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. 2022 May 25:294:490-494.
doi: 10.3233/SHTI220507.

A Federated and Distributed Data Management Infrastructure to Enable Public Health Surveillance from Intensive Care Unit Data

Jonas Bienzeisler  1 , Lucas Triefenbach  1 , Alexander Kombeiz  1 , Matthäus Lottes  2 , Christopher Vogel  2 , Linus Grabenhenrich  2 , Martina Fischer  2 , Theresa Kocher  2 , Lukas Niekrenz  3 , Michael Dreher  3 , Christoph Müller  4 , Rainer Röhrig  1 , Raphael W Majeed  1 ; AKTIN and SPoCK Research Group
Affiliations

A Federated and Distributed Data Management Infrastructure to Enable Public Health Surveillance from Intensive Care Unit Data

Jonas Bienzeisler et al. Stud Health Technol Inform. .

Abstract

The Robert Koch Institute (RKI) monitors the actual number of COVID-19 patients requiring intensive care from aggregated data reported by hospitals in Germany. So far, there is no infrastructure to make use of individual patient-level data from intensive care units for public health surveillance. Adopting concepts and components of the already established AKTIN Emergency Department Data registry, we implemented the prototype of a federated and distributed research infrastructure giving the RKI access to patient-level intensive care data.

Keywords: Critical care; EHR; data privacy; database; routine care research.

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