Mental Health Care Use and Associated Factors in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study
- PMID: 35603782
- PMCID: PMC9374049
- DOI: 10.1002/acr2.11439
Mental Health Care Use and Associated Factors in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study
Abstract
Objective: Systemic sclerosis (SSc) has significant psychosocial implications. We aimed to evaluate the proportion of participants in a large international SSc cohort who used mental health services in a 3-month period and to evaluate demographic, psychological, and disease-specific factors associated with use.
Methods: Baseline data of participants enrolled in the Scleroderma Patient-Centered Intervention Network Cohort were analyzed. We determined the proportion that used mental health services and the source of services in the 3 months prior to enrollment. Multivariable logistic regression was used to identify variables associated with service use.
Results: Of the 2319 participants included in the analysis, 417 (18%) used mental health services in the 3 months prior to enrollment. General practitioners were the most common mental health service providers (59%), followed by psychologists (25%) and psychiatrists (19%). In multivariable analysis, mental health service use was independently associated with higher education (odds ratio [OR] 1.07, 95% confidence interval [CI] 1.03-1.11), smoking (OR 1.06, 95% CI 1.02-1.11), being retired (OR 0.60, 95% CI 0.38-0.93), having limited SSc (OR 1.39, 95% CI 1.02-1.89), and having higher anxiety symptom scores (OR 1.04, 95% CI 1.03-1.06) and lower self-efficacy scores (OR 0.90, 95% CI 0.83-0.97). Variables not significantly associated included age, race, disease manifestations, depression symptom scores, and body image distress.
Conclusion: About 18% of participants in a large international cohort received mental health services in a 3-month period, of whom the majority received these services from a general practitioner.
© 2022 The Authors. ACR Open Rheumatology published by Wiley Periodicals LLC on behalf of American College of Rheumatology.
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References
-
- Mayes MD, Lacey JV Jr, Beebe‐Dimmer J, Gillerspie BW, Cooper B, Laing TJ, et al. Prevalence, incidence, survival, and disease characteristics of systemic sclerosis in a large US population. Arthritis Rheum 2003;48:2246–55. - PubMed
-
- Thombs BD, van Lankveld W, Bassel M, Baron M, Buzza R, Haslam S, et al. Psychological health and well‐being in systemic sclerosis: state of the science and consensus research agenda. Arthritis Care Res (Hoboken) 2010;62:1181–9. - PubMed
-
- Jewett LR, Razykov I, Hudson M, Baron M, Thombs BD, Canadian Scleroderma Research Group. Prevalence of current, 12‐month and lifetime major depressive disorder among patients with systemic sclerosis. Rheumatology (Oxford) 2013;52:669–75. - PubMed
-
- Golemati CV, Moutsopoulos HM, Vlachoyiannopoulos PG. Psychological characteristics of systemic sclerosis patients and their correlation with major organ involvement and disease activity. Clin Exp Rheumatol 2013;31 Suppl 76:S37–45. - PubMed
Grants and funding
- Arthritis Society
- CAPMC/ CIHR/Canada
- Jewish General Hospital Foundation
- Lady Davis Institute for Medical Research of the Jewish General Hospital
- McGill University
- Scleroderma Association of BC
- Scleroderma Atlantic
- Scleroderma Australia
- Scleroderma Canada
- Scleroderma Manitoba
- Scleroderma New South Wales
- Scleroderma Queensland
- Scleroderma SASK
- Scleroderma Society of Ontario
- Scleroderma Victoria
- Sclérodermie Québec
- Thombs is supported by a Tier 1 Canada Research Chair
- CAPMC/ CIHR/Canada
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