious mental illness. Psychiatric Services 2017;68(3):264-70. [DOI: 10.1176/appi.ps.201600134] - DOI - PMC - PubMed
Decat 2013 {published data only}
    1. Decat P, Nelson E, De Meyer S, Jaruseviciene L, Orozco M, Segura Z, et al. Community embedded reproductive health interventions for adolescents in Latin America: development and evaluation of a complex multi-centre intervention. BMC Public Health 2013;13:31. [DOI: 10.1186/1471-2458-13-31] - PMC - PubMed
de la Torre 2013 {published data only}
    1. la Torre A, Sadeghi B, Green RD, Kaiser LL, Flores YG, Jackson CF, et al. Niños Sanos, Familia Sana: Mexican immigrant study protocol for a multifaceted CBPR intervention to combat childhood obesity in two rural California towns. BMC Public Health 20213;13:1033. [DOI: 10.1186/1471-2458-13-1033] - DOI - PMC - PubMed
Donato 2019 {published data only}
    1. Donato K, Mosqueira A, G. Information improves provider behaviour: A replication study of a community-based monitoring programme in Uganda. The Journal of Development Studies 2019;55(5):967-88. [DOI: 10.1080/00220388.2018.1506577 ]
Dowrick 2016 {published data only}
    1. Dowrick C, Bower P, Chew-Graham C, Lovell K, Edwards S, Lamb J, et al. Evaluating a complex model designed to increase access to high quality primary mental health care for under-served groups: a multi-method study. BMC Health Services Research 2016;16:58. [DOI: 10.1186/s12913-016-1298-5] - DOI - PMC - PubMed
Drummond 2014 {published data only}
    1. Drummond J, Schnirer L, So S, Mayan M, Williamson DL, Bisanz J, et al. The protocol for the Families First Edmonton trial (FFE): a randomized community-based trial to compare four service integration approaches for families with low-income. BMC Health Services Research 2014;14:223. [DOI: 10.1186/1472-6963-14-223] - DOI - PMC - PubMed
El Ansari 2001 {published data only}
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Elstad 2009 {published data only}
    1. Elstad TA, Eide AH. User participation in community mental health services: exploring the experiences of users and professionals. Scandinavian Journal of Caring Sciences 2009;23(4):674-81. [DOI: 10.1111/j.1471-6712.2008.00660.x] - DOI - PubMed
Erwin 2018 {published data only}
    1. Erwin K, Martin MA, Flippin T, Norell S, Shadlyn A, Yang J, et al. Engaging stakeholders to design a comparative effectiveness trial in children with uncontrolled asthma. Journal of Comparative Effectiveness Research 2016;5(1):17-30. [DOI: 10.2217/cer.15.52] - DOI - PMC - PubMed
Esienumoh 2018 {published data only}
    1. Esienumoh EE, Allotey J, Waterman H. Empowering members of a rural southern community in Nigeria to plan to take action to prevent maternal mortality: a participatory action research project. Journal of Clinical Nursing 2018;2(7-8):e1600-e11. [DOI: 10.1111/jocn.14244] - DOI - PubMed
Farmer 2006 {published data only}
    1. Farmer BC, Croteau KA, Richeson NE, Jones DB. Using pedometers as a strategy to increase the daily steps of older adults with chronic illness: from research to practice. Home Healthcare Curse 2006;24(7):449-56. [DOI: 10.1097/00004045-200607000-00009] - DOI - PubMed
Fenenga 2015 {published data only}
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Fottrell 2013 {published data only}
    1. Fottrell E, Azad K, Kuddus A, Younes L, Shaha S, Nahar T, et al. The effect of increased coverage of participatory women’s groups on neonatal mortality in Bangladesh: a cluster randomized trial. JAMA Pediatrics 2013;167(9):816-25. [DOI: 10.1001/jamapedriatrics.2013.2534] - DOI - PMC - PubMed
Fottrell 2016 {published data only}
    1. Fottrell E, Jennings H, Kuddus A, Ahmed N, Morrison J, Akter K, et al. The effect of community groups and mobile phone messages on the prevention and control of diabetes in rural Bangladesh: study protocol for a three-arm cluster randomised controlled trial. Trials 2016;17(1):600. [DOI: 10.1186/s13063-016-1738-x] - DOI - PMC - PubMed
Frank 2018 {published data only}
    1. Frank ES, Basila D, Collyar D, Pinto D, Smith ML, Geirisch J, et al. Abstract P5-17-04: Changing the DCIS conversation: development of an alternative discourse by patient stakeholders in the COMET study. Cancer Research 2018;78(Supplement 4):P5-17-04. [DOI: 10.1158/1538-7445.SABCS17-P5-17-04] - DOI
Fujimori 2014 {published data only}
    1. Fujimori M, Shirai Y, Asai M, Kubota K, Katsumata N, and Uchitomi Y. Effect of communication skills training program for oncologists based on patient preferences for communication when receiving bad news: a randomized controlled trial. Journal of Clinical Oncology 2014;32(20):2166-72. [DOI: 10.1200/JCO.2013.51.2756] - DOI - PubMed
Fulkerson 2021 {published data only}
    1. Fulkerson JA, Horning ML, Barr-Anderson DJ, Linde JA, Sidebottom AC, Lindberg R, et al. Universal childhood obesity prevention in a rural community: Study design, methods and baseline participant characteristics of the NU-HOME randomized controlled trial. Contemporary Clinical Trials 2021;100:106160. [DOI: 10.1016/j.cct.2020.106160] - DOI - PMC - PubMed
Galiatsatos 2017 {published data only}
    1. Galiatsatos P, Gurley A, Daniel Hale W. Policy and advocacy for informal caregivers: how state policy influenced a community initiative. Journal of Public Health Policy 2017;38(4):503-8. [DOI: 10.1057/s41271-017-0084-x] - DOI - PubMed
Gellatly 2018 {published data only}
    1. Gellatly J, Bee P, Gega L, Bower P, Hunter D, Stewart P, et al. A community-based intervention (Young SMILES) to improve the health-related quality of life of children and young people of parents with serious mental illness: randomised feasibility protocol. Trials 2018;19(1):550. [DOI: 10.1186/s13063-018-2935-6] - DOI - PMC - PubMed
Gholipour 2016 {published data only}
    1. Gholipour K, Tabrizi JS, Asghari-Jafarabadi M, Iezadi S, Farshbaf N, Rahbar-Farzam F, et al. Customer's self-audit to improve the technical quality of maternity care in Tabriz: a community trial. Eastern Mediterranean Health Journal 2016;22(5):309-17. [https://apps.who.int/iris/handle/10665/259967] - PubMed
Gitaka 2018 {published data only}
    1. Gitaka J, Natecho A, Mwambeo HM, Gatungu DM, Githanga D, Abuya T. Evaluating quality neonatal care, call centre service, tele-health and community engagement in reducing newborn morbidity and mortality in Bungoma county, Kenya. BMC Health Services Research 2018;18(1):493. [DOI: 10.1186/s12913-018-3293-5] - DOI - PMC - PubMed
Gloppen 2012 {published data only}
    1. Gloppen KM, Arthur MW, Hawkins JD, Shapiro VB. Sustainability of the Communities That Care prevention system by coalitions participating in the Community Youth Development Study. Journal of Adolescent Health 2012;51(3):259-64. [DOI: 10.1016/j.jadohealth.2011.12.018] - DOI - PMC - PubMed
Glynn 2015 {published data only}
    1. Glynn SM, Gingerich S, Mueser KT, Cather C, Penn D. The role of family intervention in coordinated specialty care for first episode psychosis. Schizophrenia Bulletin 2015;41(Suppplement 1):S173. [DOI: 10.1093/schbul/sbv010] - DOI
Goldfinger 2012 {published data only}
    1. Goldfinger JZ, Kronish IM, Fei K, Graciani A, Rosenfeld P, Lorig K, et al. Peer education for secondary stroke prevention in inner-city minorities: design and methods of the prevent recurrence of all inner-city strokes through education randomized controlled trial. Contemporary Clinical Trials 2012;33(5):1065-73. [DOI: 10.1016/j.cct.2012.06.003] - DOI - PMC - PubMed
Goodkind 2017 {published data only}
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Gram 2018 {published data only}
    1. Gram LZ. Women's empowerment in a complex public health intervention in rural Nepal. Doctoral thesis (Ph.D), UCL (University College London).
