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. 2022 Feb 9;5(1):ooac005.
doi: 10.1093/jamiaopen/ooac005. eCollection 2022 Apr.

Cystic fibrosis telemedicine in the era of COVID-19

Elika J Rad  1 , Alicia A Mirza  2 , Laveena Chhatwani  2 , Natasha Purington  3 , Paul K Mohabir  2
Affiliations

Cystic fibrosis telemedicine in the era of COVID-19

Elika J Rad et al. JAMIA Open. .

Abstract

The coronavirus disease 2019 pandemic has resulted in large-scale changes to incorporate telemedicine for the delivery of care. People with cystic fibrosis (CF) have care considerations that pose challenges to telemedicine; they include frequent visits for pulmonary disease progression, medication management, and evaluation by a multidisciplinary team of providers. We share our center's experience with video visits replacing in-person clinic evaluation, using quality improvement strategies to create a replicable workflow. Key considerations include incorporation of the multidisciplinary team into the visit, limitations of remote delivery of care, as well as patient and staff perceptions of this care model. Results revealed that video visits were convenient, efficacious, and comparable to in-person visits, with interest for its continued incorporation into the traditional CF care model.

Keywords: coronavirus; cystic fibrosis; pandemic; pulmonary disease; telemedicine.

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Figures

Figure 1.
Figure 1.
Stanford adult cystic fibrosis COVID-19 telehealth/video visit functional model.
Figure 2.
Figure 2.
Stanford adult cystic fibrosis COVID-19 telehealth/video visit patient survey.
Figure 3.
Figure 3.
Stanford adult cystic fibrosis COVID-19 telehealth/video visit staff survey.
See this image and copyright information in PMC

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