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. 2022 Oct;19(5):405-414.
doi: 10.1111/wvn.12589. Epub 2022 May 24.

Patient preferences and experiences of participation in surgical cancer care

Jenny Drott  1   2 , Victoria Fomichov  3 , Maria Nordén  4 , Anna Lindhoff Larsson  2 , Per Sandström  2 , Bergthor Björnsson  2 , Ann Catrine Eldh  1   5
Affiliations

Patient preferences and experiences of participation in surgical cancer care

Jenny Drott et al. Worldviews Evid Based Nurs. 2022 Oct.

Abstract

Background: Quality cancer care necessitates opportunities for patient participation, supposedly recognizing the individual's preferences and experiences for being involved in their health and healthcare issues. Previous research shows that surgical cancer patients wish to be more involved, requiring professionals to be sensitive of patients' needs.

Aims: To explore preference-based patient participation in surgical cancer care.

Methods: A cross-sectional study was conducted. The Patient Preferences for Patient Participation tool (4Ps) was used, which includes 12 attributes of preferences for and experiences of patient participation. Data were analyzed with descriptive and comparative statistical methods.

Results: The results are based on a total of 101 questionnaires. Having reciprocal communication and being listened to by healthcare staff were commonly deemed crucial for patient participation. While 60% of the patients suggested that taking part in planning was crucial for their participation, they had experienced this only to some extent. Learning to manage symptoms and phrasing personal goals were items most often representing insufficient conditions for preference-based patient participation.

Linking evidence to action: To support person-centered surgical care, further efforts to suffice preference-based participation are needed, including opportunities for patients to share their experiences and engage in the planning of healthcare activities.

Keywords: cancer care; involvement; patient participation; patient preferences; person-centered care; surgical care.

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Conflict of interest statement

The authors declare that they have no conflicts of interest.

Figures

FIGURE 1
FIGURE 1
Flowchart of the inclusion process
FIGURE 2
FIGURE 2
Scores and Levels of Matches and Mismatches Between Patient Preferences and Experiences of Patient Participation. Note. Originally published by Eldh et al.
FIGURE 3
FIGURE 3
Patients Preferences for and Experiences of Patient Participation for Each Attribute. Note. The items are presented in the same order as they are presented in the 4Ps tool
FIGURE 4
FIGURE 4
Insufficient and Sufficient Levels of Preference‐Based Patient Participation. Note. Figure also includes the individual multivariate 95% confidence intervals with Bonferroni’s adjustment (n = 89)
FIGURE 5
FIGURE 5
The Four Attributes of Patient Participation with the Largest Percentages of Insufficient Preference‐Based Patient Participation. Note. Figure also includes the 95% confidence interval with Bonferroni’s adjustment for each item
FIGURE 6
FIGURE 6
The Two Attributes Rated as Crucial for Participation with the Highest Percentages of Sufficient Matches and the Two Attributes Rated as Crucial for Participation with the Lowest Percentages of Sufficient Matches. Note. Figure also includes the 95% confidence interval with Bonferroni’s adjustment for each item
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