Greenfield 2012 {published data only}
    1. Greenfield D, Hinchcliff R, Westbrook M, Jones D, Low L, Johnston B, et al. An empirical test of accreditation patient journey surveys: randomized trial. International Journal for Quality in Health Care 2012;24(5):495-500. [DOI: 10.1093/intqhc/mzs035] - DOI - PubMed
Gregory 2011 {published data only}
    1. Gregory J, Robling M, Bennert K, Channon S, Cohen D, Crowne E, et al. Development and evaluation by a cluster randomised trial of a psychosocial intervention in children and teenagers experiencing diabetes: the DEPICTED study. Health Technology Assessment 2011;15(29):1-202. [DOI: 10.3310/hta15290] - DOI - PubMed
Groene 2014 {published data only}
    1. Groene O, Sunol R, Klazinga NS, Wang A, Dersarkissian M, Thompson CA, et al. Involvement of patients or their representatives in quality management functions in EU hospitals: implementation and impact on patient-centred care strategies. International Journal for Quality in Health Care 2014;26(Supplement 1):81-91. [DOI: 10.1093/intqhc/mzu022] - DOI - PMC - PubMed
Grogan 2012 {published data only}
    1. Grogan A, Coughlan M, Mahony BO, McKee G. The development of a patient partnership programme and its impact on quality improvements in a comprehensive haemophilia care service. Haemophilia 2012;18(6):875-80. [DOI: 10.1111/j.1365-2516.2012.02885.x] - DOI - PubMed
Gual 2012 {published data only}
    1. Gual A. C.12.02 Engaging patients in the treatment of alcohol dependence – The role of reduction of alcohol consumption and “as-needed” dosing. European Neuropsychopharmacology 2012;22(Supplement 2):S450.
Gullo 2017 {published data only}
    1. Gullo S, Galavotti C, Kuhlmann AS, Msiska T, Hastings P, Marti CN. Effects of a social accountability approach, CARE's Community Score Card, on reproductive health-related outcomes in Malawi: a cluster-randomized controlled evaluation. PLoS One 2017;12(2):e0171316. [DOI: 10.1371/journal.pone.0171316] - DOI - PMC - PubMed
Gullo 2018 {published data only}
    1. Gullo S, Kuhlmann Anne S, Galavotti C, Msiska T, Nathan Marti C, Hastings P. Creating spaces for dialogue: a cluster-randomized evaluation of CARE's Community Score Card on health governance outcomes. BMC Health Services Research 2018;18(1):858. [DOI: 10.1186/s12913-018-3651-3] - DOI - PMC - PubMed
Gummersbach 2013 {published data only}
    1. Gummersbach E, In der Schmitten J, Abholz H-H, Wegscheider K, Pentzek M. Effects of different information brochures on women's decision-making regarding mammography screening: study protocol for a randomized controlled questionnaire study. Trials 2013;14(1):319. [DOI: 10.1186/1745-6215-14-319] - DOI - PMC - PubMed
Haines 2015 {published data only}
    1. Haines TP, O'Brien L, Mitchell D, Bowles KA, Haas R, Markham D, et al. Study protocol for two randomized controlled trials examining the effectiveness and safety of current weekend allied health services and a new stakeholder-driven model for acute medical/surgical patients versus no weekend allied health services. Trial 2015;16(1):133. [DOI: 10.1186/s13063-015-0619-z] - DOI - PMC - PubMed
Hamilton 2017 {published data only}
    1. Hamilton AB, Brunner J, Cain C, Chuang E, Luger TM, Canelo I, et al. Engaging multilevel stakeholders in an implementation trial of evidence-based quality improvement in VA women's health primary care. Translational Behavioral Medicine 2017;7(36):478-85. [DOI: 10.1007/s13142-017-0501-5] - DOI - PMC - PubMed
Hanson 2014 {published data only}
    1. Hanson C, Waiswa P, Marchant T, Marx M, Manzi F, Mbaruku G, et al. Expanded Quality Management Using Information Power (EQUIP): protocol for a quasi-experimental study to improve maternal and newborn health in Tanzania and Uganda. Implementation Science 2014;9(1):41. [DOI: 10.1186/1748-5908-9-41] - DOI - PMC - PubMed
Harding 2016 {published data only}
    1. Harding KE, Watts JJ, Karimi L, O'Reilly M, Kent B, Kotis M, et al. Improving access for community health and sub-acute outpatient services: protocol for a stepped wedge cluster randomised controlled trial. BMC Health Services Research 2016;16(a):364. [DOI: 10.1186/s12913-016-1611-3] - DOI - PMC - PubMed
Harris 2013 {published data only}
    1. Harris S, Paquette-Warren J, Roberts S, Fournie M, Thind A, Ryan BL, et al. Results of a mixed-methods evaluation of partnerships for health: a quality improvement initiative for diabetes care. American Board of Family Medicine 2013;26(6):711-9. [DOI: 10.3122/jabfm.2013.06.120211] - DOI - PubMed
Henderson 2017 {published data only}
    1. Henderson JL, Cheung A, Cleverley K, Chaim G, Moretti ME, Oliveira C, et al. Integrated collaborative care teams to enhance service delivery to youth with mental health and substance use challenges: protocol for a pragmatic randomised controlled trial. BMJ Open 2017;7(2):e014080. [DOI: 10.1136/bmjopen-2016-014080] - DOI - PMC - PubMed
Hernandez 2013 {published data only}
    1. Hernandez C, Kim H, Mauleon G, Ruiz A, Robinson JK, Mermelstein RJ. A pilot program in collaboration with community centers to increase awareness and participation in skin cancer screening among Latinos in Chicago. Journal of Cancer Education 2013;28(2):342-5. [DOI: 10.1007/s13187-013-0454-4] - DOI - PMC - PubMed
Hobbs 2000 {published data only}
    1. Hobbs SE, Sodomka PF. Developing partnerships among patients, families, and staff at the Medical College of Georgia Hospital and Clinics. Joint Commission Journal on Quality Improvement. 2000;26(5):268-76. [DOI: 10.1016/S1070-3241(00)26021-5] - DOI - PubMed
Hoffman 2018 {published data only}
    1. Hoffman J, Frerichs L, Story M, Jones J, Gaskin K, Apple A, et al. An integrated clinic-community partnership for child obesity treatment: a randomized pilot trial. Pediatrics 2018;141(1):e20171444. [DOI: 10.1542/peds.2017-1444] - DOI - PubMed
Holt 2014 {published data only}
    1. Holt CL, Tagai EK, Scheirer MA, Santos SL, Bowie J, Haider M, et al. Translating evidence-based interventions for implementation: experiences from Project HEAL in African American churches. Implementation Science 2014;9:66. [DOI: 10.1186/1748-5908-9-66] - DOI - PMC - PubMed
Hoos 2015 {published data only}
    1. Hoos A, Anderson J, Boutin M, Dewulf L, Geissler J, Johnston G, et al. Partnering with patients in the development and lifecycle of medicines: a call for action. Therapeutic Innovation and Regulatory Science 2015;49(6):929-39. [DOI: 10.1177/2168479015580384] - DOI - PMC - PubMed
Houweling 2011 {published data only}
    1. Houweling TA, Azad K, Younes L, Kuddus A, Shaha S, Haq B, et al. The effect of participatory women’s group on birth outcomes in Bangladesh: does coverage matter? Study protocol for a randomized controlled trial. Trials 2011;12:208. [DOI: 10.1186/1745-6215-12-208] - DOI - PMC - PubMed
Houweling 2013 {published data only}
    1. Houweling TAJ, Tripathy P, Nair N, Rath S, Rath S, Gope R, et al. The equity impact of participatory women’s groups to reduce neonatal mortality in India: secondary analysis of a cluster-randomised trial. International Journal of Epidemiology 2013;42(2):520-32. [DOI: 10.1093/ije/dyt012] - DOI - PMC - PubMed
Huppelschoten 2015 {published data only}
    1. Huppelschoten AG, Nelen WLDM, Westert GP, Golde RJT, Adang EMM, Kremer JAM. Improving patient-centredness in partnership with female patients: a cluster RCT in fertility care. Human Reproduction 2015;30(5):1137-45. [DOI: 10.1093/humrep/dev041] - DOI - PubMed
Hwang 2012 {published data only}
    1. Hwang SW, Stergiopoulos V, O'Campo P, Gozdzik A. Ending homelessness among people with mental illness: the At Home/Chez Soi randomized trial of a Housing First intervention in Toronto. BMC Public Health 2012;12:787. [DOI: 10.1186/1471-2458-12-787] - DOI - PMC - PubMed
Hynes 2017 {published data only}
