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. 2022 Apr 7:9:23743735221092494.
doi: 10.1177/23743735221092494. eCollection 2022.

Disparities in Patient- and Family-Centered Care Among Children With Health Conditions

Tiffany B Kindratt  1 , Payton Lark  1 , Madison Ray  2 , Grace Ellen Brannon  2
Affiliations

Disparities in Patient- and Family-Centered Care Among Children With Health Conditions

Tiffany B Kindratt et al. J Patient Exp. .

Abstract

The objective of this study was to estimate and compare the prevalence of patient- and family-centered cae (PFCC) received by children in the United States (US) with chronic and developmental health conditions and determine associations between the presence of the conditions and parents' perceptions of PFCC after controlling for covariates. Linked data from the 2012-2016 National Health Interview Survey (NHIS) and 2013-2017 Medical Expenditure Panel Survey (MEPS) (n = 7,835) were tested using crude and adjusted logistic regression procedures. Parents of children with developmental delays had 32% lower odds (95% CI = 0.51-0.90) of reporting their healthcare provider always exhibited all PFCC qualities. Parents of children with allergies and developmental delays had 26% (95% CI = 0.58-0.95) and 42% (95% CI = 0.42-0.80) lower odds of reporting their provider always listened carefully compared to parents whose children did not. Findings demonstrate the importance of continuous training for providers to tailor communication for families who have children with health conditions.

Keywords: Medical Expenditure Panel Survey; National Health Interview Survey; family-centered care; patient-centered care; patient-provider communication; pediatrics; quality of care.

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Conflict of interest statement

Declaration of Conflicting Interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

References

    1. Committee on Hospital Care, Institute for Patient- and Family-Centered Care. Patient- and family-centered care and the pediatrician’s role. Pediatrics. 2012;129(2):394‐404. - PubMed
    1. Institute of Medicine (US) Committee on Quality of Health Care in America. Crossing the Quality Chasm: A New Health System for the 21st Century. Report. National Academies Press (US). June 2001. Washington (DC). 2001. Accessed November 26, 2021. http://www.ncbi.nlm.nih.gov/books/NBK222274/.
    1. Pallapies D. Trends in childhood disease. Mutat Res Genet Toxicol Environ Mutagen. 2006;608(2):100‐11. - PubMed
    1. Zablotsky B, Black LI, Maenner MJ, Schieve LA, Danielson ML, Bitsko RH, et al. Prevalence and trends of developmental disabilities among children in the United States: 2009–2017. Pediatrics. 2019;144(4):e20190811. - PMC - PubMed
    1. Akinbami LJ, Simon AE, Rossen LM. Changing trends in asthma prevalence among children. Pediatrics. 2016;137(1):1‐7. - PMC - PubMed

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