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Editorial
. 2022 Feb;17(2):176-178.
doi: 10.2215/CJN.16561221.

What Patients Teach Us About Patient Engagement in Research

Laura M Dember  1
Affiliations
Editorial

What Patients Teach Us About Patient Engagement in Research

Laura M Dember. Clin J Am Soc Nephrol. 2022 Feb.
No abstract available

Keywords: patient engagement.

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References

    1. Charlton JI: Nothing About Us Without Us: Disability Oppression and Empowerment, Berkeley, CA, University of California Press, 1998
    1. McDonagh JE, Bateman B: 'Nothing about us without us': Considerations for research involving young people. Arch Dis Child Educ Pract Ed 97: 55–60, 2012 - PubMed
    1. Patient-Centered Outcomes Research Institute (PCORI) : The value of engagement. Available at: https://www.pcori.org/about-us/our-programs/engagement/value-engagement. Accessed December 15, 2021
    1. Bloom D, Beetsch J, Harker M, Hesterlee S, Moreira P, Patrick-Lake B, Selig W, Sherman J, Smith SK, Valentine JE, Roberts JN: The rules of engagement: CTTI recommendations for successful collaborations between sponsors and patient groups around clinical trials. Ther Innov Regul Sci 52: 206–213, 2018 - PMC - PubMed
    1. Gutman T, Kelly A, Scholes-Robertson N, Craig JC, Jesudason S, Tong A: Patient and caregiver experiences and attitudes about their involvement in research in chronic kidney disease. Clin J Am Soc Nephrol 17: 215–227, 2022 - PMC - PubMed

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