Occurrence rates of inherited bleeding disorders other than haemophilia and von Willebrand disease among people receiving care in specialized treatment centres in the United States

Connie H Miller^{1

2}, J Michael Soucie^{1

2}, Vanessa R Byams¹, Amanda B Payne¹, Karon Abe¹, Magdalena Lewandowska³, Amy D Shapiro³

Affiliations

¹ Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.
² Synergy America, Inc., Duluth, Georgia, USA.
³ Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana, USA.

Connie H Miller et al. Haemophilia. 2022 May.

. 2022 May;28(3):e75-e78.

doi: 10.1111/hae.14529. Epub 2022 Mar 4.

Connie H Miller^{1

2}, J Michael Soucie^{1

2}, Vanessa R Byams¹, Amanda B Payne¹, Karon Abe¹, Magdalena Lewandowska³, Amy D Shapiro³

¹ Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.
² Synergy America, Inc., Duluth, Georgia, USA.
³ Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana, USA.

No abstract available

References

1. Soucie JM, Miller CH, Dupervil B, Le B, Buckner TW. Occurrence rates of haemophilia among males in the United States based on surveillance conducted in specialized haemophilia treatment centres. Haemophilia. 2020;26:487–493. 10.1111/hae.13998. - DOI - PMC - PubMed
1. Miller CH, Soucie JM, Byams VR, Payne AB, Sidonio RF Jr, Buckner TW, Bean CJ. Women and girls with haemophilia receiving care at specialized hemophilia treatment centres in the United States. Haemophilia 2021; 27:1037–1044. 10.1111/hae.14403. - DOI - PMC - PubMed
1. Soucie JM, Miller CH, Byams VR, et al. Occurrence rates of von Willebrand disease among people receiving care in specialized treatment centres in the United States. Haemophilia. 2021;27:445–453. 10.1111/hae.14263. - DOI - PMC - PubMed
1. Manco-Johnson MJ, Byams VR, Recht M, et al. Community Counts: Evolution of a national surveillance system for bleeding disorders. Am J Hematol. 2018;93:e137–e140. - PMC - PubMed
1. National Center on Birth Defects and Developmental Disabilities. Centers for Disease Control and Prevention. HTC Population Profile Technical Notes. 2020. https://www.cdc.gov/ncbddd/hemophilia/communitycounts/data-reports/2020-....