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. 2022 Apr 7;8(5):e1300.
doi: 10.1097/TXD.0000000000001300. eCollection 2022 May.

Public Understandings of the Definition and Determination of Death: A Scoping Review

Katina Zheng  1 , Stephanie Sutherland  2 , Laura Hornby  3   4 , Sam D Shemie  5 , Lindsay Wilson  4 , Aimee J Sarti  2
Affiliations

Public Understandings of the Definition and Determination of Death: A Scoping Review

Katina Zheng et al. Transplant Direct. .

Abstract

Background: Advances in medicine and technology that have made it possible to support, repair, or replace failing organs challenge commonly held notions of life and death. The objective of this review is to develop a comprehensive description of the current understandings of the public regarding the meaning/definition and determination of death.

Methods: This scoping review was conducted in compliance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist. Online databases were used to identify articles published from 2003 to 2021. Two reviewers (S.S. and K.Z.) screened the articles using predefined inclusion and exclusion criteria, extracted data for specific content variables, and performed descriptive examination. Complementary searches of reference lists complemented the final study selection. A search strategy using vocabulary of the respective databases was created, and criteria for the inclusion and exclusion of the articles were established.

Results: Seven thousand four hundred twenty-eight references were identified. Sixty were retained for analysis, with 4 additional references added from complementary searches. A data extraction instrument was developed to iteratively chart the results. A qualitative approach was conducted to thematically analyze the data. Themes included public understanding/attitudes toward death and determination of death (neurological determination and cardiocirculatory determination of death), death and organ donation, public trust and legal variability, and media impacts.

Conclusions: This review provides a current and comprehensive overview of the literature related to the general public's understanding and attitudes toward death and death determination and serves to highlight the gaps in this topic.

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Conflict of interest statement

L.H. is a paid consultant for Canadian Blood Services. The other authors declare no conflicts of interest.

Figures

FIGURE 1.
FIGURE 1.
Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) checklist. CINAHL, Cumulative Index to Nursing and Allied Health Literature; EOL, end of life; HCP, healthcare provider. *Also includes excluded articles relating to public or religious perceptions included during the abstract screening process.
See this image and copyright information in PMC

References

    1. Shemie SD, Hornby L, Baker A, et al. ; The International Guidelines for Determination of Death phase 1 participants, in collaboration with the World Health Organization. International guideline development for the determination of death. Intensive Care Med. 2014;40:788–797. - PMC - PubMed
    1. Greer DM, Shemie SD, Lewis A, et al. . Determination of brain death/death by neurologic criteria: the World Brain Death project. JAMA. 2020;324:1078–1097. - PubMed
    1. Bernat JL. Whither brain death? Am J Bioeth. 2014;14:3–8. - PubMed
    1. Brierley J. UK court accepts neurological determination of death. Lancet. 2015;385:2254. - PubMed
    1. Crippen D. Changing interpretations of death by neurologic criteria: the McMath case. J Crit Care. 2014;29:870–871. - PubMed

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