Economical Utilization of Health Information with Learning Healthcare System Data Commons

Abstract

Finding, accessing, sharing, and analyzing patient data from a clinical setting for collaborative research has continually proven to be a challenge in healthcare organizations. The human and technological architecture required to perform these services exist at the largest academic institutions but are usually under-funded. At smaller, less academically focused healthcare organizations across the United States, where the majority of care is delivered, they are generally absent. Here we propose a solution called the Learning Healthcare System Data Commons where cost is usage-based and the most basic elements are designed to be extensible, allowing it to evolve with the changing landscape of healthcare. Herein we also discuss our reference implementation of this platform tailored specifically for operational sustainability and governance using the data generated in a hospital setting for research, quality, and educational purposes.

Figure 1

Research Support Data Flow and Best Practices

Figure 2

Data Model, Data Discovery, and Data Analysis