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. 2022 Mar 13;6(2):e12685.
doi: 10.1002/rth2.12685. eCollection 2022 Feb.

First experience of a hemophilia monitoring platform: florio HAEMO

Ester Zapotocka  1 , Angelika Batorova  2 , Ernest Bilic  3 , Ana Boban  4 , Carmen Escuriola Ettingshausen  5 , Barbara Faganel Kotnik  6 , Radomira Hrdlickova  7 , Pawel Laguna  8 , Jan Machal  9 , Laszlo Nemes  10 , Irena Preloznik Zupan  11 , Gediminas Puras  12 , Marianna Zombori  13
Affiliations

First experience of a hemophilia monitoring platform: florio HAEMO

Ester Zapotocka et al. Res Pract Thromb Haemost. .

Abstract

Background: florio HAEMO is a new hemophilia treatment monitoring application consisting of a patient smartphone application (app) and a web-based dashboard for healthcare professionals, providing several novel features, including activity tracking, wearable connectivity, kids and caregiver mode, and real-time pharmacokinetic factor level estimation.

Objectives: To assess intuitiveness, ease-of-use, and patient preference of florio HAEMO in Central Europe using a cross-sectional survey.

Methods: This survey was conducted in six Central European countries between 9 December 2020 and 24 May 2021. The online questionnaire included 17 questions about overall satisfaction, ease-of-use, intuitiveness, and patient preference. Adults or children with hemophilia on regular prophylaxis and using the florio HAEMO app for a minimum of 1 week were invited to complete the online questionnaire by their treating physician.

Results: Sixty-six participants took part in the survey. The median duration for all respondents using the florio HAEMO app was 3 to 4 weeks. Overall, 89.4% of users reported being very satisfied or rather satisfied after using florio HAEMO. Of the 23 respondents who had switched from another hemophilia app, 87.0% indicated that they strongly preferred or preferred using florio HAEMO. Most florio HAEMO users reported that the app was very easy or rather easy to use (97.0%) and intuitive (94.0%). florio HAEMO had a positive impact on daily living, with 78.8% of users reporting that the app was very important or rather important to them.

Conclusions: This survey suggests that florio HAEMO is an easy-to-use and intuitive app to assist self-management of home prophylaxis.

Keywords: hemophilia; patient preference; pharmacokinetics; telemedicine.

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Figures

FIGURE 1
FIGURE 1
Overall satisfaction of respondents using florio HAEMO (N = 66)
FIGURE 2
FIGURE 2
Most frequently used florio HAEMO function (N = 66). Note that respondents could provide more than one answer to the multiple‐choice questions
FIGURE 3
FIGURE 3
Ease of use and intuitiveness of florio HAEMO (N = 66). *Not intuitive, i.e., help is needed on a regular basis. **Very intuitive to use, i.e., I learned quickly
FIGURE 4
FIGURE 4
Difficulties experienced using florio HAEMO (N = 66). Note that respondents could provide more than one answer to the multiple‐choice questions
FIGURE 5
FIGURE 5
Importance of florio HAEMO in bringing more certainty to life for people living with hemophilia and/or their caregivers (N = 66)
See this image and copyright information in PMC

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