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. 2022 Jan 22:9:20556683211070729.
doi: 10.1177/20556683211070729. eCollection 2022 Jan-Dec.

An exploratory study: The effects of sleep systems on sleep quality, pain and carer goals for non-ambulant children and young people with cerebral palsy

Nicola Wood  1 , Sarah Brown  1
Affiliations

An exploratory study: The effects of sleep systems on sleep quality, pain and carer goals for non-ambulant children and young people with cerebral palsy

Nicola Wood et al. J Rehabil Assist Technol Eng. .

Abstract

Introduction: Sleep systems are supports used in lying, forming part of 24 h posture management programmes, for children and adults with severe motor disorders. Improved posture reduces likelihood of secondary complications such as pain and poor sleep quality, thus improving quality of life. The study aims are to investigate the effect of sleep systems on sleep quality and quantity, pain for young people with Cerebral Palsy and outcomes for carers.

Methods: Baseline data were gathered for 1 month prior to sleep system provision. Comparative data with the sleep system in place, were gathered for 5 months. The sample comprised four children with Cerebral Palsy, GMFCS level V, average age of 11.5, who did not have a sleep system. Data on sleep quality and quantity was gathered using the Chailey Sleep Questionnaire and sleep diaries and pain levels using the Paediatric Pain Profile. GAS Light verbal outcome measure was used to measure carer goals.

Results: Descriptive statistics and paired sample t-tests were used, demonstrating pain levels remained static, improvements in sleep quality and quantity were found and carer goals achieved.

Conclusion: A small sample size and subjective data collection methods were used; further research is required to obtain more conclusive results.

Keywords: assistive technology; neurorehabilitation; posture analysis; rehabilitation; rehabilitation devices; self-care.

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Conflict of interest statement

Declaration of conflicting interests: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Figures

Figure 1.
Figure 1.
Flow chart describing intervention delivery approach.
Figure 2.
Figure 2.
Chailey Sleep Diaries reported frequency of waking during the night.
Figure 3.
Figure 3.
Paediatric Pain Profile Scores for each participant at baseline with no sleep system and at the end of the study following use of the system.
See this image and copyright information in PMC

References

    1. Gerike T. Postural management for children with cerebral palsy: consensus statement. Dev Med Child Neurol 2006; 48(4): 244. - PubMed
    1. Pope P. Severe and Complex Neurological Disability: Management of the Physical Condition. Amsterdam, The Netherlands: Butterworth-Heinemann/Elsevier, 2007.
    1. Polak F, Clift M, Clift L. Buyers’ Guide: Night Time Postural Management Equipment for Children. UK: NHS Centre for Evidence- based Purchasing, 2008.
    1. National Institute for Health and Care Excellence . NICE clinical guideline 145: spasticity in children and young people with non-progressive brain disorders: management of spasticity and co-existing motor disorders and their early musculoskeletal complications, http://bit.ly/lyWvSp, 2012. - PubMed
    1. Poutney T, Green EM. Hip dislocation in cerebral palsy. Br Med J 2006; 332: 772–775. - PMC - PubMed

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