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. 2022 Jan-Feb:62:91-97.
doi: 10.1016/j.pedn.2021.09.009. Epub 2021 Oct 6.

Psychometric properties of a Turkish version of the quality of life in childhood epilepsy questionnaire

Dijle Ayar  1 , Aycan Ünalp  2 , Murat Bektaş  3 , Ünsal Yılmaz  2 , Pakize Karaoğlu  2 , Fulya Merve Yalçıntuğ  4
Affiliations

Psychometric properties of a Turkish version of the quality of life in childhood epilepsy questionnaire

Dijle Ayar et al. J Pediatr Nurs. 2022 Jan-Feb.

Abstract

Background: Epilepsy is a neurological disease that requires long-term treatment and monitoring and causes significant restrictions in physical, emotional, intellectual, and social life that negatively affect the quality of life of the individual. This study aimed to test the validity and reliability of the Quality of Life in Childhood Epilepsy Questionnaire in Turkey.

Methods: The study was conducted on 421 parents using a descriptive correlational method. The data of the study were collected using a Descriptive Information Form and the Quality of Life in Childhood Epilepsy Questionnaire. Data analysis and evaluation were performed using factor analysis, Cronbach's alpha, and item-total score correlation.

Findings: The scale consists of 16 items and four sub-dimensions. The four sub-dimensions recorded a variance of 87.83%. Cronbach's alpha coefficient of the Turkish version of the scale was 0.96. The two-month test-retest reliability evaluated with intra-class correlation was 0.85. Confirmatory factor analysis indicated, the model fit index results were recorded as follows: 0.93 as the Goodness-of-Fit Index; comparative fit index, 0.98 and non-normed fit index (NNFI), 0.97.

Conclusions: The study determined that the Turkish version of the Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-16) is a valid and reliable measurement tool when used to measure quality of life for Turkish children with epilepsy.

Practice implications: It is recommended that the health-related quality of life should be evaluated to assess the treatment of children with epilepsy and to intervene early in potential risk factors associated with the disease management process. All healthcare professionals can use this scale in interventional studies aiming at evaluating or improving the quality of life of children with epilepsy.

Keywords: Childhood; Epilepsy; Health related quality of life; Quality of life; Questionnaire.

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Conflict of interest statement

Declaration of Competing Interest The authors report no conflicts of interest. The authors alone are responsible for the content and writing of the article.