PROMising developments in IPF patient-reported outcome measures

doi:10.1183/13993003.02312-2021

Editorial

. 2022 Jan 13;59(1):2102312.

doi: 10.1183/13993003.02312-2021. Print 2022 Jan.

PROMising developments in IPF patient-reported outcome measures

Claire M Nolan^{1

2}, Surinder S Birring^{3

4}

Affiliations

¹ Harefield Respiratory Research Group, Royal Brompton and Harefield Clinical Group, Guy's and St Thomas' NHS Foundation Trust, London, UK.
² Division of Physiotherapy, Dept of Health Sciences, College of Health, Medicine and Life Sciences, Brunel University, London, UK.
³ Dept of Respiratory Medicine, King's College Hospital, London, UK surinder.birring@nhs.net.
⁴ Centre for Human and Applied Physiological Sciences, School of Basic and Medical Biosciences, Faculty of Life Sciences and Medicine, King's College London, London, UK.

PMID: 35027375
DOI: 10.1183/13993003.02312-2021

Free article

Editorial

PROMising developments in IPF patient-reported outcome measures

Claire M Nolan et al. Eur Respir J. 2022.

Free article

. 2022 Jan 13;59(1):2102312.

doi: 10.1183/13993003.02312-2021. Print 2022 Jan.

Authors

Claire M Nolan^{1

2}, Surinder S Birring^{3

4}

Affiliations

¹ Harefield Respiratory Research Group, Royal Brompton and Harefield Clinical Group, Guy's and St Thomas' NHS Foundation Trust, London, UK.
² Division of Physiotherapy, Dept of Health Sciences, College of Health, Medicine and Life Sciences, Brunel University, London, UK.
³ Dept of Respiratory Medicine, King's College Hospital, London, UK surinder.birring@nhs.net.
⁴ Centre for Human and Applied Physiological Sciences, School of Basic and Medical Biosciences, Faculty of Life Sciences and Medicine, King's College London, London, UK.

PMID: 35027375
DOI: 10.1183/13993003.02312-2021

No abstract available

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Conflict of interest statement

Conflict of interest: C.M. Nolan reports personal fees from Novartis, outside the submitted work. Conflict of interest: S.S. Birring reports personal fees from Boehringer Ingelheim, outside the submitted work.

Comment on

R-scale for pulmonary fibrosis: a simple, visual tool for the assessment of health-related quality of life.
Scallan C, Strand L, Hayes J, Kadura S, Collins B, Ho L, Spada C, Canestaro W, Kolb M, Raghu G. Scallan C, et al. Eur Respir J. 2022 Jan 13;59(1):2100917. doi: 10.1183/13993003.00917-2021. Print 2022 Jan. Eur Respir J. 2022. PMID: 34112729
The use of online visual analogue scales in idiopathic pulmonary fibrosis.
Moor CC, Mostard RLM, Grutters JC, Bresser P, Wijsenbeek MS. Moor CC, et al. Eur Respir J. 2022 Jan 13;59(1):2101531. doi: 10.1183/13993003.01531-2021. Print 2022 Jan. Eur Respir J. 2022. PMID: 34326190 Free PMC article.

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Patient-centered care in pulmonary fibrosis: access, anticipate, and act.
Hofman DE, Magrì T, Moor CC, Richeldi L, Wijsenbeek MS, Waseda Y. Hofman DE, et al. Respir Res. 2024 Nov 1;25(1):395. doi: 10.1186/s12931-024-02997-7. Respir Res. 2024. PMID: 39487454 Free PMC article. Review.
Meaningful Endpoints for Idiopathic Pulmonary Fibrosis (IPF) Clinical Trials: Emphasis on 'Feels, Functions, Survives'. Report of a Collaborative Discussion in a Symposium with Direct Engagement from Representatives of Patients, Investigators, the National Institutes of Health, a Patient Advocacy Organization, and a Regulatory Agency.
Raghu G, Ghazipura M, Fleming TR, Aronson KI, Behr J, Brown KK, Flaherty KR, Kazerooni EA, Maher TM, Richeldi L, Lasky JA, Swigris JJ, Busch R, Garrard L, Ahn DH, Li J, Puthawala K, Rodal G, Seymour S, Weir N, Danoff SK, Ettinger N, Goldin J, Glassberg MK, Kawano-Dourado L, Khalil N, Lancaster L, Lynch DA, Mageto Y, Noth I, Shore JE, Wijsenbeek M, Brown R, Grogan D, Ivey D, Golinska P, Karimi-Shah B, Martinez FJ. Raghu G, et al. Am J Respir Crit Care Med. 2024 Mar 15;209(6):647-669. doi: 10.1164/rccm.202312-2213SO. Am J Respir Crit Care Med. 2024. PMID: 38174955 Free PMC article.

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PROMising developments in IPF patient-reported outcome measures

Affiliations

PROMising developments in IPF patient-reported outcome measures

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Conflict of interest statement

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