    1. Hynes DM, Fischer MJ, Schiffer LA, Gallardo R, Chukwudozie IB, Porter A, et al. Evaluating a novel health system intervention for chronic kidney disease care using the RE-AIM framework: insights after two years. Contemporary Clinical Trials. 2017;52:20-6. [10.1016/j.cct.2016.10.003] - PubMed
Iezzoni 2018 {published data only}
    1. Iezzoni LI, Chang Y, Matulewicz H, Heaphy D, Warsett KS, Donelan K. Health plan enrollees with disability informing primary care practices and providers about their quality of care: a randomized trial. Disability and Health Journal 2018;11(4):537-44. [DOI: 10.1016/j.dhjo.2018.05.006] - DOI - PubMed
Izquierdo 2016 {published data only}
    1. Izquierdo A, Pulido E, Wells KB, Berkman M, Linski B, Sauer V, et al. Six-month outcomes among older adults of community engagement versus technical assistance to implement depression collaborative care. Journal of General Internal Medicine 2016;28(2 Supplement 1):S93-S4. - PMC - PubMed
Izquierdo 2018 {published data only}
    1. Izquierdo A, Ong M, Pulido E, Wells KB, Berkman M, Linski B, et al. Community partners in care: 6- and 12-month outcomes of community engagement versus technical assistance to implement depression collaborative care among depressed older adults. Ethnicity & Disease 2018;28(Supplement 2):339-48. [DOI: 10.18865/ed.28.S2.339] - DOI - PMC - PubMed
Jha 2013 {published data only}
    1. Jha V, Winterbottom A, Symons J, Thompson Z, Quinton N, Corrado OJ, et al. Patient-led training on patient safety: a pilot study to test the feasibility and acceptability of an educational intervention. Medical Teacher 2013;35(9):e1464-71. [DOI: 10.3109/0142159x.2013.77891] - DOI - PubMed
Källander 2015 {published data only}
    1. Källander K, Strachan D, Soremekun S, Hill Z, Lingam R, Tibenderana J, et al. Evaluating the effect of innovative motivation and supervision approaches on community health worker performance and retention in Uganda and Mozambique: study protocol for a randomised controlled trial. Trials 2015;16:157. [DOI: 10.1186/s13063-015-0657-6] - DOI - PMC - PubMed
Kang 2017 {published data only}
    1. Kang Y, Cha S, Yeo S, Christian P. Implementation, utilization and influence of a community-based participatory nutrition promotion programme in rural Ethiopia: programme impact pathway analysis. Public Health Nutrition 2017;20(11):2004-15. [DOI: 10.1017/S1368980017000660] - DOI - PMC - PubMed
Kelly 2010 {published data only}
    1. Kelly PJ, Lesser J, Cheng AL, Oscos-Sanchez M, Martinez E, Pineda D, et al. A prospective randomized controlled trial of an interpersonal violence prevention program with a Mexican American community. Family & Community Health 2010;33(3):207-15. [10.1097/FCH.0b013e3181e4bc34] - PMC - PubMed
Khadyakov 2014 {published data only}
    1. Khodyakov D, Sharif MZ, Dixon EL, Mendel P, Chung B, Linkski B, et al. An implementation evaluation of the Community Engagement and Planning Intervention in the CPIC Depression Care Improvement Trial. Community Mental Health Journal 2014;50:312-24. [DOI: 10.1007/s10597-012-9586-y] - DOI - PMC - PubMed
Khodyakov 2014 {published data only}
    1. Khodyakov D, Pulido E, Ramos A, Dixon E. Community-Partnered Research Conference Model: the Experience of Community Partners in Care study. Progress in Community Health Partnerships: Research, Education, and Action 2014;8(1):83-97. [DOI: 10.1353/cpr.2014.0008] - DOI - PMC - PubMed
Khodyakov 2017 {published data only}
    1. Khodyakov D, Kinnett K, Grant S, Lucas A, Martin A, Denger B, et al. Engaging patients and caregivers managing rare diseases to improve the methods of clinical guideline development: a research protocol. Journal of Medical Internet Research, Research Protocols 2017;6(4):e57. [DOI: 10.2196/resprot.6902] - DOI - PMC - PubMed
Khodyakov 2018 {published data only}
    1. Khodyakov D, Sharif MZ, Jones F, Megan Heller S, Pulido E, Wells KB, et al. Whole person care in under-resourced communities: stakeholder priorities at long-term follow-UP in community partners in care. Ethnicity & Disease 2018;28(Supplement 2):371-80. [DOI: 10.18865/ed.28.S2.371] - DOI - PMC - PubMed
Kim 2014 {published data only}
    1. Kim H, Suh EE, Lee HJ, Yang HK. The effects of patient participation-based dietary intervention on nutritional and functional status for patients with gastrectomy: a randomized controlled trial. Cancer Nursing 2014;37(2):E10-20. [DOI: 10.1097/NCC.0b013e31829193c8] - DOI - PubMed
Kim Yeary 2017 {published data only}
    1. Kim Yeary KH, Long CR, Bursac Z, McElfish PA. Design of a randomized, controlled, comparative-effectiveness trial testing a family model of diabetes self-management education (DSME) vs. standard DSME for Marshallese in the United States. Contemporary Clinical Trials Communications 2017;6:97-104. [DOI: 10.1016/j.conctc.2017.03.007] - DOI - PMC - PubMed
Kneipp 2011 {published data only}
    1. Kneipp SM, Kairalla JA, Lutz BJ, Pereira D, Hall AG, Flocks J, et al. Public health nursing case management for women receiving temporary assistance for needy families: a randomized controlled trial using community-based participatory research. American Journal of Public Health 2011;101(9):1759-68. [DOI: 10.2105/AJPH.2011.300210] - DOI - PMC - PubMed
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Ko 2016 {published data only}
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Koerner 2014 {published data only}
    1. Koerner M, Wirtz M, Michaelis M, Ehrhardt H, Steger AK, Zerpies E, et al. A multicentre cluster-randomized controlled study to evaluate a train-the-trainer programme for implementing internal and external participation in medical rehabilitation. Clinical Rehabilitation 2014;28(1):20-35. [DOI: 10.1177/0269215513494874] - DOI - PubMed
Kogan 2017 {published data only}
    1. Kogan JN, Schuster J, Nikolajski C, Schake P, Carney T, Morton SC, et al. Challenges encountered in the conduct of Optimal Health: a patient-centered comparative effectiveness study of interventions for adults with serious mental illness. Clinical Trials 2017;14(1):5-16. [DOI: 10.1177/1740774516670895] - DOI - PubMed
Koniotou 2015 {published data only}
    1. Koniotou M, Evans BA, Chatters R, Fothergill R, Garnsworthy C, Gaze S, et al. Involving older people in a multi-centre randomised trial of a complex intervention in pre-hospital emergency care: implementation of a collaborative model. Trials 2015;16:298. [DOI: 10.1186/s13063-015-0821-z] - DOI - PMC - PubMed
Krishnan 2017 {published data only}
    1. Krishnan J A, Martin MA, Lohff C, Mosnaim GS, Margellos-Anast H, DeLisa JA, et al. Design of a pragmatic trial in minority children presenting to the emergency department with uncontrolled asthma: the CHICAGO Plan. Contemporary Clinical Trials 2017;57:10-22. [DOI: 10.1016/j.cct.2017.03.015] - DOI - PMC - PubMed
Krist 2013 {published data only}
    1. Krist AH, Glenn BA, Glasgow RE, Balasubramanian BA, Chambers DA, Fernandez ME, et al. Designing a valid randomized pragmatic primary care implementation trial: the My Own Health Report (MOHR) project. Implementation Science 2013;8:73. [DOI: 10.1186/1748-5908-8-73] - DOI - PMC - PubMed
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Lam 2016 {published data only}
    1. Lam CA, Sherbourne C, Tang L, Belin TR, Pluscedia W, Young-Brinn A, et al. The impact of community engagement on health, social, and utilization outcomes in depressed, impoverished populations: secondary findings from a randomized trial. The Journal of the American Board of Family Medicine 2016;29(3):325-38. [DOI: 10.3122/jabfm.2016.03.150306] - DOI - PMC - PubMed
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Lamontagne 2014 {published data only}
