Registries in immune thrombocytopenia (ITP) in Europe: the European Research Consortium on ITP (ERCI) network

Guillaume Moulis^{1

2}, Nichola Cooper³, Waleed Ghanima⁴, Tomás González-López⁵, Thomas Kühne⁶, Maria L Lozano⁷, Marc Michel⁸, Drew Provan⁹, Francesco Zaja¹⁰, Nathalie Aladjidi^{11

12}, Christian Fynbo Christiansen¹³, Henrik Frederiksen¹⁴, John Grainger^{15

16}, Vickie McDonald¹⁷, Susan Robinson¹⁸, Alexandra Schifferli⁶, Francesco Rodeghiero¹⁹

Affiliations

¹ Department of Internal Medicine, Toulouse University Hospital, Toulouse, France.
² CIC 1436, Team PEPSS, Toulouse University Hospital, Toulouse, France.
³ Department of Haematology, Hammersmith Hospital, Imperial College London, London, UK.
⁴ Department of Hematooncology, Østfol Hospital and Institute of Clinical Medicine, University of Oslo, Oslo, Norway.
⁵ Department of Hematology, Hospital Universitario de Burgos, Burgos, Spain.
⁶ Oncology/Hematology, University Children's Hospital Basel, Basel, Switzerland.
⁷ Hospital Universitario Morales Meseguer, Centro Regional de Hemodonación, Universidad de Murcia, IMIB-Arrixaca, CB15/00055-CIBERER, Murcia, Spain.
⁸ Department of Internal Medicine, National Referral Center for Autoimmune Cytopenias, Créteil University Hospital, Créteil, France.
⁹ Department of Haematology, Barts and The London School of Medicine and Dentistry, Queen Mary University of London, London, UK.
¹⁰ DSM, University of Trieste, Trieste, Italy.
¹¹ Pediatric Hematology, University Hospital Centre, d'Investigation Clinique Plurithématique CICP, INSERM, Bordeaux.
¹² Centre de Référence National des Cytopénies Auto-Immunes de l'Enfant (CEREVANCE), Bordeaux, France.
¹³ Department of Clinical Epidemiology, Department of Clinical Medicine, Aarhus University and Aarhus University Hospital, Aarhus, Denmark.
¹⁴ Department of Haematology and Department of Clinical Research, Odense University Hospital and University of Southern Denmark, Odense, Denmark.
¹⁵ Department of Paediatric Haematology, Royal Manchester Children's Hospital, Manchester, UK.
¹⁶ Department of Medical Sciences, University of Manchester, Manchester, UK.
¹⁷ Department of Clinical Haematology, Royal London Hospital, Barts Health, London, UK.
¹⁸ Department of Clinical Haematology, Guys and St Thomas' NHS Foundation Trust, London, UK.
¹⁹ Hematology Project Foundation, Affiliated to the Hematology Department of the San Bortolo Hospital, Vicenza, Italy.

PMID: 35303315
DOI: 10.1111/bjh.18111

Free article

Registries in immune thrombocytopenia (ITP) in Europe: the European Research Consortium on ITP (ERCI) network

Guillaume Moulis et al. Br J Haematol. 2022 Jun.

Free article

. 2022 Jun;197(5):633-638.

doi: 10.1111/bjh.18111. Epub 2022 Mar 18.

Authors

Affiliations

¹ Department of Internal Medicine, Toulouse University Hospital, Toulouse, France.
² CIC 1436, Team PEPSS, Toulouse University Hospital, Toulouse, France.
³ Department of Haematology, Hammersmith Hospital, Imperial College London, London, UK.
⁴ Department of Hematooncology, Østfol Hospital and Institute of Clinical Medicine, University of Oslo, Oslo, Norway.
⁵ Department of Hematology, Hospital Universitario de Burgos, Burgos, Spain.
⁶ Oncology/Hematology, University Children's Hospital Basel, Basel, Switzerland.
⁷ Hospital Universitario Morales Meseguer, Centro Regional de Hemodonación, Universidad de Murcia, IMIB-Arrixaca, CB15/00055-CIBERER, Murcia, Spain.
⁸ Department of Internal Medicine, National Referral Center for Autoimmune Cytopenias, Créteil University Hospital, Créteil, France.
⁹ Department of Haematology, Barts and The London School of Medicine and Dentistry, Queen Mary University of London, London, UK.
¹⁰ DSM, University of Trieste, Trieste, Italy.
¹¹ Pediatric Hematology, University Hospital Centre, d'Investigation Clinique Plurithématique CICP, INSERM, Bordeaux.
¹² Centre de Référence National des Cytopénies Auto-Immunes de l'Enfant (CEREVANCE), Bordeaux, France.
¹³ Department of Clinical Epidemiology, Department of Clinical Medicine, Aarhus University and Aarhus University Hospital, Aarhus, Denmark.
¹⁴ Department of Haematology and Department of Clinical Research, Odense University Hospital and University of Southern Denmark, Odense, Denmark.
¹⁵ Department of Paediatric Haematology, Royal Manchester Children's Hospital, Manchester, UK.
¹⁶ Department of Medical Sciences, University of Manchester, Manchester, UK.
¹⁷ Department of Clinical Haematology, Royal London Hospital, Barts Health, London, UK.
¹⁸ Department of Clinical Haematology, Guys and St Thomas' NHS Foundation Trust, London, UK.
¹⁹ Hematology Project Foundation, Affiliated to the Hematology Department of the San Bortolo Hospital, Vicenza, Italy.

PMID: 35303315
DOI: 10.1111/bjh.18111

No abstract available

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References

REFERENCES

1. European Union Committee of Experts on rare diseases. EUCERD core recommendations on rare disease patient registration and data collection 2013. https://rarediseases.org/wp-content/uploads/2015/12/EUCERD_Recommendatio.... Accessed 13 August 2021.
1. Cooper N. Ghanima W. Immune thrombocytopenia. N Engl J Med 2019;381:945-55.
1. Moulis G, Comont T, Adoue D. [New insights into the epidemiology of immune thrombocytopenia in adult patients: impact for clinical practice] [Article in French]. Rev Med Interne. 2021;42:11-5.
1. European Research Consortium on ITP. 2019. www.ercigroup.org. Accessed 13 August 2021.
1. Signorovitch J, Brainsky A, Grotzinger KM. Validation of the FACIT-fatigue subscale, selected items from FACT-thrombocytopenia, and the SF-36v2 in patients with chronic immune thrombocytopenia. Qual Life Res. 2011;20:1737-44.

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Registries in immune thrombocytopenia (ITP) in Europe: the European Research Consortium on ITP (ERCI) network

Affiliations

Registries in immune thrombocytopenia (ITP) in Europe: the European Research Consortium on ITP (ERCI) network

Authors

Affiliations

References

REFERENCES

Publication types

MeSH terms

LinkOut - more resources

Full Text Sources