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. 2021 Nov 18:24:100869.
doi: 10.1016/j.conctc.2021.100869. eCollection 2021 Dec.

Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference

Johanna Kling  1 , Tine Nordgreen  2 , Ingela L Kvalem  3 , Heidi Williamson  4 , Kristin B Feragen  1
Affiliations

Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference

Johanna Kling et al. Contemp Clin Trials Commun. .

Abstract

Online interventions have the potential to reach individuals who are otherwise difficult to engage due to stigma and sensitive topics. However, these individuals also tend to be hard to recruit in clinical trials, a crucial step in order to provide evidence-based interventions. This highlights a need for more information about efficient recruitment strategies for difficult-to-engage groups. The present study aimed to share the systematised experiences of recruiting adolescents with a visible difference to an online psychosocial intervention RCT. With the intention to recruit 160 participants (age 12-17), recruitment efforts were nationwide and included multiple arenas (e.g., hospitals, schools, social media), and methods (e.g., in-consultation, targeted letters, posters). Ultimately, 102 participants were recruited, and results showed that recruitment involving patient organisations, hospital departments, and specialised resource centres were most successful in reaching participants. The most efficient recruitment strategy was targeted letters sent home to eligible patients/members, as 78% of the participants were recruited this way. Media and social media recruitment efforts yielded comparatively few participants. No participants were recruited through schools and educational health care services, primary health care services, or municipal and regional authorities. Our results are discussed in relation to barriers with recruiting difficult-to-engage groups to RCTs, providing useful recruitment tools to future similar studies. For instance, future studies are recommended to utilise targeted approaches over general population approaches. Also, results from recruitment efforts should routinely be reported, as this ultimately will provide more general strategies for effective recruitment and support studies in reaching recruitment goals.

Keywords: Adolescents; Difficult-to-engage; Online intervention; Participant recruitment; Randomised control trial.

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Conflict of interest statement

The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.

References

    1. Appearance Research Collaboration . Final report, Centre for Appearance Research, University of the West of England; Bristol, UK: 2009. Identifying Factors and Processes Contributing to Successful Adjustment to Disfiguring Conditions.
    1. Arigo D., Pagoto S., Carter-Harris L., Lillie S.E., Nebeker C. Using social media for health research: methodological and ethical considerations for recruitment and intervention delivery. Digital health. 2018;4 doi: 10.1177/2055207618771757. 2055207618771757. - DOI - PMC - PubMed
    1. Feragen K.B. 2017. Sluttrapport Ung Face IT [Unpublished report of feasibility andacceptability study for Ung Face IT]. NKSD.
    1. Zelihić D., van Dalen M., Kling J., Pripp A.H., Nordgreen T., Kvalem I.L., Pasmans S.G.M.A., Mathijssen I.M.J., Koudstaal M.J., Hillegers M.H.J., Williamson H., Utens E.M.W.J., Feragen K.B., Okkerse J.M.E. 2021. Reducing social anxiety inadolescents distressed by a visible difference: Results from a randomised control trial of aweb-based intervention. - PubMed
    1. Batterham P.J., Calear A.L., Sunderland M., Kay-Lambkin F., Farrer L.M., Gulliver A. A brief intervention to increase uptake and adherence of an online program for depression and anxiety: protocol for the Enhancing Engagement with Psychosocial Interventions (EEPI) Randomized Controlled Trial. Contemp. Clin. Trials. 2019;78:107–115. doi: 10.1016/j.cct.2019.01.015. - DOI - PubMed

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