Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2022 Mar;35(2):556-568.
doi: 10.1111/jar.12966. Epub 2021 Dec 6.

Conducting theory-based qualitative interviews with adults with intellectual disabilities and their carers: Adaptations to facilitate participation

Kiran K Bains  1 , Triece Turnbull  2
Affiliations

Conducting theory-based qualitative interviews with adults with intellectual disabilities and their carers: Adaptations to facilitate participation

Kiran K Bains et al. J Appl Res Intellect Disabil. 2022 Mar.

Abstract

Background: Adults with mild-moderate intellectual disabilities have difficulties in accessing traditional evidence-based health promotion initiatives despite experiencing health disparities; yet there are few studies with this group and their carers exploring how their needs can be met.

Method: This study adapted a behaviour change theory-based approach to interview this group and their carers and ascertain if this method was feasible and appropriate to explore how healthier behaviour uptake could be improved amongst adults with intellectual disabilities.

Results: A community-based, staged recruitment process and iterative approach to data collection and analysis supported successful participation amongst adults with intellectual disabilities in behaviour-change theory-based interview research. Methodological adaptations enabled richer data collection amongst adults with mild-moderate intellectual disabilities and carers.

Conclusions: It is feasible and important to include adults with intellectual disabilities in qualitative health research that uses theory-based complex constructs to inform development of person-centred health promotion interventions with this underserved cohort.

Keywords: disparities; health promotion; intellectual disabilities; qualitative interviews.

PubMed Disclaimer

References

REFERENCES

    1. Bains, K. K., & Turnbull, T. (2020). Using a theoretically driven approach with adults with mild-moderate intellectual disabilities and carers to understand and improve uptake of healthy eating and physical activity, Obesity Medicine, 19, 100234. https://doi.org/10.1016/j.obmed.2020.100234.
    1. Bergström, H., Elinder, L. S., & Wihlman, U. (2014). Barriers and facilitators in health education for adults with intellectual disabilities-a qualitative study. Health Education Research, 29(2), 259-271. https://doi.org/10.1093/her/cyt111
    1. Bhaumik, S., Watson, J. M., Thorp, C. F., Tyrer, F., & McGrother, C. W. (2008). Body mass index in adults with intellectual disability: Distribution, associations and service implications: A population-based prevalence study. Journal of Intellectual Disability Research, 52(4), 287-298. https://doi.org/10.1111/j.1365-2788.2007.01018.x
    1. Bigby, C., Frawley, P., & Ramcharan, P. (2014). Conceptualizing inclusive research with people with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 27, 3-12. https://doi.org/10.1111/jar.12083
    1. Bandura, A. (1986). Social foundations of thought and action: A cognitive theory. Prentice-Hall.

LinkOut - more resources