Adult North Star Network (ANSN): Consensus Document for Therapists Working with Adults with Duchenne Muscular Dystrophy (DMD) - Therapy Guidelines

S Narayan¹, A Pietrusz², J Allen³, M DiMarco⁴, K Docherty⁵, N Emery⁶, M Ennis⁷, R Flesher⁷, W Foo⁸, J Freebody⁹, E Gallagher¹⁰, N Grose¹¹, D Harris¹², C Hewamadduma^{13

14}, S Holmes^{2

3}, M K James¹⁵, L Maidment¹³, A Mayhew¹⁵, D Moat¹⁵, N Moorcroft¹², R Muni-Lofra¹⁵, K Nevin¹³, R Quinlivan², J Slimming¹⁶, J Sodhi¹⁵, D Stuart¹⁷, Y Julien¹⁸; ANSN

Affiliations

¹ University Hospital Southampton NHS Foundation Trust, Southampton, UK.
² UCL Queen Square Institute of Neurology, MRC Centre for Neuromuscular Diseases, London, UK.
³ The National Hospital for Neurology and Neurosurgery, University College London Hospitals, London, UK.
⁴ Queen Elizabeth University Hospital, Glasgow, UK.
⁵ University Hospitals Dorset NHS Foundation Trust, Poole, UK.
⁶ The Robert Jones and Agnes Hunt Orthopaedic Hospital, Gobowen, Oswestry, UK.
⁷ The Walton Centre NHS Foundation Trust, Liverpool, UK.
⁸ Manchester University NHS Foundation Trust, Manchester, UK.
⁹ John Radcliffe Hospital, Oxford University Hospitals NHS Foundation Trust, Oxford, UK.
¹⁰ University Hospitals Birmingham, Birmingham, UK.
¹¹ North Bristol NHS Foundation Trust, The SouthWest Neuromuscular Operational Delivery Network, Bristol, UK.
¹² West Midlands Rehabilitation Centre, Birmingham Community Healthcare NHS Foundation Trust, Birmingham, UK.
¹³ Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK.
¹⁴ Sheffield Institute for Translational Neurosciences (SITRAN), University of Sheffield, Sheffield, UK.
¹⁵ The John Walton Muscular Dystrophy Research Centre, Newcastle, UK.
¹⁶ School of Health Sciences, University of Liverpool, Liverpool, UK.
¹⁷ Muscular Dystrophy UK, London, UK.
¹⁸ University Hospitals of Leicester Emergency and Specialist Medicine, Leicester, UK.

Free article

S Narayan et al. J Neuromuscul Dis. 2022.

Free article

. 2022;9(3):365-381.

doi: 10.3233/JND-210707.

¹ University Hospital Southampton NHS Foundation Trust, Southampton, UK.
² UCL Queen Square Institute of Neurology, MRC Centre for Neuromuscular Diseases, London, UK.
³ The National Hospital for Neurology and Neurosurgery, University College London Hospitals, London, UK.
⁴ Queen Elizabeth University Hospital, Glasgow, UK.
⁵ University Hospitals Dorset NHS Foundation Trust, Poole, UK.
⁶ The Robert Jones and Agnes Hunt Orthopaedic Hospital, Gobowen, Oswestry, UK.
⁷ The Walton Centre NHS Foundation Trust, Liverpool, UK.
⁸ Manchester University NHS Foundation Trust, Manchester, UK.
⁹ John Radcliffe Hospital, Oxford University Hospitals NHS Foundation Trust, Oxford, UK.
¹⁰ University Hospitals Birmingham, Birmingham, UK.
¹¹ North Bristol NHS Foundation Trust, The SouthWest Neuromuscular Operational Delivery Network, Bristol, UK.
¹² West Midlands Rehabilitation Centre, Birmingham Community Healthcare NHS Foundation Trust, Birmingham, UK.
¹³ Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK.
¹⁴ Sheffield Institute for Translational Neurosciences (SITRAN), University of Sheffield, Sheffield, UK.
¹⁵ The John Walton Muscular Dystrophy Research Centre, Newcastle, UK.
¹⁶ School of Health Sciences, University of Liverpool, Liverpool, UK.
¹⁷ Muscular Dystrophy UK, London, UK.
¹⁸ University Hospitals of Leicester Emergency and Specialist Medicine, Leicester, UK.

No abstract available

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