    1. Lamontagne M, Perreault K, Gagnon M. Evaluation of the acceptability, feasibility and effectiveness of two methods of involving patients with disability in developing clinical guidelines: study protocol of a randomized pragmatic pilot trial. Trials 2014;15:118. [DOI: 10.1186/1745-6215-15-118] - DOI - PMC - PubMed
Landry 2017 {published data only}
    1. Landry CM, Jackson AP, Tang L, Miranda J, Chung B, Jones F, et al. The Effects of Collaborative Care Training on Case Managers' Perceived Depression-Related Services Delivery. Psychiatric Services 2017;68(2):123-30. [DOI: 10.1176/appi.ps.201500550] - DOI - PMC - PubMed
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Lewycka 2010 {published data only}
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Lewycka 2013 {published data only}
    1. Lewycka S, Mwansambo C, Rosato M, Kazembe P, Phiri T, Mganga A, et al. Effect of women's groups and volunteer peer counselling on rates of mortality, morbidity, and health behaviours in mothers and children in rural Malawi (MaiMwana): a factorial, cluster-randomised controlled trial. Lancet 2013;381(9879):1721-35. [DOI: 10.1016/S0140-6736(12)61959-X] - DOI - PMC - PubMed
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Lodewijckx 2012 {published data only}
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Lovell 2018 {published data only}
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    1. Ma GX, Lee MM, Tan Y, Hanlon AL, Feng Z, Shireman TI, et al. Efficacy of a community-based participatory and multilevel intervention to enhance hepatitis B virus screening and vaccination in underserved Korean Americans. Cancer 2018;124(5):973-82. [DOI: 10.1002/cncr.31134] - DOI - PMC - PubMed
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MacLeod 2012 {published data only}
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Malfait 2018 {published data only}
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Martínez‐Jaikel 2019 {published data only}
    1. Martínez-Jaikel T, Frongillo E, Blake C, Fram M, Murillo-Castro A, Esquivel-Solís V. Intervention for women In Costa Rica who have food insecurity and excess body weight: a cluster randomized trial (p04-017-19). Current Developments in Nutrition 2019;3:Supplement 1. [DOI: 10.1093/cdn/nzz051.P04-017-19] - DOI
McCabe 2018 {published data only}
    1. McCabe MP, Beattie E, Karantzas G, Mellor D, Sanders K, Busija L, et al. A randomized controlled trial to evaluate the effectiveness of a staff training program to implement consumer directed care on resident quality of life in residential aged care. BMC Geriatrics 2018;18(1):187. [DOI: 10.1186/s12877-018-0966-1] - DOI - PMC - PubMed
McElfish 2017 {published data only}
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Mehta 2017 {published data only}
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Mendel 2011 {published data only}
    1. Mendel P, Ngo VK, Dixon E, Stockdale S, Jones F, Chung B, et al. Partnered evaluation of a community engagement intervention: use of a kickoff conference in a randomized trial for depression care improvement in underserved communities. Ethnicity & Disease 2011;21(3 Supplement 1):78. [PMID: ] - PMC - PubMed
Mendel 2021 {published data only}
    1. Mendel P, O'Hora J, Zhang L, Stockdale S, Dixon EL, Gilmore J, et al. Engaging community networks to improve depression services: a cluster-randomized trial of a community engagement and planning intervention. Community Mental Health Journal 2021;57(3):457-69. [DOI: 10.1007/s10597-020-00632-5] - DOI - PMC - PubMed
Mendenhall 2007 {published data only}
    1. Mendenhall TJ, Doherty WJ. The ANGELS (a neighbor giving encouragement, love, and support): a collaborative project for teens with diabetes. In: The therapist's notebook for family health care: homework, handouts, and activities for individuals, couples, and families coping with illness, loss, and disability (Editors: Linville D, Hertlein KM). Routledge, 2007.
Meynard 2011 {published data only}
    1. Meynard A, Pejic D, Sredic A, Weber CC, Narring F, Sanci L, et al. International partnerships in the field of Adolescent Health research and training: development of youth-friendly family medicine practices in Bosnia and Herzegovina. Journal of Adolescent Health 2011;48(2 Supplement 1):S40-1. [DOI: 10.1016/j.jadohealth.2010.11.091] - DOI
Michaels 2017 {published data only}
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    1. Miller MK, Wickliffe J, Humiston SG, Dowd M, Kelly P, DeLurgio S, et al. Adapting an HIV risk reduction curriculum: processes and outcomes.. Health Promotion Practice 2017;18(3):400-9. [DOI: 10.1177/1524839916681990] - DOI - PMC - PubMed
Miller 2020 {published data only}
    1. Miller LC, Neupane S, Joshi N, Lohani M, Rogers BL, Neupane S, et al. Multisectoral community development in Nepal has greater effects on child growth and diet than nutrition education alone. Public Health Nutrition 2020;23(1):146-61. [DOI: 10.1017/S136898001900260X] - DOI - PMC - PubMed
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More 2008 {published data only}
    1. More NS, Bapat U, Das S, Patil S, Porel M, Vaidya L, et al. Cluster-randomised controlled trial of community mobilisation in Mumbai slums to improve care during pregnancy, delivery, postpartum and for the newborn. Trials 2008;9:ISRCTN96256793. [DOI: 10.1186/1745-6215-9-7] - DOI - PMC - PubMed
Morrison 2011 {published data only}
    1. Morrison J, Tumbahangphe KM, Budhathoki B, Neupane R, Sen A, Dahal K, et al. Community mobilisation and health management committee strengthening to increase birth attendance by trained health workers in rural Makwanpur, Nepal: study protocol for a cluster randomised controlled trial. Trials 2011;12:128. [DOI: 10.1186/1745-6215-12-128] - DOI - PMC - PubMed
Mourad 2011 {published data only}
    1. Mourad SM, Hermens RP, Liefers J, Akkermans RP, Zielhuis GA, Adang E, et al. A multi-faceted strategy to improve the use of national fertility guidelines; a cluster-randomized controlled trial. Human Reproduction 2011;26(4):817-26. [DOI: 10.1093/humrep/deq299] - DOI - PubMed
Nahar 2012 {published data only}
    1. Nahar T, Azad K, Aumon BH, Younes L, Shaha S, Kuddus A, et al. Scaling up community mobilisation through women's groups for maternal and neonatal health: experiences from rural Bangladesh. BMC Pregnancy and Childbirth 2012;12:5. [DOI: 10.1186/1471-2393-12-5] - DOI - PMC - PubMed
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    1. Nair N, Tripathy P, Sachdev HS, Bhattacharyya S, Gope R, Gagrai S, et al. Participatory women's groups and counselling through home visits to improve child growth in rural eastern India: protocol for a cluster randomised controlled trial. BMC Public Health 2015;15:384. [DOI: 10.1186/s12889-015-1655-z] - DOI - PMC - PubMed
Namazzi 2015 {published data only}
    1. Namazzi G, Waiswa P, Peterson S, Kerber K. Designing for action: adapting and implementing a community-based newborn care package to affect national change in Uganda. Global Health Action 2015;8:1-11. [DOI: 10.3402/gha.v8.24250] - DOI - PMC - PubMed
NCT02286193 {published data only}
    1. Kaiser Permanente, Patient-Centered Outcomes Research Institute. Creating a clinic-community liaison role in primary care: engaging patients and community in health care innovation (LINCC). ClinicalTrials.gov 2014:NCT02286193.
NCT03035474 {published data only}
    1. NCT03035474. Care optimization through patient and hospital engagement clinical trial for heart failure (CONNECT-HF). ClinicalTrials.gov Identifier: NCT03035474. - PubMed
NCT03044145 {published data only}
    1. NCT03044145. The cultural formulation interview-engagement aid (CFI-EA). ClinicalTrials.gov Identifier: NCT03044145.
NCT03222466 {published data only}
    1. St Michael's Hospital, Toronto. Patient educational materials for prostate cancer screening. ClinicalTrials.gov Identifier: NCT03222466.
