Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic

doi:10.1136/bmjopen-2021-059534

. 2022 Jun 13;12(6):e059534.

doi: 10.1136/bmjopen-2021-059534.

Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic

Anna Pollock¹, Kate D'Cruz², Adam Scheinberg^{1

3

4}, Edith Botchway¹, Louise Harms⁵, David J Amor^{1

6}, Vicki Anderson^{1

7}, Bruce Bonyhady⁸, Sarah Knight^{9

3

7}

Affiliations

¹ Clinical Sciences, Murdoch Children's Research Institute, Parkville, Victoria, Australia.
² Department of Occupational Therapy, La Trobe University, Melbourne, Victoria, Australia.
³ Victorian Paediatric Rehabilitation Service, Royal Children's Hospital Melbourne, Parkville, Victoria, Australia.
⁴ Melbourne Medical School, The University of Melbourne, Melbourne, Victoria, Australia.
⁵ Department of Social Work, The University of Melbourne, Melbourne, Victoria, Australia.
⁶ Paediatrics, The University of Melbourne, Melbourne, Victoria, Australia.
⁷ Department of Paediatrics and School of Psychological Sciences, The University of Melbourne Faculty of Medicine, Dentistry and Health Sciences, Melbourne, Victoria, Australia.
⁸ Melbourne Disability Institute, The University of Melbourne Faculty of Medicine, Dentistry and Health Sciences, Melbourne, Victoria, Australia.
⁹ Clinical Sciences, Murdoch Children's Research Institute, Parkville, Victoria, Australia sarah.knight@mcri.edu.au.

PMID: 35697462
PMCID: PMC9195152
DOI: 10.1136/bmjopen-2021-059534

Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic

Anna Pollock et al. BMJ Open. 2022.

. 2022 Jun 13;12(6):e059534.

doi: 10.1136/bmjopen-2021-059534.

Authors

Anna Pollock¹, Kate D'Cruz², Adam Scheinberg^{1

3

4}, Edith Botchway¹, Louise Harms⁵, David J Amor^{1

6}, Vicki Anderson^{1

7}, Bruce Bonyhady⁸, Sarah Knight^{9

3

7}

Affiliations

¹ Clinical Sciences, Murdoch Children's Research Institute, Parkville, Victoria, Australia.
² Department of Occupational Therapy, La Trobe University, Melbourne, Victoria, Australia.
³ Victorian Paediatric Rehabilitation Service, Royal Children's Hospital Melbourne, Parkville, Victoria, Australia.
⁴ Melbourne Medical School, The University of Melbourne, Melbourne, Victoria, Australia.
⁵ Department of Social Work, The University of Melbourne, Melbourne, Victoria, Australia.
⁶ Paediatrics, The University of Melbourne, Melbourne, Victoria, Australia.
⁷ Department of Paediatrics and School of Psychological Sciences, The University of Melbourne Faculty of Medicine, Dentistry and Health Sciences, Melbourne, Victoria, Australia.
⁸ Melbourne Disability Institute, The University of Melbourne Faculty of Medicine, Dentistry and Health Sciences, Melbourne, Victoria, Australia.
⁹ Clinical Sciences, Murdoch Children's Research Institute, Parkville, Victoria, Australia sarah.knight@mcri.edu.au.

PMID: 35697462
PMCID: PMC9195152
DOI: 10.1136/bmjopen-2021-059534

Abstract

Objectives: COVID-19 has led to rapid changes in rehabilitation service provision for young people living with traumatic brain and/or spinal cord injury. The aim of this project was to understand the experiences of rehabilitation service providers during the acute response stage of the COVID-19 pandemic. Specifically, we aimed to identify innovative approaches to meeting the ongoing needs of young people with traumatic brain and/or spinal cord injury during this time.

Setting: This study was conducted at a research institute and involved remote interviews with key informants around Australia and internationally.

Participants: Key informants from 11 services supporting children and/or adolescents with traumatic brain injury and/or spinal cord injury were interviewed using a semistructured interview guide. Interviews were transcribed and analysed using inductive thematic analysis.

