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. 2022 May-Jun;33(3):270-282.
doi: 10.1097/JNC.0000000000000308. Epub 2021 Oct 26.

Community and Provider Perspectives on Molecular HIV Surveillance and Cluster Detection and Response for HIV Prevention: Qualitative Findings From King County, Washington

Alic G Shook  1 , Susan E Buskin, Matthew Golden, Julia C Dombrowski, Joshua Herbeck, Richard J Lechtenberg, Roxanne Kerani
Affiliations

Community and Provider Perspectives on Molecular HIV Surveillance and Cluster Detection and Response for HIV Prevention: Qualitative Findings From King County, Washington

Alic G Shook et al. J Assoc Nurses AIDS Care. 2022 May-Jun.

Abstract

Responding quickly to HIV outbreaks is one of four pillars of the U.S. Ending the HIV Epidemic (EHE) initiative. Inclusion of cluster detection and response in the fourth pillar of EHE has led to public discussion concerning bioethical implications of cluster detection and response and molecular HIV surveillance (MHS) among public health authorities, researchers, and community members. This study reports on findings from a qualitative analysis of interviews with community members and providers regarding their knowledge and perspectives of MHS. We identified five key themes: (a) context matters, (b) making sense of MHS, (c) messaging, equity, and resource prioritization, (d) operationalizing confidentiality, and (e) stigma, vulnerability, and power. Inclusion of community perspectives in generating innovative approaches that address bioethical concerns related to the use of MHS data is integral to ensure that widely accessible information about the use of these data is available to a diversity of community members and providers.

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Conflict of interest statement

Disclosures

The authors report no real or perceived vested interests related to this article that could be construed as a conflict of interest.

Figures

Figure 1.
Figure 1.
Example of graphic & accompanying information provided to participants regarding Molecular HIV Surveillance and Cluster Detection and Response processes
See this image and copyright information in PMC

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