NCT04514133 {published data only}
    1. Wake Forest University Health Sciences, and Robert Wood Johnson Foundation. Testing the causal effects of a civic engagement intervention on health and wellbeing among youth (I-ACTED). ClinicalTrials.gov. [NCT04514133]
Newman Owiredu 2017 {published data only}
    1. Newman Owiredu M, Bellare NB, Chakanyuka Musanhu CC, Oyelade TA, Thom EM, Bigirimana F, et al. Building health system capacity through implementation research: experience of INSPIRE-a multi-country PMTCT implementation research project. Journal of Acquired Immune Deficiency Syndromes 2017;75(Supplement 2):S240-7. [DOI: 10.1097/QAI.0000000000001370] - DOI - PMC - PubMed
Ngo 2016 {published data only}
    1. Ngo VK, Sherbourne C, Chung B, Tang L, Wright AL, Whittington Y, et al. Community engagement compared with technical assistance to disseminate depression care among low-income, minority women: a randomized controlled effectiveness study. American Journal of Public Health 2016;106:1833-41. [DOI: 10.2105/AJPH.2016.303304] - DOI - PMC - PubMed
Noel 2014 {published data only}
    1. Noël PH, Romero RL, Robertson M, Parchman ML. Key activities used by community based primary care practices to improve the quality of diabetes care in response to practice facilitation. Quality in Primary Care 2014;22(4):211-9. [PMID: ] - PMC - PubMed
Ogbuoji Osondu 2018 {published data only}
    1. Ogbuoji Osondu RS. Factors Affecting Patient Perceptions of Quality and Health-Seeking Behavior. Doctoral dissertation, Harvard T.H. Chan School of Public Health.
Ojerholm 2016 {published data only}
    1. Ojerholm E, Halpern SD, Bekelman JE. Default options: opportunities to improve quality and value in oncology. Journal of Clinical Oncology 2016;34(16):1844-7. [DOI: 10.1200/JCO.2015.64.8741] - DOI - PubMed
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Ong 2013 {published data only}
    1. Ong M, Wells KB, Jones L, Chung B, Dixon E, Tang L, et al. Community-partnered cluster-randomized comparative effectiveness trial of community engagement and planning or program technical assistance to address depression disparities. Journal of General Internal Medicine 2013;28:S47. - PMC - PubMed
Ong 2017 {published data only}
    1. Ong MK, Jones L, Aoki W, Belin TR, Bromley E, Chung B, et al. A community-partnered, participatory, cluster-randomized study of depression care quality improvement: three-year outcomes. Psychiatric Services 2017;68(12):1262-70. [DOI: 10.1176/appi.ps.201600488] - DOI - PMC - PubMed
Orozco‐Beltran 2013 {published data only}
    1. Orozco-Beltran D, Ruescas-Escolano E, Navarro-Palazon AI, Cordero A, Gaubert-Tortosa M, Navarro-Perez J, et al. Effectiveness of a new health care organization model in primary care for chronic cardiovascular disease patients based on a multifactorial intervention: the PROPRESE randomized controlled trial. BMC Health Services Research 2013;13:293. [DOI: 10.1186/1472-6963-13-293] - DOI - PMC - PubMed
Osrin 2003 {published data only}
    1. Osrin D, Mesko N, Shrestha BP, Shrestha D, Tamang S, Thapa S, et al. Implementing a community-based participatory intervention to improve essential newborn care in rural Nepal. Transactions of the Royal Society of Tropical Medicine and Hygiene 2003;97(1):18-21. [DOI: 10.1016/s0035-9203(03)90008-3] - DOI - PubMed
Parchman 2013 {published data only}
    1. Parchman ML, Noel PH, Culler SD, Lanham HJ, Leykum LK, Romero RL, et al. A randomized trial of practice facilitation to improve the delivery of chronic illness care in primary care: initial and sustained effects. Implementation Science 2013;8:93. [DOI: 10.1186/1748-5908-8-93] - DOI - PMC - PubMed
Patel 2019a {published data only}
    1. Patel M, Navedal A, Bhattacharya J, Coker TR. Approach to improving cancer care delivery for low-Income and minority patients with cancer. Journal of Community Health 2019;44(5):912-20. [DOI: 10.1007/s10900-019-00632-x] - DOI - PMC - PubMed
Patel 2019b {published data only}
    1. Patel MI, Moore D, Coker TR. End-of-life cancer care redesign: patient and caregiver experiences in a lay health worker-led intervention. The American Journal of Hospice & Palliative Care 2019;36(12):1081-8. [DOI: 10.1177/1049909119847967] - DOI - PMC - PubMed
Paton 2013 {published data only}
    1. Paton N, Callander R, Cavill M, Ning L, Weavell W. Collaborative quality improvement: consumers, carers and mental health service providers working together in service co-design. Australasian Psychiatry 2013;21(1):78-9. [DOI: 10.1177/1039856212465347] - DOI - PubMed
Patzer 2014 {published data only}
    1. Patzer RE, Gander J, Sauls L, Amamoo MA, Krisher J, Mulloy LL, et al. The RaDIANT community study protocol: community-based participatory research for reducing disparities in access to kidney transplantation. BMC Nephrology 2014;15:171. [DOI: 10.1186/1471-2369-15-171] - DOI - PMC - PubMed
Peremans 2010 {published data only}
    1. Peremans L, Rethans JJ, Verhoeven V, Coenen S, Debaene L, Meulemans H, et al. Empowering patients or general practitioners? A randomised clinical trial to improve quality in reproductive health care in Belgium. The European Journal of Contraception & Reproductive Health Care 2010;15(4):280-89. [DOI: 10.3109/13625187.2010.492882] - DOI - PubMed
Peter 2015 {published data only}
    1. Peter W, Wees PJ, Verhoef J, Jong Z, Bodegom-Vos L, Hilberdink WK, et al. Effectiveness of an interactive postgraduate educational intervention with patient participation on the adherence to a physiotherapy guideline for hip and knee osteoarthritis: a randomised controlled trial. Disability and Rehabilitation 2015;37(3):274-82. [DOI: 10.3109/09638288.2014.913708] - DOI - PubMed
Peterson 2018 {published data only}
    1. Peterson S, Gleason KT, Berger Z, McClenney A, Newman-Toker DE. Partnered (patients assigned to research teams with nurses and er providers to enhance diagnosis). Diagnosis 2018;5(4):eA125-eA6. [DOI: 10.1515/dx-2018-0095] - DOI
Pramanik 2018 {published data only}
    1. Pramanik S, Ghosh A, Nanda Rituu B, Rouw M, Forth P, Albert S. Impact evaluation of a community engagement intervention in improving childhood immunization coverage: a cluster randomized controlled trial in Assam, India. BMC Public Health 2018;18(1):534. [DOI: 10.1186/s12889-018-5458-x] - DOI - PMC - PubMed
Prost 2018 {published data only}
    1. Prost A, Sanders D, Costello A, Vogel J, Baqui Abdullah H, Nair N, et al. Strengthening the capabilities of families and communities to improve child health in low and middle income countries. BMJ 2018;362:bmj.k2649. [DOI: 10.1136/bmj.k2649] - DOI - PMC - PubMed
Protik Ali 2018 {published data only}
    1. Protik Ali E, Nichols-Barrer I, Berman J, Sloan M. Bridging the information gap between citizens and local governments: evidence from a civic participation strengthening program in Rwanda. World Development 2018;108:145-56. [DOI: 10.1016/j.worlddev.2018.03.016] - DOI
Rai 2018 {published data only}
    1. Rai S, Gurung D, Kaiser BN, Sikkema KJ, Dhakal M, Bhardwaj A, et al. A service user co-facilitated intervention to reduce mental illness stigma among primary healthcare workers: utilizing perspectives of family members and caregivers. Families, Systems, & Health 2018;36(2):198-209. [DOI: 10.1037/fsh0000338] - DOI - PMC - PubMed
Raynes‐Greenow 2010 {published data only}
    1. Raynes-Greenow CH, Nassar N, Torvaldsen S, Trevena L, Roberts CL. Assisting informed decision making for labour analgesia: a randomised controlled trial of a decision aid for labour analgesia versus a pamphlet. BMC Pregnancy and Childbirth 2010;10:15. [DOI: 10.1186/1471-2393-10-15] - DOI - PMC - PubMed
Reeves 2013 {published data only}
    1. Reeves R, West E, Barron D. Facilitated patient experience feedback can improve nursing care: a pilot study for a phase III cluster randomised controlled trial. BMC Health Services Research 2013;13:259. [DOI: 10.1186/1472-6963-13-259] - DOI - PMC - PubMed
Reinhardt 2012 {published data only}
    1. Reinhardt CH, Noack MJ, Wassmer G, Dumit J, Rolfs A, Klein K. Comparison of three forms of teaching - a prospective randomized pilot trial for the enhancement of adherence. International Journal of Dental Hygiene 2012;10(4):277-83. [DOI: 10.1111/j.1601-5037.2011.00543.x] - DOI - PubMed
