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. 2022 Jan 27:10:790431.
doi: 10.3389/fped.2022.790431. eCollection 2022.

Development of the ICF-CY Set for Cardiac Rehabilitation After Pediatric Congenital Heart Surgery

Wen-Yi Luo  1   2 , Ping Ni  2 , Lin Chen  2 , Qian-Qian Pan  3 , Hao Zhang  2 , Ya-Qing Zhang  4
Affiliations

Development of the ICF-CY Set for Cardiac Rehabilitation After Pediatric Congenital Heart Surgery

Wen-Yi Luo et al. Front Pediatr. .

Abstract

Background: Most children with congenital heart disease (CHD) require surgical repair, and postoperative rehabilitation is an essential step to restore the quality of life. The present study constructs and confirms the International Classification of Functioning, Disability, and Health for Children and Youth core set for children with congenital heart disease 1 year after surgery (ICF-CY-CHDS).

Methods: From February 2021 to August 2021, 340 children aged 3-6 years after CHD surgery were evaluated using the ICF-CY-CHDS and analyzed using the Rasch model.

Results: The final ICF-CY-CHDS contained 22 categories; it exhibited a nonsignificant χ2 test result for the item-trait interaction (χ2 = 6736.37, p = 0.8660, Bonferroni-adjusted p = 0.0023). The average severity of children was less than the average difficulty of categories (-2.26 logit <0 logit). The weighted k of all the categories was 0.964 (p < 0.001), and the item separation index was 0.96. The area under the ROC curve of children with a diagnosis result of heart failure was 0.866 (95% CI: 0.801 ~0.931) with good sensitivity (0.875) and specificity (0.759).

Conclusion: The ICF-CY-CHDS presents a preliminary practical direction during early cardiac rehabilitation after pediatric CHD surgery, and thus provides a basis and scope for clinical evaluation and intervention program formulation.

Keywords: ICF-CY; cardiac rehabilitation; congenital heart disease; pediatric; surgery.

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Conflict of interest statement

The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

Figures

Figure 1
Figure 1
Flow chart of building the ICF-CY-CHDS.
Figure 2
Figure 2
Qualifier information for the ICF-CY-CHDS.
Figure 3
Figure 3
Item map of the 22-categories of the ICF-CY-CHDS for the children after CHD surgery in the first year.
Figure 4
Figure 4
Receiver operating characteristic (ROC) curve of the ICF-CY-CHDS.
See this image and copyright information in PMC

References

    1. GBD 2017 Congenital Heart Disease Collaborators. Global, regional, and national burden of congenital heart disease, 1990–2017: a systematic analysis for the global burden of disease study 2017. Lancet. (2020) 4:185–200. 10.1016/S2352-4642(19)30402-X - DOI - PMC - PubMed
    1. Zhang M, Luo W, Wang L, Chen X, Bao N, Xu Z. Causes of death after congenital heart surgery in children. Congenit Heart Dis. (2020) 15:377–86. 10.32604/CHD.2020.011983 - DOI
    1. Stout KK, Broberg CS, Book WM, Cecchin F, Chen JM, Dimopoulos K, et al. Chronic heart failure in congenital heart disease: a scientific statement from the American Heart Association. Circulation. (2016) 133:770–801. 10.1161/CIR.0000000000000352 - DOI - PubMed
    1. Zhen L, Fu L. Study on influencing factors of quality of life of 2 4 years old children with congenital heart disease. Chin J Modern Nurs. (2010) 16:1365–8. 10.3760/cma.j.issn.1674-2907.2010.12.001 - DOI
    1. Saavedra MJ, Eymann A, Pérez L, Busaniche J, Nápoli N, Marantz P, et al. Health related quality of life in children with congenital heart disease that undergo cardiac surgery during their first year of life. Arch Argent Pediatr. (2020) 118:166–72. 10.5546/aap.2020.eng.166 - DOI - PubMed

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