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. 2022 Mar 21;6(3):1702.
doi: 10.23889/ijpds.v6i1.1702. eCollection 2021.

The Children's Data Network: Harnessing the scientific potential of linked administrative data to inform children's programs and policies

Affiliations

The Children's Data Network: Harnessing the scientific potential of linked administrative data to inform children's programs and policies

Regan Foust et al. Int J Popul Data Sci. .

Abstract

The Children's Data Network (CDN) is a data and research collaborative focused on the linkage and analysis of administrative records. In partnership with public agencies, philanthropic funders, affiliated researchers, and community stakeholders, we seek to generate knowledge and advance evidence-rich policies that improve the health, safety, and well-being of the children of California. Given our experience negotiating access to and working with existing administrative data (and importantly, data stewards), the CDN has demonstrated its ability to perform cost-effective and rigorous record linkage, answer time-sensitive policy- and program-related questions, and build the public sector's capacity to do the same. Owing to steadfast and generous infrastructure and project support, close collaboration with public partners, and strategic analyses and engagements, the CDN has promoted a person-level and longitudinal understanding of children and families in California and in so doing, informed policy and program development nationwide. We sincerely hope that our experience-and lessons learned-can advance and inform work in other fields and jurisdictions.

Keywords: data integration; linked administrative records; program and policy development; university-based data and research center.

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Conflict of interest statement

Statement on conflicts of interest: The authors do not have any conflicts of interest to report.

Figures

Figure 1: CDN milestones
Figure 1: CDN milestones

References

    1. Children’s Data Network. People [Internet]. [cited 28 Sept 2021]. Available from: https://www.datanetwork.org/people.
    1. Children’s Data Network. About us [Internet]. [cited 23 Sept 2021]. Available from: https://www.datanetwork.org/about-us.
    1. Children’s Data Network. California Health and Human Services Agency (CHHS) draft record reconciliation methodology [Internet]. 2021. Apr [cited 27 Jan 2022]. Available from: https://www.datanetwork.org/wp-content/uploads/RR-2020_Basic_Methodology....
    1. Cuccaro-Alamin S, Putnam-Hornstein E. The Health Insurance Portability and Accountability Act of 1996 (HIPAA): implications for research with administrative records [Internet]. [cited 27 Jan 2022]. Available from: https://www.datanetwork.org/wp-content/uploads/CDN-HIPAA-Overview_Final.pdf.
    1. Cuccaro-Alamin S, Putnam-Hornstein E. The Family Educational Rights Privacy Act of 1974 (FERPA): implications for research with administrative records. [cited 27 Jan 2022]. Available from: https://www.datanetwork.org/wp-content/uploads/CDN-FERPA-Overview_Final.pdf.

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