Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2022 May 22:42:108301.
doi: 10.1016/j.dib.2022.108301. eCollection 2022 Jun.

Health-related confidentiality and consent among minors: Data on adult perspectives from Belgium and The Netherlands

David De Coninck  1   2 , Koen Matthijs  1   2 , Peter de Winter  2   3   4 , Jaan Toelen  2   4   5
Affiliations

Health-related confidentiality and consent among minors: Data on adult perspectives from Belgium and The Netherlands

David De Coninck et al. Data Brief. .

Abstract

The data presented in this article provide one of the first large-scale insights on adult preferences for confidentiality and consent with regards to medical decision-making for minors. We collected data on these preferences through 12 hypothetical scenario's that were presented, for which each participant had to indicate if they would (not) follow the minor's preferences. Data regarding family communication, relationship quality, and sociodemographic characteristics were also collected. The data were collected through an online survey in September and October 2020, which yielded responses from 1000 Belgian and 1000 Dutch participants between 35 and 55 years of age. We selected this age range because it increased the chances that they had a child near the age of the fictional minor in the hypothetical cases. These data can be of interest for family researchers and/or health workers who want to explore adults' perceptions regarding confidentiality and consent among minors.

Keywords: Adolescents; Confidentiality; Consent; Medical decision-making; Minors; Parents.

PubMed Disclaimer

Conflict of interest statement

The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.

References

    1. De Coninck D., Matthijs K., de Winter P., Toelen J. Late adolescents’ own and assumed parental preferences towards health-care related confidentiality and consent in Belgium. PLoS One. 2021;16 doi: 10.1371/journal.pone.0252618. - DOI - PMC - PubMed
    1. Stavleu D.C., de Winter P., Veenstra X., van Stralen K.J., De Coninck D., Matthijs K., Toelen J. Parental opinions on medical decision-making in adolescence: a case-based survey. J. Dev. Behav. Pediatr. 2022;43:17–22. doi: 10.1097/DBP.0000000000000978. - DOI - PubMed
    1. De Coninck D., Matthijs K., de Winter P., Toelen J. Health-related confidentiality and consent among minors: data on adult perspectives from Belgium and The Netherlands. Mendeley Data. 2022 doi: 10.17632/mxmt3cy5dx.1. v1. - DOI - PMC - PubMed
    1. Devroey D., Deneyer M., Scheys E., Van De Vijver E., Van den Block L. The perception of patients’ rights among Belgian population. Cent. Eur. J. Public Health. 2013;21:109–117. - PubMed
    1. Olson D., Barnes H. In: FACES IV Package. Olson D., Gorall D., Tiesel J., editors. Life Innovations, Inc; Minneapolis: 2004. Family communication.

LinkOut - more resources