Characterizing sleep disorders in an autism-specific collection of electronic health records
- PMID: 35367909
- PMCID: PMC9018608
- DOI: 10.1016/j.sleep.2022.03.009
Characterizing sleep disorders in an autism-specific collection of electronic health records
Abstract
Objective/background: Sleep problems are common in people on the autism spectrum. This study reviews one detailed approach to querying the electronic health record (EHR) in a large tertiary care center.
Patients/methods: We developed methods for identifying people on the autism spectrum and defined their sleep problems using the key words, "sleep" or "melatonin", or International Classification of Diseases (ICD) codes. We examined treatment responses of these individuals to melatonin supplementation.
Results: Sleep problems were documented in 86% of patients with ages ranging from 6 to 30 years old. Our specific keyword search yielded more patients with sleep diagnoses than ICD codes alone. About two-thirds of patients who received melatonin supplementation reported benefit from its use.
Conclusions: Our study provides a framework for using deidentified medical records to characterize sleep, a common co-occurring condition, in people on the autism spectrum. Using specific keywords could be helpful in future work that queries the EHR.
Keywords: Autism spectrum disorder; Electronic health record; Insomnia; Melatonin; Sleep.
Copyright © 2022 Elsevier B.V. All rights reserved.
Conflict of interest statement
Declarations of Interest: None
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References
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- Brooks JD, Bronskill SE, Fu L, Saxena FE, Arneja J, Pinzaru VB, Anagnostou E, Nylen K, McLaughlin J, & Tu K (2021). Identifying Children and Youth With Autism Spectrum Disorder in Electronic Medical Records: Examining Health System Utilization and Comorbidities. Autism Research, 14(2), 400–410. 10.1002/aur.2419 - DOI - PMC - PubMed
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- Bureau, U. C. (n.d.). 2020 Census Illuminates Racial and Ethnic Composition of the Country. Census.Gov Retrieved February 21, 2022, from https://www.census.gov/library/stories/2021/08/improved-race-ethnicity-m...
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