Rogers 2007 {published data only}
    1. Rogers ES, Teague GB, Lichenstein C, Campbell J, Lyass A, Chen R, et al. Effects of participation in consumer-operated service programs on both personal and organizationally mediated empowerment: results of multisite study. Journal of Rehabilitation Research and Development 2007;44(6):785-99. - PubMed
Sarmiento 2018 {published data only}
    1. Sarmiento I, Paredes-Solis S, Andersson N, Cockcroft A. Safe birth and cultural safety in southern Mexico: study protocol for a randomised controlled trial. Trials 2018;19(1):354. [DOI: 10.1186/s13063-018-2712-6] - DOI - PMC - PubMed
Sauers‐Ford 2016 {published data only}
    1. Sauers-Ford HS, Simmons JM, Shah SS. Strategies to engage stakeholders in research to improve acute care delivery. Journal of Hospital Medicine 2016;11(2):123-5. [DOI: 10.1002/jhm.2492] - DOI - PubMed
Scholl 2018 {published data only}
    1. Scholl I, Hahlweg P, Lindig A, Bokemeyer C, Coym A, Hanken H, et al. Evaluation of a program for routine implementation of shared decision-making in cancer care: study protocol of a stepped wedge cluster randomized trial. Implementation Science 2018;131:1. [DOI: 10.1186/s13012-018-0740-y] - DOI - PMC - PubMed
Schweitzer 2015 {published data only}
    1. Schweitzer J. Accountability in the 2015 global strategy for women's, children's and adolescents' health. British Medical Journal 2015;351:h4248. [DOI: 10.1136/bmj.h4248] - DOI - PubMed
Segal 2010 {published data only}
    1. Segal SP, Silverman CJ, Temkin TL. Self-help and community mental health agency outcomes: a recovery-focused randomized controlled trial. Psychiatric Services 2010;61(9):905-10. [DOI: 10.1176/ps.2010.61.9.905] - DOI - PMC - PubMed
Sepuchra 2003 {published data only}
    1. Sepuchra KR, Belkora JK, Aviv C, Mutchnick S, Esserman LJ. Improving the quality of decision making in breast cancer: consultation planning template and consultation recording template. Oncology Nursing Forum 2003;30:99-106. [DOI: 10.1188/03.ONF.99-106 ] - PubMed
Shagi 2008 {published data only}
    1. Shagi C, Vallely A, Kasindi S, Chiduo B, Desmond N, Soteli S, et al. A model for community representation and participation in HIV prevention trials among women who engage in transactional sex in Africa. AIDS Care 2008;20(9):1039-49. [DOI: 10.1080/09540120701842803 ] - PubMed
Sherbourne 2017 {published data only}
    1. Sherbourne CD, Aoki W, Belin TR, Bromley E, Chung B, Dixon E, et al. Comparative effectiveness of two models of depression services quality improvement in health and community sectors. Psychiatric Services 2017;68(12):1315-20. [DOI: 10.1176/appi.ps.201700170] - DOI - PMC - PubMed
Shukla 2018 {published data only}
    1. Shukla M. Impact of a health governance intervention on provincial health system performance in Afghanistan: a quasi-experimental study. Health Systems and Reform 2018;4(3):249-66. [DOI: 10.1080/23288604.2018.1477536] - DOI - PubMed
Simonsen 2017 {published data only}
    1. Simonsen SE, Ralls B, Guymon A, Garrett T, Eisenman P, Villalta J, et al. Addressing health disparities from within the community: community-based participatory research and community health worker policy initiatives using a gender-based approach. Women's Health Issues 2017;27(Supplement 2):S46-53. [DOI: 10.1016/j.whi.2017.09.006] - DOI - PubMed
Singh 2020 {published data only}
    1. Singh K. Group antenatal care in Rwanda: examining successes and challenges in implementation. Dissertation. University of California, Berkeley 2020.
Sirilak 2013 {published data only}
    1. Sirilak S, Okanurak K, Wattanagoon Y, Chatchaiyalerk S, Tornee S, Siri S. Community participation of cross-border migrants for primary health care in Thailand. Health Policy and Planning 2013;28(6):658-64. [DOI: 10.1093/heapol/czs105] - DOI - PubMed
Smiddy 2015 {published data only}
    1. Smiddy J, Reay J, Peckham S, Williams L, Wilson P. Developing patient reference groups within general practice: a mixed-methods study. British Journal of General Practice 2015;65(632):e177-83. [DOI: 10.3399/bjgp15X683989] - DOI - PMC - PubMed
Smout 2016 {published data only}
    1. Smout EM, Enria L, Mooney T, Lees S, Watson-Jones D, Greenwood B, et al. Implementing a novel community engagement system during a clinical trial of a candidate Ebola vaccine within an outbreak setting. International Journal of Infectious Diseases 2016;45(Supplement 1):191. [DOI: 10.1016/j.ijid.2016.02.444] - DOI
Solomon 2017 {published data only}
    1. Solomon R, Smith C, Kallio J, Fenollosa A, Benerofe B, Jones L, et al. Speaking up: how patient and physician voices shaped a trial to improve goals-of-care eiscussions. The Patient: Patient-centered Outcomes Research 2017;10(4):489-501. [DOI: 10.1007/s40271-017-0226-z] - DOI - PubMed
South 2016 {published data only}
    1. South A, Hanley B, Gafos M, Cromarty B, Stephens R, Sturgeon K, et al. Models and impact of patient and public involvement in studies carried out by the Medical Research Council Clinical Trials Unit at University College London: findings from ten case studies. Trials 2016;17:376. [DOI: 10.1186/s13063-016-1488-9] - DOI - PMC - PubMed
Spencer 2011 {published data only}
    1. Spencer MS, Rosland AM, Kieffer EC, Sinco BR, Valerio M, Palmisano G, et al. Effectiveness of a community health worker intervention among African American and Latino adults with type 2 diabetes: a randomized controlled trial. American Journal of Public Health 2011;101(12):2263-60. [DOI: 10.2105/AJPH.2010.300106] - DOI - PMC - PubMed
Springgate 2018 {published data only}
    1. Springgate BF, Arevian AC, Wennerstrom A, Johnson AJ, Eisenman DP, Sugarman OK, et al. Community resilience learning collaborative and research network (C-LEARN): study protocol with participatory planning for a randomized, comparative effectiveness trial. International Journal of Environmental Research and Public Health 2018;15(8):1683. [DOI: 10.3390/ijerph15081683S2.325] - DOI - PMC - PubMed
Springgate 2018b {published data only}
    1. Springgate B, Tang LQ, Ong M, Aoki W, Chung BW, Dixon E, et al. Comparative effectiveness of coalitions versus technical assistance for depression quality improvement in persons with multiple chronic conditions. Ethnicity & Disease 2018;28(Supplement 2):325-38. [DOI: 10.18865/ed.28.S2.325] - DOI - PMC - PubMed
Stanhope 2013 {published data only}
    1. Stanhope V, Ingoglia C, Schmelter B, Marcus SC. Impact of person-centered planning and collaborative documentation on treatment adherence. Psychiatric Services 2013;64(1):76-9. [DOI: 10.1176/appi.ps.201100489] - DOI - PubMed
Stephens 2018 {published data only}
    1. Stephens TJ, Peden CJ, Pearse RM, Shaw SE, Abbott TEF, Jones E, et al. Improving care at scale: process evaluation of a multi-component quality improvement intervention to reduce mortality after emergency abdominal surgery (EPOCH trial). Implementation Science 2018;13(1):142. [DOI: 10.1186/s13012-018-0823-9] - DOI - PMC - PubMed
Stockdale 2016 {published data only}
    1. Stockdale SE, Tang L, Pudilo E, Lucas-Wright A, Chung B, Horta M, et al. Sampling and recruiting community-based programs using community-partnered participation research. Health Promotion Practice 2016;17(2):254-64. [DOI: 10.1177/1524839915605059] - DOI - PubMed
Storm 2011 {published data only}
    1. Storm M, Knudsen K, Davidson L, Hausken K, Johannessen Jan O. "Service user involvement in practice": the evaluation of an intervention program for service providers and inpatients in Norwegian Community Mental Health Centers. Psychosis: Psychological, Social and Integrative Approaches 2011;3(1):29-40. [DOI: 10.1080/17522439.2010.501521] - DOI
Svetaz 2016 {published data only}
    1. Svetaz MV, Sieving R, Allen M, Hager RR, Beckman KJ, Galvan A, et al. "A community based participatory research (CBPR) journey bringing culture and family to the center of an intervention to promote positive youth development and reproductive health: the encuentro project". Journal of adolescent health Conference: 2016 annual meeting of the society for adolescent health and medicine, SAHM 2016 Washington, DC United States 2016;58(2 Supplement 2):S5.
