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. 2022;100(1):19-23.
doi: 10.1007/s12508-021-00328-5. Epub 2022 Jan 17.

[Patient involvement during crises]

[Article in Dutch]
Eduard Schmidt  1 , Suzan van der Pas  2   3 , Jelmer Schalk  3 , Sietse Wieringa  4   5 , Britt Kraaijeveld  1   3 , Sandra Groeneveld  1 , Jet Bussemaker  1   3
Affiliations

[Patient involvement during crises]

[Article in Dutch]
Eduard Schmidt et al. TSG. 2022.

Abstract
in English, Dutch

Patient involvement is an important topic in health care. Client councils are one way through which patients are involved in decision-making. However, we know little about their role during crises, and what we can learn from these experiences. We argue that there was little patient involvement in the top-down and centralized decision-making during the COVID-19 crisis. Furthermore, many decisions were taken in interorganizational networks, where patient involvement is rare. Based on these findings, we argue that health care organizations and client councils should rethink what effective patient involvement looks like during crises and in interorganizational networks.

Patiëntbetrokkenheid is een belangrijk thema in de zorg. Cliëntenraden vervullen hierin een belangrijke rol. Tegelijkertijd is er nog weinig bekend over hun rol bij de besluitvorming tijdens crises, en wat we van deze ervaringen kunnen leren. De coronacrisis liet echter zien dat wanneer besluitvorming plaatsvindt in interorganisationele netwerken, en sterk top-down en gecentraliseerd is, er weinig ruimte overblijft voor patiëntbetrokkenheid. Wij stellen dat zowel bestuurders als cliëntenraden meer werk moeten maken van patiëntbetrokkenheid in interorganisationele netwerken en tijdens crisissituaties.

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