Results: Three key themes emerged: (1) recognising and responding to the experiences of families during the pandemic, (2) the impact of greater use of telehealth on care delivery, and (3) realising opportunities to enhance family-centred care.

Conclusions: These themes capture shifting perspectives and process changes relevant to longer term practice. Research findings suggest opportunities for future service development, enabling service delivery that is more family centred, flexible and efficient in meeting the needs of families. Understanding these experiences and the changed nature of service delivery provides important insights with implications for future service improvement.

Keywords: COVID-19; paediatrics; qualitative research; rehabilitation medicine.

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Conflict of interest statement

Competing interests: None declared.

Figures

**Figure 1**
Types of services interviewed. The disability and insurance services were based in Australia. Aus, Australian-based services; Int, international.

See this image and copyright information in PMC

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'They could not see our eyes, they cannot see our faces, they do not know who we are and that is hard': a qualitative interview study with staff caring for children and families in a UK specialist children's hospital during the COVID-19 pandemic.
Aldiss S, Gibson F, Vindrola-Padros C, Wray J, Kelly P. Aldiss S, et al. BMJ Open. 2023 Jun 14;13(6):e070048. doi: 10.1136/bmjopen-2022-070048. BMJ Open. 2023. PMID: 37316313 Free PMC article.

References

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1. Chintalapudi N, Battineni G, Amenta F. COVID-19 virus outbreak forecasting of registered and recovered cases after sixty day lockdown in Italy: a data driven model approach. J Microbiol Immunol Infect 2020;53:396–403. 10.1016/j.jmii.2020.04.004 - DOI - PMC - PubMed
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[1] Sohrabi C, Alsafi Z, O'Neill N, et al. . World health organization declares global emergency: a review of the 2019 novel coronavirus (COVID-19). Int J Surg 2020;76:71–6. 10.1016/j.ijsu.2020.02.034 - DOI - PMC - PubMed

[2] Sohrabi C, Alsafi Z, O'Neill N, et al. . World health organization declares global emergency: a review of the 2019 novel coronavirus (COVID-19). Int J Surg 2020;76:71–6. 10.1016/j.ijsu.2020.02.034 - DOI - PMC - PubMed

[3] Remuzzi A. Remuzzi G: COVID-19 and Italy: what next? The Lancet 2020;395:1225–8. 10.1016/S0140-6736(20)30627-9 - DOI - PMC - PubMed

[4] Remuzzi A. Remuzzi G: COVID-19 and Italy: what next? The Lancet 2020;395:1225–8. 10.1016/S0140-6736(20)30627-9 - DOI - PMC - PubMed

[5] Parodi SM, Liu VX. From containment to mitigation of COVID-19 in the US. JAMA 2020;323:1441–2. 10.1001/jama.2020.3882 - DOI - PubMed

[6] Parodi SM, Liu VX. From containment to mitigation of COVID-19 in the US. JAMA 2020;323:1441–2. 10.1001/jama.2020.3882 - DOI - PubMed

[7] Chintalapudi N, Battineni G, Amenta F. COVID-19 virus outbreak forecasting of registered and recovered cases after sixty day lockdown in Italy: a data driven model approach. J Microbiol Immunol Infect 2020;53:396–403. 10.1016/j.jmii.2020.04.004 - DOI - PMC - PubMed

[8] Chintalapudi N, Battineni G, Amenta F. COVID-19 virus outbreak forecasting of registered and recovered cases after sixty day lockdown in Italy: a data driven model approach. J Microbiol Immunol Infect 2020;53:396–403. 10.1016/j.jmii.2020.04.004 - DOI - PMC - PubMed

[9] Blakely T, Thompson J, Carvalho N, et al. . The probability of the 6-week lockdown in Victoria (commencing 9 July 2020) achieving elimination of community transmission of SARS-CoV-2. Med J Aust 2020;213:349–51. 10.5694/mja2.50786 - DOI - PubMed

[10] Blakely T, Thompson J, Carvalho N, et al. . The probability of the 6-week lockdown in Victoria (commencing 9 July 2020) achieving elimination of community transmission of SARS-CoV-2. Med J Aust 2020;213:349–51. 10.5694/mja2.50786 - DOI - PubMed

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Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic

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Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic

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