Taylor 2017 {published data only}
    1. Taylor LJ, Rathouz PJ, Berlin A, Brasel KJ, Mosenthal AC, Finlayson E, et al. Navigating high-risk surgery: protocol for a multisite, stepped wedge, cluster-randomised trial of a question prompt list intervention to empower older adults to ask questions that inform treatment decisions. BMJ Open 2017;7(5):e014002. [DOI: 10.1136/bmjopen-2016-014002] - DOI - PMC - PubMed
Thilly 2003 {published data only}
    1. Thilly N, Briançon S, Juillière Y, Dufay E, Zannad F. Improving ACE inhibitor use in patients hospitalized with systolic heart failure: a cluster randomized controlled trial of clinical practice guideline development and use. Journal of Evaluation in Clinical Practice 2003;9(3):373-82. [DOI: 10.1046/j.1365-2753.2003.00441.x] - DOI - PubMed
Thornton 2003 {published data only}
    1. Thornton H, Edwards A, Elwyn G. Evolving the multiple roles of 'patients' in health-care research: reflections after involvement in a trial of shared decision-making. Health Expectations 2003;6:189-97. - PMC - PubMed
Tondora 2010 {published data only}
    1. Tondora J, O'Connell M, Miller R, Dinzeo T, Bellamy C, Andres-Hyman R, et al. A clinical trial of peer-based culturally responsive person-centered care for psychosis for African Americans and Latinos. Clinical Trials 2010;7(4):368-79. [DOI: 10.1177/1740774510369847] - DOI - PMC - PubMed
Tran 2004 {published data only}
    1. Tran AN, Haidet P, Street RL, O'Malley KJ, Martin F, Ashton CM. Empowering communication: a community-based intervention for patients. Patient Education and Counseling. 2004;52:113-21. [DOI: 10.1016/S0738-3991%2803%2900002-8] - DOI - PubMed
Tran 2018 {published data only}
    1. Tran NT, Gaffield ME, Seuc A, Landoulsi S, Yamaego WME, Cuzin-Kihl A, et al. Effectiveness of a package of postpartum family planning interventions on the uptake of contraceptive methods until twelve months postpartum in Burkina Faso and the Democratic Republic of Congo: the YAM DAABO study protocol. BMC Health Services Research 2018;18(1):439. [DOI: 10.1186/s12913-018-3199-2] - DOI - PMC - PubMed
Treloar 2015 {published data only}
    1. Treloar C, Rance J, Bath N, Everingham H, Micallef M, Day C, et al. Evaluation of two community-controlled peer support services for assessment and treatment of hepatitis C virus infection in opioid substitution treatment clinics: the ETHOS study, Australia. International Journal of Drug Policy 2015;2618(101):992-8. [DOI: 10.1016/j.drugpo.2015.01.005] - DOI - PubMed
Tripathy 2010 {published data only}
    1. Tripathy P, Nair N, Barnett S, Mahapatra R, Borghi J, Rath S, et al. Effect of a participatory intervention with women's groups on birth outcomes and maternal depression in Jharkhand and Orissa, India: a cluster-randomised controlled trial. Lancet 2010;375(9721):1182-92. [DOI: 10.1016/S0140-6736(09)62042-0] - DOI - PubMed
Tripathy 2011 {published data only}
    1. Tripathy P, Nair N, Mahapatra R, Rath S, Gope RK, Rath S, et al. Community mobilisation with women's groups facilitated by Accredited Social Health Activists (ASHAs) to improve maternal and newborn health in underserved areas of Jharkhand and Orissa: study protocol for a cluster-randomised controlled trial. Trials 2011;12:182. [DOI: 10.1186/1745-6215-12-182] - DOI - PMC - PubMed
Tripathy 2016 {published data only}
    1. Tripathy P, Nair N, Sinha R, Rath S, Gope RK, Rath S, et al. Effect of participatory women's groups facilitated by Accredited Social Health Activists on birth outcomes in rural eastern India: a cluster-randomised controlled trial. Lancet Global Health 2016;4(2):e119-28. [DOI: 10.1016/S2214-109X(15)00287-9] - DOI - PubMed
Tsianakas 2012 {published data only}
    1. Tsianakas V, Robert G, Maben J, Richardson A, Dale C, Griffin M, et al. Implementing patient-centred cancer care: using experience-based co-design to improve patient experience in breast and lung cancer services. Supportive Care in Cancer 2012;20(11):2639-47. [DOI: 10.1007/s00520-012-1470-3] - DOI - PMC - PubMed
Tumiel‐Berhalter 2011 {published data only}
    1. Tumiel-Berhalter LM, Kahn L, Watkins R, Goehle M, Meyer C. The implementation of Good For The Neighborhood: a participatory community health program model in four minority underserved communities. Journal of Community Health. 2011;36(4):669-74. [DOI: 10.1007/s10900-011-9358-6] - DOI - PubMed
Uding 2007 {published data only}
    1. Uding N, Sety M, Kieckhefer Gail M. Family involvement in health care research: the "Building on Family Strengths" case study. Families, Systems, & Health 2007;25(3):307-22. [DOI: 10.1037/1091-7527.25.3.307] - DOI
Uding 2009 {published data only}
    1. Uding N, Kieckhefer GM, Trahms CM. Parent and community participation in program design. Clinical Nursing Research 2009;18(1):68-79. [DOI: 10.1177/1054773808330096] - DOI - PubMed
Vale 2018 {published data only}
    1. Vale CL, Cragg WJ, Cromarty B, Hanley B, South A, Stephens R, et al. When participants get involved: reconsidering patient and public involvement in clinical trials at the MRC Clinical Trials Unit at UCL. Trials 2018;19(1):95. [DOI: 10.1186/s13063-018-2471-4] - DOI - PMC - PubMed
Vanderboom 2014 {published data only}
    1. Vanderboom CE, Holland DE, Lohse CM, Targonski PV, Madigan EA. Enhancing patient-centered care. Western Journal of Nursing Research 2014;36(1):47-65. [DOI: 10.1177/0193945913490841] - DOI - PubMed
Van Malderen 2017 {published data only}
    1. Van Malderen L, De Vriendt P, Mets T, Verté D, Gous E. Experiences and effects of structurally involving residents in the nursing home by means of participatory action research: a mixed method study. Journal of the American Medical Directors Association 2017;18(6):495-502. [DOI: 10.1016/j.jamda.2016.12.072] - DOI - PubMed
Van Malderen 2017a {published data only}
    1. Van Malderen L, De Vriendt P, Mets T. Active ageing in the nursing home: could participatory action research provide the answer? Action Research 2017;15(3):239-57. [DOI: 10.1177/1476750316636668] - DOI
von dem Knesebeck 2002 {published data only}
    1. dem Knesebeck O, Joksimovic L, Badura B, Siegrist J. Evaluation of a community-level health policy intervention. Health Policy 2002;61:111-22. [DOI: 10.1016/S0168-8510(01)00221-4] - DOI - PubMed
Waiswa 2016 {published data only}
    1. Waiswa P, O'Connell T, Bagenda D, Mullachery P, Mpanga F, Henriksson DK, et al. Community and District Empowerment for Scale-up (CODES): a complex district-level management intervention to improve child survival in Uganda: study protocol for a randomized controlled trial. Trials 2016;17(1):135. [DOI: 10.1186/s13063-016-1241-4] - DOI - PMC - PubMed
Wathne 2018 {published data only}
    1. Wathne JS, Kleppe LKS, Harthug S, Blix HS, Nilsen RM, Charani E. The effect of antibiotic stewardship interventions with stakeholder involvement in hospital settings: a multicentre, cluster randomized controlled intervention study. Antimicrobial Resistance and Infection Control 2018;7:109. [DOI: 10.1186/s13756-018-0400-7] - DOI - PMC - PubMed
Watson 2001 {published data only}
    1. Watson MR, Horowitz AM, Garcia I, Canto MT. A community participatory oral health promotion program in an inner-city Latino community. Journal of Public Health Dentistry 2001;61(1):34-41. [DOI: 10.1111/j.1752-7325.2001.tb03353.x] - DOI - PubMed
Weinstein 2006 {published data only}
    1. Weinstein J. Involving mental health service users in quality assurance. Health Expectations 2006;9(2):98-109. [DOI: 10.1111/j.1369-7625.2006.00377.x] - DOI - PMC - PubMed
Wells 2013 {published data only}
    1. Wells KB, Jones L, Chung B, Dixon EL, Tang L, Gilmore J, et al. Community-partnered cluster-randomized comparative effectiveness trial of community engagement and planning or resources for services to address depression disparities. Journal of General Internal Medicine 2013;28(10):1268-78. [DOI: 10.1007/s11606-013-2484-3] - DOI - PMC - PubMed
Werner 2019 {published data only}
    1. Werner RM, Kanter GP, Polsky D. Association of physician group participation in Accountable Care Organizations with patient social and clinical characteristics. JAMA Network Open 2019;2(1):e187220. [DOI: 10.1001/jamanetworkopen.2018.7220] - DOI - PMC - PubMed
Wheatley 2002 {published data only}
    1. Wheatley K, Djulbegovic B, Glasmacher A. Priority-setting decisions for new cancer drugs. Lancet 2002;359(9316):1525. [DOI: 10.1016/S0140-6736(02)08452-0] - DOI - PubMed
Williams 2013 {published data only}
    1. Williams AB, Honghong W, Burgess J, Xianhong L, Danvers K. Cultural adaptation of an evidence-based nursing intervention to improve medication adherence among people living with HIV/AIDS (PLWHA) in China. International Journal of Nursing Studies 2013;50(4):487-94. [DOI: 10.1016/j.ijnurstu.2012.08.018] - DOI - PMC - PubMed
Winters 2016 {published data only}
    1. Winters E. The design and implementation of a team-based care model in an ambulatory BMT clinic. Biology of Blood and Marrow Transplantation 2016;22(3 Supplement 22):S461.
