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Multicenter Study
. 2022 Aug;43(6):1239-1246.
doi: 10.1007/s00246-022-02844-w. Epub 2022 May 27.

Kawasaki Disease Arab Initiative [Kawarabi]: Establishment and Results of a Multicenter Survey

Yousra Arab  1 , Nadine Choueiter  2 , Nagib Dahdah  3 , Nermeen El-Kholy  4   5 , Sima Y Abu Al-Saoud  6 , Mohammed E Abu-Shukair  7 , Hala M Agha  8 , Hesham Al-Saloos  9   10 , Khalfan Salim Al Senaidi  11 , Raed Alzyoud  12 , Asma Bouaziz  13 , Rachida Boukari  14 , Mona M El Ganzoury  15 , Hala M Elmarsafawy  16 , Najat ELrugige  17 , Zohra Fitouri  18 , Mohamed S Ladj  19   20 , Pierre Mouawad  21 , Aso F Salih  22 , Rocio G Rojas  23 , Ashraf S Harahsheh  24
Affiliations
Multicenter Study

Kawasaki Disease Arab Initiative [Kawarabi]: Establishment and Results of a Multicenter Survey

Yousra Arab et al. Pediatr Cardiol. 2022 Aug.

Abstract

Studies on Kawasaki disease (KD) in Arab countries are scarce, often providing incomplete data. This along with the benefits of multicenter research collaboratives led to the creation of the KD Arab Initiative [Kawarabi] consortium. An anonymous survey was completed among potential collaborative Arab medical institutions to assess burden of KD in those countries and resources available to physicians. An online 32-item survey was distributed to participating institutions after conducting face validity. One survey per institution was collected. Nineteen physicians from 12 countries completed the survey representing 19 out of 20 institutions (response rate of 95%). Fifteen (79%) institutions referred to the 2017 American Heart Association guidelines when managing a patient with KD. Intravenous immunoglobulin (IVIG) is not readily available at 2 institutions (11%) yet available in the country. In one center (5%), IVIG is imported on-demand. The knowledge and awareness among countries' general population was graded (0 to 10) at median/interquartiles (IQR) 3 (2-5) and at median/IQR 7 (6-8) in the medical community outside their institution. Practice variations in KD management and treatment across Arab countries require solid proactive collaboration. The low awareness and knowledge estimates about KD among the general population contrasted with a high level among the medical community. The Kawarabi collaborative will offer a platform to assess disease burden of KD, among Arab population, decrease practice variation and foster population-based knowledge.

Keywords: Arab; Cardiac complications; Kawasaki disease; Multicenter collaborative; Registry; Survey.

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Conflict of interest statement

All authors declare that they have no conflict of interest.

Figures

Fig. 1
Fig. 1
Countries that participated in the survey. The 12 participating countries are labeled by a red pin
Fig. 2
Fig. 2
Distribution of primary services in charge of the acute, sub-acute and long-term care for KD patients. The data shown are in percentages
Fig. 3
Fig. 3
Distribution of services that are consulted in addition to the primary services during the acute phase for KD patients. The data shown are in percentages
See this image and copyright information in PMC

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