Wolf 2008 {published data only}
    1. Wolf DM, Lehman L, Quinlin R, Zullo T, Hoffman L. Effect of patient-centered care on patient satisfaction and quality of care. Journal of Nursing Care Quality 2008;23(4):316-21. [DOI: 10.1097/01.NCQ.0000336672.02725.a5] - DOI - PubMed
Wolfe 2019 {published data only}
    1. Wolfe I, Lemer C, Heys M, Ingrassia A, Newham J, Forman J, et al. Implementing and Evaluating the CYPHP Evelina London new care model to improve health, healthcare quality, and patterns of service use among children and young people. International Journal of Integrated Care 2019;19(4):253. [DOI: 10.5334/ijic.s3253] - DOI
Wood Dauphinee 2011 {published data only}
    1. Wood Dauphinee SL, Bayley M, Mokry J, Salbach N, Thorpe K. Stroke Canada optimization of rehabilitation by evidence: implementation trial (SCORE: iT). Cerebrovascular Diseases 2011;31(Supplement 2):43. [DOI: 10.1159/000329448] - DOI
Yano 2016 {published data only}
    1. Yano EM, Darling JE, Hamilton AB, Canelo I, Chuang E, Meredith LS, et al. Cluster randomized trial of a multilevel evidence-based quality improvement approach to tailoring VA Patient Aligned Care Teams to the needs of women Veterans. Implementation Science 2016;11(1):1-14. [DOI: 10.1186/s13012-016-0461-z] - DOI - PMC - PubMed
Younes 2012 {published data only}
    1. Younes L, Houweling TA, Azad K, Costello A, Fottrell E. Estimating coverage of a women’s group intervention among a population of pregnant women in rural Bangladesh. BMC Pregnancy Childbirth 2012;12:60. [DOI: 10.1186/1471-2393-12-60] - DOI - PMC - PubMed
Young 2005 {published data only}
    1. Young AS, Chinman M, Forquer SL, Knight EL, Vogel H, Miller A, et al. Use of a consumer-led intervention to improve provider competencies. Psychiatric Services 2005;56(8):967-75. [DOI: 10.1176/appi.ps.56.8.967] - DOI - PubMed
Zhang 2020 {published data only}
    1. Zhang Y. Young, low-income mothers' involvement in doula home visiting services. Dissertation.The University of Chicago School of Social Service Administration 2020.
Zimmerman 2017 {published data only}
    1. Zimmerman RK, Brown AE, Pavlik VN, Moehling KK, Raviotta JM, Lin CJ, et al. Using the 4 Pillars Practice Transformation Program to increase pneumococcal immunizations for older adults: a Cluster-Randomized Trial. Journal of the American Geriatrics Society 2017;6556(1):114-22. [DOI: 10.1111/jgs.14451] - DOI - PMC - PubMed
Zwar 2008 {published data only}
    1. Zwar N, Hermiz O, Hasan I, Comino E, Middleton S, Vagholkar S, et al. A cluster randomised controlled trial of nurse and GP partnership for care of chronic obstructive pulmonary disease. BMC Pulmonary Medicine 2008;8:8. [DOI: 10.1186/1471-2466-8-8] - DOI - PMC - PubMed

References to studies awaiting assessment

English 2018 {published data only}
    1. Dickinson WP, Nease DE, Rhyne RL, Knierim KE, Fernald DH, la Cerda DR, et al. Practice transformation and patient engagement to improve cardiovascular care: from EvidenceNOW Southwest (ENSW). The Journal of the American Board of Family Medicine 2020;33(5):675-86. [DOI: 10.3122/jabgm.2020.05.190375] - DOI - PMC - PubMed
    1. English AF, Dickinson LM, Zittleman L, Nease Jr DE, Herrick A, Westfall JM, et al. A community engagement method to design patient engagement materials for cardiovascular health. Annals of Family Medicine 2018;16:s58-64. [DOI: 10.1370/afm.2173] - DOI - PMC - PubMed
    1. Fernald DH, Mullen R, Hall T, Bienstock A, Kirchner S, Knierim K, et al. Exemplary practices in cardiovascular care: results on clinical quality measures from the EvidenceNOW Southwest Cooperative. Journal of General Internal Medicine 2020;35(11):3197-3204. [DOI: 10.1007/s11606-020-06094-5] - DOI - PMC - PubMed
    1. Hall TL, Knierim KE, Nease DE, Staton EW, Nkouaga C, Dickinson LM, et al. Primary care practices' implementation of Patient Team-Partnership: findings from Evidence NOW Southwest. The Journal of the American Board of Family Medicine 2019;32(4):490-504. [DOI: 10.3122/jabfm.2019.04.180361] - DOI - PubMed
    1. NCT02515578. ClinicalTrials.gov.
Gai 2019 {published data only}
    1. Gai Tobe R, Islam MT, Yoshimaru Y, Hossain J. Strengthening the community support group to improve maternal and neonatal health seeking behaviours: a cluster-randomized controlled trial in Satkhira District, Bangladesh. PLoS ONE 2019;14(2):e0212847. [DOI: 10.1371/journal.pone.0212847] - DOI - PMC - PubMed
James 2013 {published data only}
    1. James AS, Richardson V, Wang JS, Proctor EK, Colditz GA. Systems intervention to promote colon cancer screening in safety net settings: protocol for a community-based participatory randomized controlled trial. Implementation Science 2013;8:58. [DOI: 10.1186/1748-5908-8-58] - DOI - PMC - PubMed
    1. Mathukrishnan M, Sufcliffe S, Hunleth JM, Wang JS, Colditz GA, James AS. Conducting a randomized trial in rural and urban safety-net health centres: added value of community-based participatory research. Comtenporary Clinical Trials Communications 2018;10:29-35. [DOI: 10.1016/j.conctc.2018.02.005] - DOI - PMC - PubMed
Lindquist 2020 {published data only}
    1. Lindquist L, Ramirez-Zohfeld V, Wong N, Forcucci C, Beverly R. Leveraging patient partners to disseminate a Long-Term Support Services (LTSS) planning tool, PlanYourLifespan.org. Journal of the American Medical Directors Association 2020;21:B31-2. [DOI: 10.1016/j.jamda.2020.01.087] - DOI
Morrison 2020 {published data only}
    1. Morrison J, Tumbahangphe K, Sen A, Gram L, Budhathoki B, Neupane R, et al. Health management committee strengthening and community mobilisation through women's groups to improve trained health worker attendance at birth in rural Nepal: a cluster randomised controlled trial. BMC Pregnancy Childbirth 2020;20(1):268. [DOI: 10.1186/s12884-020-02960-6] - DOI - PMC - PubMed
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